It was brought to my attention that there are some rare situations where someone will find out they have RA because of a lung hospitalization. I did not mean to minimize anybody's experience and for that I apologize. I did want to clarify that while RA can impact the organs, it tends to be gradual and chronic in nature. Lupus tends to attack suddenly and chronically. And the way the organs are attacked tend to be different between the two. Please let me know if you have any other questions or experiences :)
Thank you for posting the video. I was brought here because I was recently told by an urgent care doctor too seek my primary physician so they could run lab work to see if I have RA or Lupus. I had been going to keep seeing them for joint swelling in my wrist and ankles. I do recall being 17 the doctors informed my mom I would have arthritis in my spine by the time I was in my 30's but I don't know what kind. She's passed since so I can't ask her if it was RA. I do have an up coming appointment to meet with the doctor and get labs done. However I did assume it was RA because my symptoms fit that bill however upon watching your video I'm learning it can fit both. Now I'm looking at two giants. What I do wanna know is will one of the other affect the thyroid? I was diagnosed with Graves disease a long time ago and I wonder for any of those go hand in hand since that's an autoimmune disorder too? Thank you
@@01BadAzzGoddess That's a heavy thought to have to carry. Especially the thyroid. While I haven't heard of Lupus or RA attacking the thyroid specifically, I have seen a good portion of RA or Lupus fighters have a thyroid condition (whether it's autoimmune like yours or not). Even in pediatrics, which was where I worked in rheumatology. I hope that helps and hope you get answers soon :)
Your video was awesome! So informative, very well spoken. Thank you soo much for sharing. I thought I had a crock in my neck about a month and a half ago, but 3 weeks later I noticed that I was in more pain and the crock (or whatever it was) had not went away. I couldn’t really move my shoulder or turn my head too much to the right. I was sooo stiff and in extreme pain. I couldn’t turn over in bed, get out of bed, and I could not pick my 1 year old up. It was bad. I would almost cry when the car would go over speed bumps. The jiggly movement the speed bumps would cause hurt my neck so bad. My upper right side of my back, terrible. My ana came back positive and I am going to see a rheumatologist on the 24, please pray with me on this journey. God bless each and everyone❤
I was diagnosed with lupus nearly 22 years ago. I was 23 and uninsured. I’m 44 years old now and just finding out I have RA. I think the doctor that diagnosed me with lupus so many years ago relied solely on the ANA test for his diagnosis. My new doctor with Kaiser has run tons of tests to rule lupus out. My rheumatoid factor is 85 and the cyclic citrullinated peptide is 180. Plaquenil is all I’ve taken for my condition, 200 mg per day.
Thankyou for speaking normal human language that I can understand, a lot of videos i have no idea what they are talking about with their big words, lol
I found that to be an issue with lots of patients when I worked as a rheumatology nurse. We get tested on all the fancy terms that it's easy to forget to translate 🤣
Thank you for your positivity I have MS Lupus RA & Sjorgens & it gets kinda loopy trying to differentiate which one is actively causing me drama so videos like your helps to sort it out easier to seperate. Keep it up. “Anxiety in a man’s heart weighs it down, But a good word cheers it up “ Proverbs 12:25 your video can help cheer up someone who is having anxiety differentiating their autoimmune diseases with simple explanations
I just watched this this and I’m gonna have to disagree with you. I have RA which is aggressively attacking my lungs (rheumatoid lung) and im dying because of it , it is terminal and also my heart is being affected, RA DOES ATTACK THE ENTIRE BODY NOT JUST THE JOINTS.
Thank you for sharing your story and bringing this to my attention. I'm sorry you found out you had RA from a hospitalization. I did not mean to minimize your hospital experience. I have never seen nor heard of someone finding out they have RA from hospitalization from my years in rheumatology or in the hospital as a nurse; this appears to be a rarer situation compared to lupus. I see where one of things I said can be misleading and will clarify in a pinned comment. I do want to clarify that I did state that RA and lupus are systemic at 3:06 and explained that RA does not just attack the joints. I also stated at 5:20 that the way lupus attacks organs is different from how RA attacks the organs. I never stated that RA only attacks the joints.
