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Rob Burrow's journey with MND 

Leeds Hospitals Charity
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We sat down with Rob and Lindsey Burrow to talk about Rob's journey with Motor Neurone Disease and what the new centre means to them.
We also spoke to Dr Agam Jung, Consultant Neurologist at Leeds Teaching Hospitals about MND and the difference Rob has made by sharing his experience.
Imagine what difference this centre will make thanks to your donations www.leedshospitalscharity.org...

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18 ноя 2021

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Комментарии : 44   
@duncancoghlan7400
@duncancoghlan7400 Год назад
Rob is a complete legend in the game and a amazing inspiration. His wife is showing complete devotion to her family and us a fantastic beacon of light
@ifhellfreezesover
@ifhellfreezesover 2 года назад
The man is an absolute legend. I've seen him play numerous times. What an inspiration.
@richardmorgan607
@richardmorgan607 Год назад
What an amazing wife a true keeper.
@stewartboyd3128
@stewartboyd3128 2 года назад
Lost my dad last year to this awful disease. Stripped him to the bone. 94kgs to 38 when he died. If i was diagnosed id immediately move to a country where I could easily overdose or dignitas. Watching him slowly disappear was terrible for all those involved. Dad never talked about it much in the first year and then he lost his speech, he was a brave man. It has scared our family and I personally will never recover from this disease. A broken soul stares from a pair of watering eyes is my lasting vision of pops.
@geoffpoole483
@geoffpoole483 2 года назад
I don't follow rugby league so when I saw a clip of Rob Burrow I thought his condition was the result of a very serious injury; I've only just found out it's due to MND. What's so sad about this is the degenerative nature of the disease. Your own feelings having witnessed what your father went through are understandable and justified. All the best.
@rinkuji42042
@rinkuji42042 2 года назад
This is the condition i am going through right now due to my mom's mnd My life has become hell
@cricketindia52
@cricketindia52 Год назад
@@rinkuji42042 same condition I'm facing my dad is suffering from this
@dave3295
@dave3295 Год назад
@@rinkuji42042 I’m very sorry yourself and your family are going through this. I wish you all the best and hope you keep strong through it, and I am sorry you are going through such a difficult time.
@dave3295
@dave3295 Год назад
@@cricketindia52 you have my deepest sympathies and I hope yourself and your family keep strong for your dad through this. I wish all of you the best, and I am sorry you are going through such a difficult time.
@Maka453
@Maka453 2 года назад
Lost my Dad 4 years ago with this disease, I don’t want to tell how he was suffering during those years, only things i wish to find the cure ASAP🙏
@loadsunited
@loadsunited 2 года назад
An old friend of mine passed away 8/11/21 from MND at Pilgrims Hospice Margate. With their care he managed to get home for a few days to see his family. This Leeds Centre will be a good safe haven for family and patient .
@Robby334
@Robby334 Год назад
What an amazing Man, his wife is so supportive alone with this children and his parents. The medical team are doing a great care with him I admire them all
@johnearle1394
@johnearle1394 Год назад
Inspiring man who was n is a fantastic role model with a beautiful devoted wife n kids god bless you all
@jeanettehinds4253
@jeanettehinds4253 Год назад
Nothing but respect for this guy.
@curiousmind616
@curiousmind616 2 года назад
It makes my guts turn to see what's happened to the guy from being so fit ,its truly frightening, I have a connective tissue desease so never know what may come , MND is my worst fear as I have noone to care for me , such a brave man and family to deal with this the way they have ,especially Rob who could of just shut himself away ,👏 36 billion was spent on a track and trace app yet the government fund no research for MHD as they don't for many other illnesses and things need to change,having the attitude to fund and support the limited number of people through the illness until they die rather than fund a cure is not a good attitude ,and people like Rob are mostly helped by charities and fund raising ,
@JamesOBrien-hm4ge
@JamesOBrien-hm4ge Год назад
Ive run marathons and thank god for that. The love surrounding rob and his family is so touching so great to see the leeds marathon named after him. I breifly met kevin sinfield in Jersey last year what a great guy, his love for his mate moves me to tears. God bless yiu both.
