Race to a cure for ALS

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Brian Wallach has already beaten the odds. Four years ago, he was diagnosed with ALS - amyotrophic lateral sclerosis - and given just six months to live. He's used that time to lobby for more research funds for dozens of clinical trials of promising drugs to combat the disease. Correspondent Lee Cowan talks with Wallach and his wife, Sandra Abrevaya, about their organization, I Am ALS, and their unceasing efforts to expand treatments for ALS patients; and with Chris Snow, whose use of a promising experimental ALS treatment has already more than doubled his life expectancy.
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Опубликовано:

23 сен 2024

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Комментарии : 902

@esmeu247 2 года назад

My heart goes out to all this families fighting ALS. Going through it with my mom.

@juliuscaesar5099 2 года назад

Anyone with ALS can speak with #DrBalogun bout getting a herbal medicine that actually help cure me just as you feel it works very fast for most, and much better than non‐opioid analgesics, including acetaminophen, ru-vid.com/show-UCTLVdF3iPu91GLSUJhqtQLA

@jassewall2170 2 года назад

A big thanks to you #DrLocaHerbs Just confirm am completely free from .ALS.🇺🇸❤ with the help of his wonderful herbal medicine, may God continue to bless you and your wonderful herbal medicine thanks so much doctor_loca. anyone looking for any herbal medicine should kindly contact WhatsApp place your order for his lovely herbal medicine 👇#DrLocaHerbs

@EndTimeNazerne Год назад

How is your mum?

@johnhalbe6530 Год назад

Your heart can only go out to one person

@musicandpoetry_8 Год назад

We had a family friend who had this..she was in extreme pain and would moan but couldn’t speak..what an absolutely horrendous disease and im sorry your mom is going through it :((

@ritamarie2976 3 года назад

ALS is not a terrible disease. It is devastating and a death sentence. It is so hard to believe that nothing came out of all the research money from the ice bucket challenge. I am bed bound and an invalid due to MS. I was also highly educated and a productive member of society, wife and mother. I was robbed in the prime of my life by an invisible enemy. So much help is needed in so many areas.

@BJ-bc7sl Год назад

I believe it is all triggered by Tick borne pathogens.

@soulfire. Год назад

Have you tried healing yourself? Have you tried fasting and using food as medicine? MS recovery is possible ✨

@senorsink887 Год назад

Self help mfs when they heal severe neurological disease through good eating @@soulfire.

@rethahines5636 Год назад

wrong to put ice water on your head, freezes the brain cells. even for seconds is dangerous. researchers should know this

@mary-vy3mo 11 месяцев назад

wrong only newly diagnosed rrms can recover..progressive ms has no treatments.

@brandonsdreams3197 3 года назад

My grandmother passed away in 2007 from ALS, there were no treatments and she lived less than a year. I am in school for Biomedical Science, i want to be a doctor and find a cure.. I promised her ❤️❤️❤️ Rest in peace mommom Cacci

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@lindahargrove7137 Год назад

I’m super excited! I just got rid off my ALS respectively STD within 13days #drallenben 🌕

@perandersen8951 Год назад

Thank you

@subsasham1238 Год назад

@@lindahargrove7137 how please share

@علي-ج6ز5و Год назад

can you help me

@stephaniemitchell9160 3 года назад

I was diagnosed with ALS in January and told I have two years to live. The lack of treatment is maddening. AMX0035, NurOwn, and Toferson are all absolutely better than the two approved ALS drugs yet the FDA won't approve them.

@forlove5859 3 года назад

I pray for a cure, but, In the mean time, I will also pray for you!! 🙏

@martin75027 3 года назад

I’m so sorry about your diagnosis. I’m praying that these drugs will be approved soon.

@schawnettarobinson8584 3 года назад

I’m praying and rooting for you..🙏

@smartyjonesen 3 года назад

Hang in there Stephanie! Praying for you and sending love and hope. You are a special and powerful and beautiful human. Lots of possibilities on the horizon. Stay strong!

@lemonhead1256 3 года назад

god bless you

@nutmeg1945 3 месяца назад

In case anyone is wondering, he's still alive as of 2024.

@Donnie-u9i 2 месяца назад

Alive by at least 7/8/24

@bkennebr06 23 дня назад

Alive as of 08/31/2024. I follow him on Twitter

@ADRgman 3 года назад

I lost one of my former teachers to ALS a few months ago. I’m glad that I knew her when she was alive. I will always remember her.

@rustyrelicsfarm2406 3 года назад

I have a Great Aunt that has Multiple Sclerosis and she has lost all of her mobility. I hate that she would raise cattle and feed them. MS has took her passion away from her.