My mom just passed away on October 29th 2023 because she had rheumatoid nodules in her lungs and if one busts your lung will collapse but she got 2 holes in her lung and she was filling up with air she had a type of pneumonia that is a kind that goes with RA. She only had RA for about 10 years but I have been battling it for 25 years and my right hand is deformed and so are the fingers on my left hand. I can only wear 2 different type of shoes because my feet are deformed plus my feet, ankles and calves swell up terribly. I have a nodule on my vocal cords, my elbows and the one on my right elbow will bust and come back. Rheumatoid arthritis sucks and can kill us. My maternal grandmother had it severe like I do and I can't take the biologics neither. The Lord carries me through each day and has blessed me with a wonderful caring family.
Thank you for having these videos still up. It’s helping me understand, while waiting to find out what it is I have. I’m seronegative. So kinda a toss up atm, but my rheumy thinks it’s ra. Hope you’re doing well. ❤
Love your speaking voice! Very concise information also! I go to a rheumatologist tomorrow. Just tons of crazy symptoms that my doctor says she can’t put together. Chest pain, fast breathing, flank pain, recently acquired Raynaud’s, stiff and painful joints, feel achy and stiff all over, etc.. etc.. Your video was very informative. I never really thought Lupus because I don’t have a butterfly rash. ER about a month ago and they found 3 lung nodules and pancreas inflammation on the CT. Horrible flank pain and was put in Bactrim Friday for Kidney infection. Thanks again!
Wow, you've been through a lot! A lot of rheumatology conditions look really similar early on, so it's really confusing, especially when it's new. I'm glad you found my video helpful and I hope you get some answers tomorrow. Regardless of what happens tomorrow, you got this!
My English is very broken but you’re very educated that was very easy for me to understand everything ! Thank you so much for your beautiful English 😘 sorry for my bad writing ☺️☺️
Thank you for the video I have the biggest authorities I have left high blood pressure Everything you Said I don't seem like I'm getting better cause I don't know what to eat or drink anymore
I'm glad the video was helpful. It can be confusing to figure out what to eat and drink when dealing with more than one health issue. Perhaps a nutritionist or healthcare provider would be able to help you with that. Either way, sending love and hugs your way 🌺
Idk what I have. I have a history of RA and Lupus in my family. At first I was getting inflamation in my shoulders neck and upper back and pain in my joints. Now it hurts a little when I breathe in. Also the left side of my face twitches from time to time and my cheeks get red too sometimes. I am sensitive to the sun as well. For example, If it's a hot sunny day and I have to unload groceries, It would take hours to recuperate after bringing in groceries from outside. I would be so tired, nauseated, cheeks get real red, my whole body aches. I'm on meloxicam. It helps alot with the inflamation. I take tylenol for pain. I've been tested for both 1 time a year ago and it was negative. My doctor said it's best to test when I'm having a flare up. The only time that happens is if I do alot physically for a day or when it gets hot outside.
That's a lot to have to deal with. Sometimes people have inflammatory type arthritis like RA and Lupus that is only visible via MRI, ultrasound, or CT scan. That is usually how people usually get diagnosed when the bloodwork is negative. Fibromyalgia is another differentiating condition too. I made a video on RA vs Fibro and one going over how I was able to figure out that I had RA and Fibro. Hope this helps!
Hi dear!! Thanks for sharing.. first I was diagnosed with RA... then in 2018 was diagnosed with lupus so I don't know .. I'm on prednisone and plaquenil this medication is loads with side effect. I can't deal with it.... for almost 2 years diagnosed with lupus I'm mostly in bed because I'm so weak, depress, anxiety and fear... I just want back my life😏
Wow, you really are going through a tough time. If you think it might help, I have a Facebook group that focuses on getting your life back. Even though it's called Taming RA & Fibro Pain with Dee, the things I share there can be useful for any autoimmune condition. Here's the link: facebook.com/groups/tamingrafibropain
I would talk to your dr and ask if maybe another medication could be added with the plaquenil... plaquenils job is to mainly help protect your organs alot of people do great on benlysta and say how much it helps them...I recently got approved to do the infusions... best of luck to you 🙏
I have RA based on diagnostic testing and clinical symptoms (seronegative because not showing in bloodwork). I have a positive ANA and positive Early Sjogrens Panel so diagnosed with Sjogrens as well. I have Hughes Syndrome too. I’ve been having a butterfly rash on my face that seems to coincide with increased pain and flares. My dsDNA is negative. Can these other AI disorders cause this rash or is the SLE just not showing in the bloodwork yet?
