Revealing My Identity| Renewal After Mental Illness Gave Me Strength To Continue The Journey

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Hi, my name is Olivia!
I was born with a rare genetic condition known as Ehlers Danlos Syndrome (EDS for short). Living a normal life with this condition while receiving proper treatment and support is just about as rare as the condition. EDS causes a multitude of secondary conditions and with each secondary condition comes complications. In return this causes many medical professionals to reject patients that live with EDS out of fear from the unknown. This causes strain on ones mental health.
My goal in life is to help those that struggle with mental health by becoming a motivational speaker as well as raise awareness for EDS. I came to know of my life purpose through a miraculous experience that brought me faith. The struggles of this world are big and try to tear me down but my God is much greater and beyond the dirt of any planet.
What is EDS?- www.ehlers-dan...
My experience with EDS- • My Rare 🧬Genetic Condi...
My secondary conditions- • P.O.T.S ❤️| THE TRIFEC... , • My Progressive Disease...
Link to Purchase Merch:
Channel T-shirts- www.bonfire.co...
E-Mail- olikeepingthefaith@gmail.com
Just want to donate? Click on this link-
www.gofundme.c...

Опубликовано:

9 окт 2024

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Комментарии : 6

@Jayleigh2796 4 года назад

I get what u mean about not wanting to see your gymnastics and athletics trophies anymore I used to be able to do athletics and track and got medals but I had to stop altogether by the age of 15 it’s so hard to have to give up things you love when you’re health declines so fast I wasn’t diagnosed with EDS til I was 18 kept getting brushed off and told it was growing pains it’s so tough I understand the frustration but I also share your mindset and use my experiences to try and help others I’m 24 and have hEDS what type do u have

@OliKeepingTheFaith 4 года назад

The feeling and growth from Eds and chronic illness in general come in stages and it’s important to allow those feelings for the growth to come. That’s something that was hard for me to realize. I have unspecified EDS. My geneticist doesn’t do genetic testing for his EDS patients because he doesn’t see a reason to since there isn’t a cure. While that is true, I don’t agree with his decision because it would give me closure just to know what type I have.

@Jayleigh2796 4 года назад

@@OliKeepingTheFaith it is so much easier to handle something if u know exactly what condition u are dealing with and what could happen in future I found with my EDS and other conditions I can cope better when I know what my diagnoses are like you said it’s closure we can talk on Instagram if u want maybe support each other when it feels a bit much it’s nice to have a friend that understands some of what u r going through let me know if u want to talk my Instagram is @jayleigh2796

@Jayleigh2796 4 года назад

@@OliKeepingTheFaith I’m not a dr but from what I know about EDS yours seems like it could be vascular EDS If that helped at all U need to pressure the geneticist to find out your type for sure

@Jayleigh2796 4 года назад

What type of EDS do. Have

@OliKeepingTheFaith 3 года назад

I have unspecified EDS because I haven't been tested for all other types