@ColinFarrell-ij3bh Год назад

Broad times that step we are afraid to take might just be the right one.I Appreciate you Dr Okubi for your Generosity and for not allowing me Tremble throughout the whole revolution. Your medication for ALS is super tremendous i am delighted i came across your channel on youtube.

@serenesapphire4406 3 года назад

Sadly, a Race lost by so many. I lost my Brother to ALS, a strong man with 2 beautiful daughters. May God Bless those suffering from this insidious disease, and their care takers. RIP my beloved Brother Rod ♥️🕊

@cherylhart9370 2 года назад

My brothers actually started basically backwards. He had the same dr. Who helpes christopher reeve with his brearhing put the device in him

@beverlylinda769 2 года назад

#Drehizogie Herbal medicine🍵🥬 is best to get rid of all kinds of infections, disease and virus please contact him on RU-vid #Drehizogie

@leleharrington-perkins7276 2 года назад

Sorry for your loss

@joyceknursecanada2460 2 года назад

I believe that no condition is permanent ,,, I was suffering from ALS for Many Year I couldn't walk , I used alot of medication but non of it could cure me u til I got a review of Dr Okosodo Sunday Herbal Home has the cure so I contacted him and ordered his herbal medicine after I finished the medication for 14days I felt a great relief and I started to Walk again thank you so much Doc ru-vid.com/show-UC7Qx8cMXo_vf2rwcTrt_CFwv

@terencesdurag2823 Год назад

Sorry for your loss

@soniahurtado38 3 года назад

I am leaving with ALS, I am so grateful for Brian an his wife they are doing so good with “I Am ALS organization, thank you Big hug with love Sonia

@carolrousseau3629 3 года назад

God please bless Brian and all the ALS families out there.

@wallacewallace4801 3 года назад

Amen ❤

@lisawidrick6934 3 года назад

Amen😍😍

@christinechong6240 3 года назад

🙏🏼 Amen

@ent8022 3 года назад

Thankyou

@COD3NAM3FRITO 3 года назад

Amen

@Christianduke-b7n 3 года назад

A absolutely horrible disease! I lost my mother to ALS. Was given 2-5 years and lost her in 8 months.

@sebastianl0r 2 года назад

lost my grandma.. she was given 1-2 years lost her in 7 months

@ColinFarrell-ij3bh Год назад

@arelee7974 Год назад

me too...i lost my mom in 2019.....what suprised me is that diagnosed took over a year before doctor declared she have ALS......how rare is that

@OddEyeGuy Год назад

@@arelee7974my father was misdiagnosed for years by the VA

@ankitamishra3687 Год назад

Even my mother's diagnosis took almost 8 months since initial health issues and we lost her in another 3 months

@marilynkelly-clark3325 2 года назад

I don't know of a worse disease than this one. Your mind is intact and active but trapped inside a body that doesn't work and it robs you of everything from communicating to being able to move, or swallow. It's horrible. I pray for a cure.

@pamelamays4186 3 года назад

Kudos to Sondra for staying by Brian's side.

@holdencawffle626 2 года назад

Eh she married him for the money

@nyx4love 2 месяца назад

That is what you do as a spouse ... I cared for mine until his death. I wish we had all the help and knowledge that this couple fights for. It is too late for my husband.

@lisaferrin Год назад

You can see how much his wife loves him. So sweet with him.

@treefiddy5424 3 года назад

This disease is the most heartbreaking…

@PEPSIMAX2013 3 года назад

selma blair is getting better fighting since 2015

@treefiddy5424 3 года назад

@@PEPSIMAX2013 doesn’t she have ms though ? It’s kinda different from ALS

@ivyparker3519 3 года назад

Am so happy to be permanent cured from ALS through herbal medication thanks to Dr Ehimare ..you can contact him on RU-vid at Dr Ehimare or WhatsApp +2349027349748,he cures all types of disease and virus ....

@lisawidrick6934 3 года назад

Yes it is.

@pablogaming1244 3 года назад

@@ivyparker3519 you in.everywhere...every videos...this same...comment.. Please dont cheat people..because they are in trouble because of als ... Please don't 🙏🙏

@chrisfinch8637 3 года назад

This feels so close to me, since I had a neighbor with A.L.S. and I was feeling so distraught for her family, when I heard that she had passed away from it (since I thought I wanted to say my final words to her). The family was carrying her out on her wheelchair, for her afternoon walks, and I often wondered how she was doing, for herself, and the parting words I said to her, one day, on her last days on earth, was all she and her family needed to hear. Boy, she was one of the best, that our neighborhood ever had. She is still missed, to this day, by all of us. Bless your heart, Lisa. ❤️

@joyceknursecanada2460 2 года назад

@lauramclean6905 3 года назад

If we can push the covid vaccines through with less red tape can’t we do. That for other things? I mean as a person with a disability it blows my mind that people who are part of my community can’t get access to potential treatments faster

@roxannemitchell6112 3 года назад

Its the pharmaceutical companies. There are cures for certain diseases including cancers, but it's all about money. Giving medications to patients with disease entities to treat and not heal. Meds are just a measure to keep one alive until the end of life. Sadly.