I was diagnosed with RA in 2012. Rheumatoid showed up in my blood and had severe joint swelling. My spine threw my neck and shoulders is where it hit hardest. lost 4 inches in height and had to have a pppa done so I wasn't choking myself out at night. They also did a Hyoid suspension, but they broke the bone. I am Allergic to steroids, (central serous retinopathy) and allergic to the methotrexate and biologics. They can't do repair surg, on my spine because the DR said my immune system would do more damage than any good, they could do. I am now going through the prosses of getting tested for lupus because of how my symptoms have grown. I get sores in the same spots that don't go away for weeks, the exhaustion, and everything else. I'm just tired of always feeling like someone hit me in the back shoulders with a sledge.
I have an aunt who has been diagnosed with Lupus and Raynaud's disease. I have noticed many different symptoms that I have been dealing with for a few years and noticed them getting worst, especially my joint pain. I finally decided it was time to get checked out and of course it was on a day with no flare. I got some blood work done and they said it came back fine. They think I have RA. I am getting referred to the specialist and ready to get everything figured out.
Can't imagine the amount of strength you have to deal with that for a few years and not even have a name to it. I'm glad they referred you despite the normal labwork. Sometimes that happens and the person still has something autoimmune. I hope you get a name to what is going on soon!
Hopefully some helpful info here but I’m an integrative FNP and have learned that underlying causes of autoimmunity tend to stem from CIRS or chronic inflammatory response syndrome, where the body can’t clear environmental toxins which triggers chronic immune responses that lead to immune confusion attack or self tissues. Because traditional Med focuses on what you have and not why you have it, I feel like this information is important to share with those faced with autoimmune diseases and why there’s so much overlap in autoimmunity!
My family doctor after blood work said; RA, Lupus, & connective tissue disease. My Rheumatologist said that the RA factor at 69, CRP at 9.9, and with my joints, quickly being destroyed… That she primarily wanted to focus on RA. That confused me because if there’s medication’s for both, I don’t understand not treating both. I couldn’t take methotrexate or Leflunomide. But I just started Enbrel two weeks ago, I am hoping it treats both. I’m so over all this😢.
Hi, thanks for your video... I'm male, 35 and four years ago I had a joint pain on my fourth finger and after about six months I experienced the same on the opposite finger.. when I met pharmacist he said it's probably HIV, I was scared and refused to go for test. After about three years the joint swelling spread to other fingers and my toes.. I later went for HIV test about six months ago and it's negative.. I discovered that most medical personells in my country do not have any clue about RA... I have been self medicating after reading a lot about RA.. I've been taking dexamethasone and recently methotrexate (7.5 mg weekly) which seems not to be working.. I never knew anything about lupus and now I'm scared if my problem is lupus.. the symptoms I have is joint pain on my fingers, toes and recently one of my knees and the general fatigue.. sometimes four to five lymph nodes appear on my face and later disappear... Is there a way you can help? .. I've never hard chest pain nor butterfly rashes
That's a scary situation to have to deal with. You're showing a lot of determination to treat and learn about the possible cause of your pain and fatigue. I'm not familiar with your country's protocols, but what helped me get my diagnosis was the following: -I explained my symptoms to my provider, just like you did in your comment. - I told my provider that I'm concerned for rheumatoid arthritis or lupus and would like to rule those conditions out. -I expected the provider to order ANA Arthritis panel and Rheumatoid Factor bloodwork. If my provider did not mention it, I would have asked if we could check it Another option to blend with what you are doing already is working with a health coach who specializes in autoimmune conditions to come up with a personalized plan to utilize food and healthier lifestyle changes to treat symptoms while you are figuring things out with the doctor. Hope this helps!
I have been enjoying your presentations. I only ever use any one persons story as part of the information that i then research further, but most of what you talk about coincides with my information. I guess that i am one of the lucky ducks though who does not need to decide as i have recently been diagnosed with RA to go alongside my lupus and fibromyalgia (adding in my asthma i am nearly up to the magic 5)
@@RestfulRheum thanks. Although i was genuinely not complaining about my lot. Each of my things has a way to deal and are not fatal, pain can only happen if you are alive. I survived cancer treatment (for hodgkins) in my early 20s and since then every new issue happens only because that illness in my 20s was treatable. I thank my stars daily that medical knowledge grows every day, and channels like yours give many people a place to start the conversations with their medical professionals.
Hi Dee. I came across your video when I searched for RA and Lupus symptoms. I have Crohn's Disease, (another autoimmune, inflammatory disease), and I feel as if my Crohn's has come back, after being in remission for a few years. However, I've noticed some other odd symptoms this time around, that are new to me. Based on your video, I'm leaning more towards RA, rather than Lupus. However, I'm not an MD, and self diagnosis is something I try to avoid. I have an appointment with my gastroenterologist soon, but I'd like to know, in your opinion, what questions should I ask? What should I do to be better prepared for my appointment? Any advice would be greatly appreciated!
