A recording from the Long Covid and PoTS Masterclass- A practical guide and new insights - 1st July 2022. The slides can be viewed on the PoTS UK website, please visit - www.potsuk.org/pots-for-medic...
I had my first call with Dr Gall this week. Finally I feel validated after years of medical gaslighting ❤thank you and I’m looking forward to trying treatments. I wish all the Dr in Northern Ireland would watch this…….. they need education desperately 😢
Thank you for this. When I presented to my GP with POTs, I was told to go vegan, be more confident and eat more healthy (even though they hadn’t asked about my diet anyway). Early intervention could have stopped me worsening. I want to send this to my surgery, so it doesn’t happen to someone else.
I had the pleasure of being a patient of Dr Nick Gall and I am pleased to say I have now been diagnosed with POTS today. my lowest is 39bpm to 160bpm it took six months to get a diagnosis after HEDS+MCAS with possibly, bachets & GI issues (inflammatory bowel) vomiting cycling, I get flare ups of stroke-like migraine can not walk or talk slatted face, the pain is unbearable lasts 3+days & can not find anyone that has this like me yet or what this is, I am incredibly grateful to Dr Gall for his professional knowledge and his humanistic approach was refreshing. I am forever grateful and full recommend him to anyone needing help & support. I am now a wheelchair user I have home cares and I am learning to adapt but answers are incredible; Dr Gall Thank you for listening and all your work it’s incredible. SL
Can you please tell me, ĥow long after all the tests did you have to wait for results? Its been 4 months since my daughters last test and we still havent heard anything, we are worried. Is this a normal wait? Shes also with Dr gall. Thank you
Can you please tell me, ĥow long after all the tests did you have to wait for results? Its been 4 months since my daughters last test and we still havent heard anything, we are worried. Is this a normal wait? Shes also with Dr gall. Thank you
Dear Light Yes, I waited a long time too after the HUTT to get the results. Children are seen quicker I think, it depends on your daughter's age. There is huge demand. I had a couple of private appointments too. But, I do understand your worry. On all the letters I had, it explained the long waits. I am still waiting for full autonomic testing after they cancelled last May............NHS overload! Sorry I cannot encourage you more. He is worth the wait, but if you cannot, you can go private with him. Shorter waiting times.
I would really love to see Dr. Gall. My physiotherapist at the hypermobility clinic advised I see him. I'm struggling financially at the moment as paying for physio. But I'm saving up to see him. My identical twin sister is diagnosed with POTS. And I think I've had it for years...GP diagnosed me but wants me to go for further assessment to get the other treatments I need. But Im too afraid to go to NHS due to previous traumatic events. X
His very first slide - the umbrella Disorders of the Autonomic Nervous System associated with orthostatic intolerance - shows how poorly understood what he has walked into is, and was, that the autonomic nervous system is profoundly intertwined with the immune system and that immune mediated causes for autonomic disturbance of all types (postural and all other areas of function) are huge. That the population with post-viral immune response dysregulation are far larger than estimated. This chart needs a skilful immune-mediated autonomic colourful update to include ME/CFS and PANS/PANDAS to name just two.