@roxannemitchell6112 3 года назад

Its also political. If people are treated with life saving treatments then the pharmaceutical industry would lose trillions of dollars.

@absatwell8163 3 года назад

My thoughts exactly. Lost my mom to Alzheimer’s and dad to cancer. It feels like people are dragging their feet on the very least…treatments. So sad.

@ksmith2852 3 года назад

Why? Because the drug companies only care about making money. A world wide pandemic vs 5000 cases a year for AlS.

@absatwell8163 3 года назад

@@ksmith2852 I can’t tell if you’re being facetious.

@schawnettarobinson8584 3 года назад

This is heartbreaking. He was a trifecta. I’m praying for a cure.

@joyceknursecanada2460 2 года назад

@tammyhollingworth6887 3 года назад

You are doing such good work! My dad passed away from ALS 16 years ago. It is a horrible fight I don’t wish in anyone. Keep up the great work ❤️

@mikegibson5971 2 года назад

My dad here in Texas passed away of ALS in 2002. My thoughts and prayers are with you guys!!! Love,Mike

@joyceknursecanada2460 2 года назад

@jeremys5725 3 года назад

My late aunt was diagnosed with ALS in 1992 and given only a few years to live. She made it 23 years before passing away in 2015. She experienced it much like the late Stephen Hawking, a slower progression though she was wheelchair bound within a few years and then on a ventilator not long after. They were able to wire sensors to the few muscles in her face that she could control so she could communicate though her laptop. The laptop gave her the ability to have a voice, send emails, and even have a Facebook account. She was a loving, sweet, and beautiful woman but also a fighter.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@deb5710 3 года назад

I lost my cousin Nancy to ALS. I loved Nancy like she was my own sister, a constant ray of sunshine, always optimistic, a talented flutist, with a Degree in Physics. She left behind a daughter and a son. I hope they find a cure for ALS.

@joyceknursecanada2460 2 года назад

@brianhumphrey6791 3 года назад

My grandmother died from this horrible disease. She fought it for 10 years.

@lisawidrick6934 3 года назад

My dad fought it 4. Seven years. I was 18 and I'm 55now

@sebastianl0r 2 года назад

Same but she fought it for 8 months… RIP dude hope ur doing Okay

@L.Spencer 3 года назад

I'm so sorry for him, but glad I saw this. Thank you.

@brucegelman5582 3 года назад

Bless him and his family

@MrJaxonyang 2 года назад

Anyone who has recently been diagnosed or knows someone with ALS, you're awesome and so much more than your diagnosis. Be strong and sending hope and love. Sincerely, a stranger.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here

@vanitas. Год назад

@@lanaowe781 The worst thing you can do is to give false hopes to people with A.S.L.

@lanaowe781 Год назад

@@vanitas. my no jokes this really work trust me

@vanitas. Год назад

@@lanaowe781 You should know what people can do for a glimpse of hope. You are either taking part in a scummy thing or being deceived

@lanaowe781 Год назад

@@vanitas. no jokes and don’t take it as jokes This is real life

@amyreynolds3619 3 года назад

I lost my Dad, sister, aunt and grandmother of this disease too.

@jillsalkin7389 3 года назад

Oh, my. I'm so very sorry.

@schawnettarobinson8584 3 года назад

May God comfort and keep you..

@sylviaoesterwinter8858 3 года назад

Amy I am so, so sorry. I lost my brother in March. This disease is evil.

@jancraig9298 3 года назад

That is really sad, it seems as though it runs in your family. Praying for you

@joyceknursecanada2460 2 года назад

@janelwood585 10 месяцев назад

My husband was diagnosed with ALS in 2011. Within months he had respiratory failure, became totally paralyzed and chose to live with a ventilator and feeding tube. He was only able to communicate by blinking his eyes to type on a tablet mounted on his wheelchair. He survived 3-1/2 years with the help of an experimental drug. Hopefully, there will someday be a generation that survives and thrives in spite of ALS.

@RobdeKlerk-qg6lc 8 месяцев назад

Is lhermitte sign present in ALS

@mrs.catherinecoley392 7 месяцев назад

I will advice you to use Herbals Medicine, it’s very effective and cure completely

@libertyann439 3 года назад

So sad and heartbreaking.