Hey there! While I'm not a doctor either, I did make a few videos with tips to prepare for and get the most out of your first rheumatology appointment. I know you said you will see a gastroenterologist, but the tips in those videos will apply to that appointment too because you are seeing a specialist to look at possible autoimmune conditions. They are all gathered in my "New to Rheumatology" playlist on my channel. I hope that helps 🙂
I was diagnosed with RA and Fibromyalgia. I have chest pains often and it called pleurisy. I have not gotten better and it seems to be progressing. I am on my 9th biologic Remicade infusions. I wouldn’t wish it on my worse enemy.
Hi, do you ever see thronbocytopenia in any case with joint pain? I’m waiting to see a rheumatologist because I have joint paint that has been progressing quite rapidly the last year. First doctor I saw when it was still just in feet, ankles and knees diagnosed me with HSD because I have no swelling and bloodwork was fine but with how it’s been progressing to hands, hips and elbows and the warm feeling I get in the joint just don’t feel as it can come from being hyper mobile. At 19 yo I was diagnosed with ITP and it has always felt like it’s connected to something else. i remember they checked for lupus when I was at the hospital back then, but they found no obvious reason. Also wondering if you have a video about swelling in RA, does it always happen? Thank you for your videos, very informative and I enjoy learning from you ✨ Best wishes
Me too i have both i have chronic aggresive ra all over body knees angle feets shoulder wrist elbow jaw throat every jpint in body i cant evan walk since sept also have fibromogio somthing all body pain my body whole always in pain everywhere
Do ypu think diet plays a role in treating this? There are so many videos talking about diet. I also have celiac so I have a pretty healthy diet by default!
Hi Dee, my name is Donna Wynn. I'm writing to you because i'm at my wits in. I'm going to try to attach a video and I would like your feed back. I was told that I don't have RA and I'm going for a movement test from a movement neuro.
Hi Donna! It sounds like you're going through a lot. I am more than happy to connect with you to see how I can help. If you are still interested, email me at dee@dariaippolito.com. You can attach the video to the email and we can set up a time to connect via Zoom or phone if that helps :)
I am from Chicago il and I have been trying to figure out what it is in my body and I am 44 years old and I also have missing teeth and a very poor diet and I sure need help help help with getting a good doctor before it's to late I've been loppy few days
My Doctor has me confused about telling me I have Lupus and he doesn't believe in Fibromyalgia, but I have terrible throbbing migraines and I mean debilitating, dizziness, so I can't drive now, n neuropathy in my feet. Otherwise I'm okay, but this Doctor has done 4 blood test n says I have Lupus. I don't have any other noticeable problems ? But I'm on hydroqlocloqine which has given me some of my strength back. 💪 Actually quite a bit. N I'm allergic to so many medications I'm on oxycodone low strength for pain. And a antimflamatory drug that doesn't affect the liver as ibuprofen. The hydroqlocloqine is like a miracle for me. Before that I couldn't up out of bed. But my eyes are watery due to this. I see a Rheumatologist in July. I'm hoping for hydrocodone bc the pain in my back n headaches are out of control. Does this sound like Lupus.? The Vertigo is common I heard by doing 😳 a survey. I had 70 replies stating they had some kind of vertigo due to their Lupus. I'm 65 years old. Ty Orlea n what do you think, fibromyalgia or Lupus ?
I was diagnosed with RA and fibromyalgia. However the rheumatologist did more bloodwork and said it was false positive for lupus?? How can you get a false positive?
Is it really true that RA cant attack organs? I thought it was rare but that it could.🤔 Ive been having complications like a gastric bleed and inflammationin my stomachvisible on a scope (im now on stomachmeds to reduce), kidney issues etc. I do also get a facial flush that resembles a butterfly rash. In 2019 i was negative for lupus but getting retested on Tuesday. I was diagnosed with sero positive RA in 2019. Sounds like it may be lupus but since it wasnt before i also thought it could be just really bad uncontrolled RA. But now im wondering 😮
It can; perhaps I didn't explain the difference well in the video. My understanding is that lupus's MO includes attacking organs, similar to how RA's MO is to attack the joints. So you can commonly see that at any stage with lupus. RA affecting the organs is more of a rare late-stage complication thing but it's not it's MO like attacking the joints are. Thanks for asking!
