Quality of Life and interstitial lung disease (ILD) | APF & Brompton and Harefield Hospitals 

Brilliant patients and carers sharing their experiences, we can feel quit isolated at times with this terrible disease, thankyou christopher

Thank you so much that was extremely helpful. I am not long diagnosed with Interstitial Pulmonary Fibrosis and on oxygen. I can't do very much without getting breathless. I also have Osteoporosis and degenerative disc disease and the doctor said my spinal bones are so thin that they could break at any moment. Osteoarthritis is another diagnosis. I also have Aortic Stenosis and have already had a previous anterior Myocardial Infarction which showed up on an ECG and High blood Pressure. I fell and broke my hip in May 2022 or 2023 can't remember... and am still on a rollator. So, all of this means that I have been in bed a lot and I am worried about losing muscle function. Both my husband and I were hospitalised with covid and our family were told not to expect us live or we would be in hospital for 6 months. So, it's been really hard recently.

Pulmonary hypertension and pulmonary fibrosis diagnosed with sarcoidosis at age 26 diagnosed with pneumoconiosis at age 48 retired at age 50 for obvious reasons resting oxygen of 93/94 drops to 88 when mobilising I'm 60 now and struggling but apparently according to my consultant I'm just fine 😅

the weird thing is if I do loads of lugging about I seem to get better . But just waiting to hear . Had blood test , x-ray just got to have lung function test . so bit scared at the moment waiting to hear if I've got it or not another weird thing if I burp I'm ok but just don't know think that's the worst thing the unknown.

Algorithym , Why you bring me here..