@pridefan23 3 года назад

Ayo! Despite all our battles, we must constantly b there for everyone... with individuals battling ALS, know that y'all are immensely loved, valued...for the families keep on making your voices heard. #keeponfighting #strongertogether

@MIMI232 8 месяцев назад

I remember seeing the ice bucket challenge & being like yeah…funny having water dumped on you. Not knowing years later my brother would be diagnosed with this disease. He was a fit & healthy person, riding his bike, working as a plumber. Now he can’t drive, can’t do anything for himself or speak. This disease is devastating. He’s only in his early 50s I still haven’t come to terms with my own family member having this disease. Praying for those who it has affected.

@RobdeKlerk-qg6lc 8 месяцев назад

Is lhermitte sign present in als

@mrs.catherinecoley392 7 месяцев назад

Do you know there’s a Herbal Medicine that can treat and cure you completely? Am a living testimony with the Help of Dr. Vikraftsambos Herbs.

@whiteclouds26 5 месяцев назад

@@mrs.catherinecoley392show proof don't give false advertisement advertisement

@anchalarneja 4 месяца назад

I remember seeing the ice bucket challenge too. It appeared to be like such a far away rare disease. Few years later my grandfather got diagnosed with it. And I see him get worse everyday. And I can't help him. It's the worst thing ever

@MIMI232 4 месяца назад

@@anchalarneja It really did seem like a far away disease. I’m so sorry to hear that your grandfather was diagnosed with this awful disease.

@jch4538 3 года назад

so young.... so sad....my best wishes

@docholiday9786 2 года назад

My mother was diagnosed about a yr ago and I noticed things weren't right with her voice when she talked but nobody else in the family noticed it. She's losing alot of strength and can no longer speak. I LOVE YOU MOM!!! And miss your voice

@aishatyakubu6494 2 года назад

I was in the same difficulties before he helped me few days ago okay.... Contact Dr Wilson 🏃🏃

@aishatyakubu6494 2 года назад

Don't waste your time here he can help you and you get fast and effective results he deal with all kind of problem.,

@aishatyakubu6494 2 года назад

Messaging him on WhatsApp

@aishatyakubu6494 2 года назад

±2348102689570⏯⏯⏯️⏯️⏯️ Hello it's works I can't believe am with my love again after so many years of break-up.,.......

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here.

@DanielDenoted 3 года назад

You are as strong as your spouse. What a solid couple. Wow

@Anonymous10384 Год назад

My grandpa died almost a year ago from this. I just can’t move on. Everyday I cry or even in school I come close to breaking down. I miss him a lot he was one of my best friends. I wish he was still here. I hope Brian is still alive and fighting

@aranha6285 Год назад

I wish you well. This disease is something nobody deserves

@aranha6285 Год назад

I wish you well. This disease is something nobody deserves

@Anonymous10384 Год назад

@@aranha6285 thank you, this means a lot

@cecilia9151 Год назад

my aunt is just diagnosed with als like a week ago and i still cant really get over the fact

@cecilia9151 Год назад

and im sorry for your loss

@giancarlofernandez6890 3 года назад

This is a crazy disease. My aunt has it and the FDA should be working at a faster pace to get a drug that can help these patients!

@ericpixley4594 3 года назад

The fda doesn’t bring drugs to market

@absatwell8163 3 года назад

@@ericpixley4594 However, they approve them.

@joyceknursecanada2460 2 года назад

@btudrus Год назад

"My aunt has it and the FDA should be working at a faster pace to get a drug that can help these patients!" Drugs won't help...

@ColinFarrell-ij3bh Год назад

@southernsass2937 3 года назад

A Monster disease. I lost my beautiful sister almost 2 years ago to ALS 😢 So very 💔 to watch, & nothing we can do to stop it .

@joyceknursecanada2460 2 года назад

@JustDT851 Год назад

Things we will better in the future for ALS sufferers, within atleast a few decades ALS will be livable and potentially curable until many decades. I am very sorry for her death.

@shadow03clb 3 месяца назад

Please find a cure for Ms as well. I was diagnosed with Ms at 3 2 and I have a bad course of Ms called primary progressive. I am completely paralyzed in both legs and my right arm and have very little strength in movement in my left arm. I'm chair bound, bed bound, and housebound. I cannot walk, I have to have a caregiver bathe me and dress me and feed me. It gets hard for me to talk because my tongue muscles get weak and I have to be careful eating so I don't choke. No cure is so frightening because this disease has robbed me of my life. I'm only 44 and the thought of nursing home care is on the horizon. ALS and Ms are so very similar, except ALS robs you of your life a lot quicker. We all need help! I feel for this man.