I am 31 and was diagnosed with RA in March of 2020 with a factor of 295+ and am not getting better. I now take intusions every other month and am still not getting better. I am wondering if I may have Lupus.
I'm sorry your condition is giving you such a hard time. I went through a similar process, and we found out I had fibromyalgia (which infusions don't work on) on top of the RA. Definitely doesn't hurt to discuss your concerns with your doctor. Unfortunately, many of us end up with an additional medical condition that is hard to differentiate from RA initially. Sending prayers your way.
For years my rheumatologist said my rf was a false positive. It was in the 40-60 range with ccp always being normal. My fingers and toes were aching then it went to shoulders neck. My body also started twitching alot and i got sharp random pains which my doc said was fibromyalgia which i never believed. Today my muscles twitch ache burn and cramp and now im told i have small fiber polyneuropathy. My skin biopsy shows reduced small nerve fiber density and tbey found a TS HDS ANTIBODY IN MY BLOOD associated with inflammatory neuropathy. I wonder if this is the result of undiagnosed RA that has now caused nerve damage.
It's possible. It may also be caused by a dysautonomia condition like fibromyalgia. Most people walk around with some form of dysautonomia, which is where the automatic functions of the brain are stuck in survival mode. Impacts heart rate, breathing, thoughts, nerves, immune system etc. I'm reversing layers of this myself with a holistic chiropractor who incorporates the latest neuroscience in his work. Hope this was helpful 🌺
All my doctors in the past have told me the same thing gout and arthritis and now out of the blue I have lupus I’ve always had rosy checks (a red face) it’s all just very confusing. First time hearing about this . Thank you for the quick response.
I found out I had RA because I was dying and had to be hospitalized I was later diagnosed in the hospital with Ra attacking my lungs and heart that was a year ago now I’m having to get a lung transplant becuzz RA aggressively is attacking my lungs to The point of death I think you should do more research before you speak on it
Thank you for sharing your story and bringing this to my attention. I'm sorry you found out you had RA from a hospitalization. I did not mean to minimize your hospital experience. I have never seen nor heard of someone finding out they have RA from hospitalization from my years in rheumatology or in the hospital as a nurse; this appears to be a rarer situation compared to lupus. I see where one of things I said can be misleading and will clarify in a pinned comment. I do want to clarify that I did state that RA and lupus are systemic at 3:06 and explained that RA does not just attack the joints. I also stated at 5:20 that the way lupus attacks organs is different from how RA attacks the organs. I never stated that RA only attacks the joints.
I believe that she knows enough to speak up on it. There are situations that beg to differ for example yours. However I think it's very unfair to say she should not speak on this topic when she even stated that she has RA. Take what you need from the video and please stop trying to silence someone else because it didn't fit for just you. There's others out here who are suffering and her videos are helping. Let's not make this about you and the least you can do is be grateful that someone is trying to bring awareness to these illnesses. RA attacked your lungs. Maybe you should create a special video about that since you know so much regarding it. I'm sure there's plenty of people in your situation who would love to hear from you. And this is said with all due respect. Respect this woman's work cause she helping me shit!
@@RestfulRheum you can't minimalism someone's experience if you never knew it. Everybody is DIFFERENT as you stated a few times. Please keep up the good work cause it's helping me right now. I'm facing either or and need all the info I can get. I had a friend die from Lupus when we were teens so right now my mind is going. Keep up the good work.
Also medicine is ALWAYS in practice the shit is never concrete. Medical understanding will ALWAYS change when it comes to AUTO IMMUNE hell nobody immune system acts the same.
It can go either way. I have seen some people with medically induced Lupus have it long-term because the medication was the trigger. I've seen some where the Lupus goes away after stopping the med that caused it. Everyone's body is different. Your rheumatologist would have more insight on that.
@@RestfulRheum thank you🙏🏻my previous doctor couldn't pin point which med it was since I was on 24 and at least 6 are known to cause medically induced Lupus and 1 (gabapentin) according to her was still "on the fence" on whether it can cause it. Thank you again for the quick response. Next appt on Fri morning 🙏🏻💜
My hands aren’t able to make fists and my right hand won’t open all the way. I’m only 23 and still haven’t been diagnosed these doctors suck. I’m so depressed and scared I can’t gain weight I’m only 95 pounds before that I was 88.8 im 5’7 and can’t get to 100 pounds or more
