Red Flags for Progressive Supranuclear Palsy (PSP) 

My husband was diagnosed 4 years ago but we think he’s had it for a couple of years before that. A horrific disease. I have watched him disappear from a bright intelligent physically able man to a shell. Loved his family so so much. He is still in there, just very occasionally there are signs of my husband as he was. The one thing that helps keep me going is he is unaware of what’s has happened . He falls a lot, no balance. His swallowing muscles are deteriorating so he can only eat soft foods. To all the fellow carers out there, take care of yourself. 😢

My brother in law died of this disease a year n a half ago. He was so sweet, always had a big grin n loved life. Then like snapping your finger, he was angry, he would throw items, he would down grade people, everyone that knew him ask, what is wrong with him? After about 5 yrs then other thins started to show up. Balance problems, falling, I saw a change in his face. By his mouth it looked real tight n not normal. This is a ugly, heartbreaking disease. It took his speech, his mobility, his eye sight, his coordination, but what rips your heart out in pain is, he sat there in muscle pain n the whole loss of his body really, but his brain was clear. He knew how he was deteriorating, felt and saw everything that was happening to him. Right to his death. His anger only stayed till he was falling, n getting worse. He was so crippled, had such loss of body movements, n yet he still showed his loving side. His death was horrid. Took him 4 days to die, he was litterly bone n skin, he was turning black n his heart was still beating. His body was decomposing n he was still alive. This disease really needs to be studied, n figured out. It is a horrid ugly disease.