@SILSAL67 4 месяца назад

These people are DYING!!! They should be offered the option to take risk for trying new drugs! Their success is going to SAVE other lives!!!

@judibarth7999 3 года назад

Praying for these amazingly beautiful human souls! 💜💚💜💚💜💚💜🙏🏼🙏🏼

@jacobstopper3804 3 года назад

I hope they find it

@stanleyhood9873 3 года назад

My mother had ALS. God bless the caregivers that are trying to help and find a cure.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@kenzpenz 2 года назад

I am 84 years old and it really pains me to see our country send billions to other countries to fight their losing wars, but so little to help people here in the USA. I personally went to Vietnam to fight in the war, and was wounded and medivaced both times.

@joyceknursecanada2460 2 года назад

Hello

@agustincorrea3244 5 месяцев назад

I was diagnosed with ALS too last week still need to do a brain MRI and an a. EMG. Start using stem cells patches now. Hope we see a cure soon.

@elainer8288 4 месяца назад

Look for Dr. Terry Wahls protocol and Dr. Hannah Yoseph's book on ALS. Sorry to ask, but... were you on statin drugs? Cvd shot?

@DMEseter 3 года назад

What a great woman that’s true love 💕

@lakemichigan6598 3 года назад

They each married exceptionally well.

@reginac5488 3 года назад

My Father, Sister, 2 Uncles, 2 cousins have all passed from ALS. It is beyond cruel. Our family has the 1% genetic type. My nephew, Godson, has had both Grandfathers pass from ALS. Please pray for him and his family.

@pinchebruha405 3 года назад

Has your family ever thought of not having children, essentially your gambling, maybe take the love and energy your family has and fight to stop this disease

@reginac5488 3 года назад

Pinchi, there is a genetic marker that is in my Father's line. I nor my Sister had children. My brothers found out too late (Dad died in 99 and my Sister passed from FTD/ALS in 2018). I have have been tested though my brothers would not comply with testing, feeling they would know that a bullet was marked for them and could hit at anytime...I understood.

@Outcastiid 3 года назад

@@pinchebruha405 That’s a disgusting thing to say.

@pinchebruha405 3 года назад

@@reginac5488 I’m am so sorry for your families luck of the draw. It is very responsible of you and your sister to not gamble with another persons life, children are a gift not ours really. May you find blessings in another endeavor where kind hearts like yours would help others. ALS is so very devastating to have let alone stand and watch your love ones succumb too it.

@pinchebruha405 3 года назад

@@Outcastiid you know nothing of watching others suffer, or you’re selfish.

@christinechong6240 3 года назад

I lost my dad to ALS in ‘96 and have never stopped praying for a cure for this disease.Sending lots of love to all sufferers and their caregivers and loved ones as well.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@joyceknursecanada2460 2 года назад

@liliana1lfr 3 года назад

I CARE about your cause.

@barbarahamerton9354 3 года назад

Please consider giving out trials to those in need of it....their bodies, their choice. Prayers for Brian and all others facing this horrible disease. It took the life of my step mom a few years ago.....so horrific watching the decline of this. Prayers for a cure!!

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala .

@flowersflowers5070 3 года назад

My heart goes out to those that get ALS & for family members that have their hearts broken. My best friend died of ALS 5 years ago. God I ask for healing for this man & for his family Amen.

@joyceknursecanada2460 2 года назад

@tammysharp2155 3 года назад

I lost my aunt to ALS when I was a teenager and now in my fifties when I see inspiring people like this I know her death wasent in vain and I cherish every breath a d memory I am blessed to have had with Aunt Janette! My prayer is that soon no one else will have just photos of memories but their loved ones in their arms🙏☺️💕

@perandersen8951 Год назад

@keysersoze5920 3 года назад

Bless you all! We MUST find a cure for this most cruel disease.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala

@canadasweetie 11 месяцев назад

Everyone who wants access to clinical trials should get it. It is unconscionable to deny anyone with ALS access to clinical trials.!!!! The fact that they allow others to have access to clinical trials, and not others is cruel

@Kneephry 3 года назад

Let patients take the medication and evaluate for themselves what risks to take! This is insane that you can't allow patients to choose for themselves whether to take a medical risk with a disease that is 100% fatal in the name of safety.

@shuffleaccount1985 3 года назад

F D A PLEASE GIVE US THE CHANCE TO HELP "YOU" HELP US !!!!! WE WILL GIVE YOU OUR LIVES TO HELP GET THIS DONE FASTER !!!! PLEASE !!!!!

@stephaner1234 3 года назад

I lost my sister to ALS in 2018. It is a vicious disease. Please join your local ALS chapter in your area and send emails to your senators. It does make a difference.

