Emily spoke to the A W Page Society in April 2023 about her disability, resilience, and the journey to find her voice. Learn more about Emily at www.ecgoodson.com
My daughter at an early age told me she didn't want me doing her hair. I wouldn't want someone pulling my hair so long fire such lame results either....
I would like to hear where she is going with her comment about learning to respond emotionally to having a disability. It is a significant part of recovery and should be recognized as such
Completely agree! I talk about it a lot in my work. You might be interested in the end of this engagement where I talk a little more about it: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-Kh5iKX9k6uU.html
Or a column I did in the LA Times goes into it in more depth - www.latimes.com/lifestyle/story/2022-02-27/la-affairs-dating-in-los-angles-when-you-are-disabled
From personal experience it’s kind of like a very long grieving process. You grieve for the life you lost and for the future life you were planning to have.
When I was 30, my husband had a massive stroke. He can’t use his right arm and his leg is similar to yours. He has to walk with a cane. He also has aphasia. So communicating is difficult, even after 4 years. It’s so inspiring to see this. I wish I had seen things like this when his stroke first happened. I was so scared he’d never walk or talk again. ❤
i don’t consider myself as having a disability but i have fibromyalgia and the first 2 or so years of having it were really emotionally rough. between being put on a medication that made things worse, not having proper pain management, having a doctor that didn’t listen to me, and being in nonstop full body pain while trying to work a job, i was stressed enough, but having to accept on top of it that i was never going to be normal again, was really, really hard. but eventually i learned how to rearrange my life to accommodate myself better. it took time but i’m doing okay now, i know how to manage and i am used to it. this woman seems like she has a great sense of humor, she’s strong. i have no idea how she even got that hair tie on like that 😂 bad ass.
i just know I JUST KNOW this woman gets comments like "you don't look disabled" and i know it because she's beautiful and is able to convey herself. everyone expects disabilities to be completely physically or cognitively obvious but that is just not the case. her experience however with formerly being in that state makes her incredibly important to the disabled community because she can articulate what that is like and how she is still disabled despite recovery, and that people with all disabilities are deserving of respect, recognition, and accommodation
I don't have the whole talk posted, but I do have the opening and closing clips posted on my channel! Please check them out. Opening - ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-6Ba2QhijXFw.html Closing - ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-Kh5iKX9k6uU.html