@sophiavega1777 2 года назад

I lost my beloved mother to ALS Dec.16, 2021 ...I miss her every day

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here.

@giyah6038 3 года назад

FDA, get a move on and do your job instead of continually adding to your red tape. Waiting to act isn’t saving lives.

@joelmason4513 3 года назад

I have all the symptoms. I get my nerve test tomorrow and Monday. I'm scared. It's all happening to fast. My life has been nothing but a struggle and I beat the hardest battle of my life. Now this :( I wish I could heal us all. I love you all.

@onWardsWeGo 3 года назад

It'll all be okay bro! In the same exact boat, it's defintely hard, but you just gotta try to make the best out of everything.

@djapal 2 года назад

joel, so what where the results? do you have als? what did the results show? hope you are fine

@joelmason4513 2 года назад

@@djapal my legs are getting weaker and weaker. I've had a second nerve and muscle test. Both test so no motor neuron or ALS. Today I'm going to an orthopedic doctor and have an appointment with a neurologist in a month. I don't know what this is however I know other people who are going through the same thing. It's gotten worse I can hardly make it through work anymore. I just want a diagnosis no matter what it is at this point The stress and worry I am totally exhausted nobody seems to be able to figure out what's going on. The nerve and muscle test were normal however I continue to get worse in my condition and my lower extremities are getting weaker and weaker by the day.

@djapal 2 года назад

@@joelmason4513 thank you for your reply first of all. From what i've read, the 3 main factors for all these are ALS, MS or Guillain-Barré. did they eliminate all 3 syndromes? that's very frustrating, i can understand you. I'll have an EMG tomorrow at my hands. i read that Guillain-Barré starts mainly from the legs. maybe you need an MRI? Did you take an MRI?

@joelmason4513 2 года назад

@@djapal The EMG ruled out all that can be ruled out by doing an EMG test. I've had MRI ofy entire body. Head, back, and lower extremities. No abnormalities found. They did extensive blood work on my right side my right leg is starting to get smaller than my left leg. However the EMG showed there was better than normal function in that leg. My CK levels were normal they were not elevated as would be in someone that had a muscle wasting disease. This has been very exhausting and frustrating I'm to the point I don't care what the diagnosis just tell me what I have. After suffering like this now 7 months I can deal with it. I'm starting to have new symptoms. I'm starting to have intermittent Hot patches throughout my body. I've never experienced that before. I am extremely exhausted everyday and it is just getting worse little bit by a little bit each day. If I do find out what's going on I will return here and keep you updated. I hope you find out what's going on with you as well. Prayers for all of us that we have strength to carry on much love!

@hankmike3283 3 года назад

Is Shity how bad things happen to good people. Grateful for how beautiful their relationship is.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@US_ARMY_25_INF._DIV. 4 месяца назад

I respect him so much....turned away higher paying jobs to be a public servant....I had to watch this today due to OCD about my life and could have would have syndrome.....I saw something on ALS in the news today and decided I needed to stop crying about my great life and health and let go of my past mistakes and thinking about what I do not have...I looked up ALS and watched this once and will not go back to who I was....Thank you for who you are Brian...

@OttoTheGermanShepherd Год назад

Just read the news of Chris' cardiac event and brain injury as a result. He is unresponsive and not expected to survive. My prayers are with Chris, his wife, and his children. He seems like a really nice guy who has impacted many others.

@tmo7734 3 года назад

Courageous man. Courageous family. Best wishes.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala .

@maviewavie2326 Год назад

I am being treated for breast cancer. I can remember throughout the years how much research and progress was done to help people with it. I sure hope that ALS can get the kind of research that breast cancer has. My mother had multiple sclerosis, and I pray daily for progress in its treatment.

@roswellsmith518 3 года назад

My Uncle died from ALS, it doesn't get enough research funding, and other diseases like MS could benefit from funding as well.

@hecatethewitch3475 10 месяцев назад

My father had a friend who died of ALS. It seems so awful. Slowly losing functions of your body, until you can't even breathe. I can't imagine how hard it must be to sit and watch as you slowly fade away. My heart goes out to anyone dealing with ALS and their families. Stay strong!!

@lakemichigan6598 3 года назад

CBS Sunday Morning has been the medium's best television show since Charles Kuralt first debuted it all those years ago. It not only shows us how good TV can be but what it ought to be.

@saxyben81 3 года назад

This breaks my heart. my mother died from this horrible disease and two friends. I cry every time I see new people diagnosed because I know their fate. 😭😭😭 I pray for a cure for future cases.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here...

@anna-sq6st 2 месяца назад

@@lanaowe781 can you please write his yt chanel pleaseee😭😭🙏🙏

@dejiijishakin1524 3 года назад

In September I start my PhD which will use machine learning to predict ALS prognosis. This video is really inspiring and motivating! Hopefully I can help :)

@Outcastiid 3 года назад

That’s incredible. Thank you for your dedication. You could be the difference we need. :)

@lanaowe781 2 года назад

@@Outcastiid My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@bryansanchez8158 Год назад

Hey man I'm curious how is your machine learning project going

@anna-sq6st 2 месяца назад

@@bryansanchez8158 anything workeddd!!??? plss share

@explorewithus05 Год назад

My brother in law is dying from ALS right now. It is sad, he's only 40 years old.

@lindamoreno1028 9 дней назад

I'm so very sorry to hear this. Wishing God's blessings on all of you.

@misaelchavarin5931 3 года назад

This should have millions of views 😔

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@timbuk1126 2 года назад

God bless this man and his family.

@michelegardner3871 3 года назад

A childhood friend was recently diagnosed with ALS. I hope they approve of medications that could extend their lives, and they find a cure.

@EndTimeNazerne Год назад

How are they?

@bryanjackson405 3 года назад

My father pas from ALS back in 2011 and it was heartbreaking to watch. Came out of nowhere....Fine one day and the next in the hospital and Dr's telling us he has ALS and the next day they were doing a tracheotomy to help him breath! After 3 months and getting worse my dad told my mom he was done and this was not how he wanted to live the rest of his life. It wasnt easy excepting his decision but I understood it. As I wouldnt want to live the rest of my life that way either. I hope they do find a cure so other families dont have to go through what we did. Again, it is horrible & heartbreaking to watch a family member go through.

@managingmonasmoula9811 3 года назад

I cried as I watched this. 💛

@CesarPerez-nb7pd 3 года назад

My mother was hit with ALS at 85 yrs old and lasted approxinately one year after disgnosis. The worst was her voice went first, the hands, arms upper body. She had her legs until the end which was a blessing. However disease is terrible but not being able to communicate was the worse. She ended last 8 months on feeding tube via stomach. The times I played Lou Gehrig speech at Yankee stadium was what kept me going for her. Bless all of you that have had or are going through this process.

@argentinarodriguez4170 Год назад

I was diagnosed with ALS just today, July 14th, 2023 after being diagnosed with MS for which the result was negative, and the Lupus. I am still not 100% sure about ALS. The doctor prescribed Lithium Carbonate 150 mgs twice a day and Methyl cobalamin. Does anyone know anything about this treatment, please? TIA

@CesarPerez-nb7pd Год назад

@@argentinarodriguez4170 so sorry to hear this. All I can say is any treatment is experimental. If you can still eat and swallow then enjoy your meals. If you can still walk do what your budget permits for your "bucket list". To me all that go through ALS are heroes .

@alexandraluu3021 Год назад

The same thing is happening to me. I have two daughters, 6yo and 3 yo, who I can’t watch grow. I’m 39. I can’t walk, talk, and have great difficulty eating.

@drokolo11 Год назад

I can help you with my herbal medicine which can help you improve , in due time get cured. My medicine based on natural Roots nd herbs

@RobdeKlerk-qg6lc 8 месяцев назад

Did you have lhermitte sign?

@whiteclouds26 4 месяца назад

@drokolo11 yeah right

@elainer8288 4 месяца назад

Look for Dr. Terry Wahls protocol and Dr. Hannah Yoseph's book on ALS. Sorry to ask, but... were you on statin drugs? Cvd shot?

@Tantemify 6 месяцев назад

worst than cancer. at least there are cancer survivors

@romstar 3 года назад

My heart ❤️ is with these beautiful young people-just babies starting out in life😩as they deal with this cruel,insidious disease. I hope that Chris and his family are working with researchers to study 📖 what appears to be a genetic trait of ALS in his family. I think a cure is just a few years a way-there are a lot of smart,young people who are tirelessly looking to bring an end to this puzzling illness.😘😘🙏🙏🙏

@suzannereiter3600 Год назад

My brother died of ALS about 10 years ago. I can't think of a more horrendous disease; and can't believe a cure hasn't been found yet!!

@debbiecooper1677 3 года назад

my husband has this just the begimg stage

@EndTimeNazerne Год назад

How is he now?

@drcbeartooths 3 года назад

Bless you all and the powerful work and living you are doing. I'm inspired.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala .

@ediebaxter6194 3 года назад

Prayers for all the ALS patients 🙏. God bless. Y'all have God and angels watching over y'all.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala ..

@TM-yn4iu 3 года назад

Thank you for a courage along with action in addressing this terrible disease. More so the love/hope you all display. I know this response may sound cliche or apathetic, but it is truly the farthest from that. GB

@jiminykripes4937 3 года назад

I lost my grandmother, my mother, my aunt and my sister to this horrible disease. It's a death sentence for sure.

@Outcastiid 3 года назад

Praying you beat the fALS odds!

@kenzpenz 2 года назад

We have a family member with ALS and it doesn't look good for him. He is related only by marriage and for many years he worked hard and provided a great marriage to my wife's daughter. His wife is battling the disease with him. It has been over two years and I didn't even know what it was until recently. His wife feeds him through tubes, and we purchased a special vehicle for him to attend doctor visits, but that has become almost impossible. As a kid I remember watching Lou Gehrig on the news and listen to his speech.

@joyceknursecanada2460 2 года назад

There is a cure for it

@cbarbosa1244 2 года назад

I honestly admire this people. I admit that I wouldn’t have the strength to keep going with this disease and would have ended it all and plead for the Death with dignity

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here

@elijahkomenda5227 3 года назад

Bless this beautiful family

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here...

@rayrocher6887 2 года назад

Thanks for making feel better Human, death scares me as well, I want to cure ALS , God be with The patients, Heroes, Bryan a Hero

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here

@Sgt.Crayon_eater 2 месяца назад

My grandma got als when I was 11 and my grandpa died of liver cancer MAN god has it in for me

@tiffanysimons9742 3 года назад

My Dad was diagnosed with ALS in September and passed away in December from it. 💔

@Outcastiid 3 года назад

You’re in my thoughts. ALS is ruthless. Currently going through testing at 23 and not looking good. Live every day like your last!

@rickydalebradford3384 3 года назад

@@Outcastiid I am Darlene. My husband is going through testing now. He has been passed around from doctor to doctor. We have been waiting months at a time to be told we are sending you here. Then wait a month or linger for an appointment. I am getting so aggravated.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@lanaowe781 2 года назад

@@Outcastiid My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here

@mackenzieandreaganshow3071 3 года назад

Chris Snow is my hero, and he should be yours as well.

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala .

@sierrachoco5271 3 года назад

Gut wrenching for Brian and his family, I hope you make it Brian - best wishes to you and your family!

@lanaowe781 2 года назад

@Donnie-hf5du 2 месяца назад

Ray of hope?? Where or when? I have ALS too

@sherryduva5263 3 года назад

FDA please give these families the hope they deserve. You make the hope but deny anyone with ALS hope. Do study those medicines longer study with the ALS patients, who need these drugs NOW!! Do Not take away there HOPE!! Hope is these new drugs, please give them. The Drugs you want to study…..you will give hope back to the families, thank you❤️

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here..

@elvispresley1650 8 месяцев назад

It's said that people don't care about certain things until it happens to them.

@judithricca6915 3 года назад

RIGHT TO Try Federal Law was signed by President Trump in 2018. How come this is not mentioned in this segment????

@Outcastiid 3 года назад

Because it was prefaced by a couple who worked for the Obama Administration. Can’t have conflicting views.

@rickydalebradford3384 3 года назад

Because the mainstream media will not give Trump credit for anything.

@Emily-df4mn 2 года назад

I have actually talked to a close family members neurologists about this a few months ago, and while it may get the FDA out of the way, little has changed compared to the previous Expanded Access pathway law in place for decades. The ALS drug manufacturers have no incentive under the law except that it is not illegal to provide the drug to those asking. These are not over the counter drugs or drugs used off label, so the company can withhold however they see fit. Each company has their own compassionate care use clauses and don’t have to give people access or help them pay

@Emily-df4mn 2 года назад

@@rickydalebradford3384 this segment is about ALS patients. Maybe three or four people with ALS have gained access to these drugs from this law and they were only for publicity. I don’t know if someone close to you has ALS but if you did you’d know that the process to try to get compassionate care has not changed and we are still groveling with drug companies to gain access so their points still stand

@lanaowe781 2 года назад

@@rickydalebradford3384 My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala ..

@rayrocher6887 2 года назад

Time with his family, Bryan a Hero, a cure medicine

@lanaowe781 2 года назад

My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here

@nicolehunter5927 3 года назад

I lost my sister to ALS .

@DavidJohnson-xr2rz 2 месяца назад

ALSTDI forum used to be a good source of information how to self treat, with some success stories including my own. Now my major health problem is colon cancer so I haven't kept up with ALS issues.

@betzib8021 3 года назад

Has ANYONE ever figured out what causes it

@marylamb6063 3 года назад

Not yet.

@lanaowe781 2 года назад

@@marylamb6063 My dear if you have this problem of ALS do your research yourself about that man Dr Chala he is from west Africa and the good news is that he have the cure also have RU-vid channel here as #drchala ..