@davebob9881
@davebob9881 Год назад
Rob burrows absolute hero amazing on the pitch and amazing off you keep on fighting this mate your an inspiration to everyone absolutely incredible man
@paulgannon3261
@paulgannon3261 Год назад
I grew up loving Wigan. When super league started I could not get over Rob he could turn on a sixpence and what a player. I love you Rob I really wish you all the best and although you may not benefit you are doing so much for those who come after you. You truly are a LEGEND
@jaredford8440
@jaredford8440 5 месяцев назад
Behind every great man is an amazing woman 💯❤️🇳🇿
@richardscantlebury488
@richardscantlebury488 2 года назад
What an inspiring fella Rob is.just finished his book.incredible
@alanhall8340
@alanhall8340 Год назад
What an inspiring man , and Mr Winfield , good luck to all xxx
@garrygreatbatch117
@garrygreatbatch117 Год назад
I really feel for Rob nice bloke good family behind him his wife is a rock and his kids this should not happen to good people❤️❤️
@jayal6698
@jayal6698 2 года назад
Imagine if we spent the amount of money on mnd that we do on covid
@billybilly1284
@billybilly1284 2 года назад
It would not make one difference. MND is worse than COVID stop being dramatic
@jamesallen8917
@jamesallen8917 2 года назад
@@billybilly1284 so if we spent hundreds of billions on mnd instead of a cold like covid, it wouldn't make a difference ? Ok mate
@vicinter954
@vicinter954 Год назад
What a ridiculous comment
@5ean.
@5ean. Год назад
Or even cancer !!!!
@miguelkeeno3403
@miguelkeeno3403 Год назад
@@Lizzybirds40what’s so selfish about that it’s damn true a hell of a lot more money could be pumped in to finding a cure or even something to slow it down they seem to find it billions for covid but diseases like this are made to wait for donations from charity’s it not priority in there eyes
@jaredford8440
@jaredford8440 5 месяцев назад
My favourite hald back
@harleywalters7360
@harleywalters7360 26 дней назад
Rip
@watchgoose
@watchgoose Год назад
Lost my mother to it.
@jaredford8440
@jaredford8440 5 месяцев назад
Thanks Rob 🌺❤️🇳🇿7😍
@jamiebehan5490
@jamiebehan5490 7 месяцев назад
God bless him cruel life 😢
@marievann7193
@marievann7193 Год назад
My mum had this disease.
@gs3430
@gs3430 Год назад
💙
@wendyjones1422
@wendyjones1422 Год назад
How sad to have this awful disease he so young too
@jaredford8440
@jaredford8440 5 месяцев назад
Or Langer 🤷🏼‍♂️
@stefanlehmann7699
@stefanlehmann7699 Год назад
I am happy to share with you all that I am completely free from ALS
@orbitingdecay6797
@orbitingdecay6797 20 дней назад
😅😅😅Rubbish.
@mdb1239
@mdb1239 Год назад
I read some patients can live 20 years with ALS? Why do doctors tell people they have 18 months to live? HuH?
@Tracy-rf7ri
@Tracy-rf7ri 7 месяцев назад
I think they say 3-5 yrs for als. Some can live longer or die quicker. Probably average is the 2-5 yrs
@dionfox6090
@dionfox6090 Год назад
Genetic illnesses are not recognised by the NHS. How do I know I’ve got one I’ve got Ehlers-Danlos I’ve met Rob indirectly I was in a shop where he was his wife pushed him by in a wheelchair which I use a wheelchair as well. I didn’t know what to say. I’d love to be sat there and spoke to him, but Rob needs to actually scream out and say there’s more genetic illnesses were made looking at I have a Ellens Danlos syndromes a genetic disorder, which is now taking my mobility. I am in desperate need for a new wheelchair. The NHS have told me to go and find it myself I’m on benefits I’ve been told I can never go back to work. I would love to go back to work. I spent 10 years in a uniform for the crown and the people in the land and this is our offices gets rewarded after 10 years service phone onto the rubber sheep. . To Rob’s wife, you are amazing woman my partner kicked me out after seven days. After being told, I have cancer the cancer treatment treatment as accelerated me EDs I have no one now no partner no friends no nothing I don’t even physically have a home because the local council keep on abusing me. Bolsover district Council absolute racists I have taking him to the Ombudsman, I was successful they were in my favour, but still the abusive Cancel carries on abusing at the beginning of the month. They sent contractors in who stole approximately £5000 worth of keys because things about to be changed and items about to be re-purchased. I am sick and tired of this. I do if I the police, the police tell me they work for the council Bolsover district which is actually illegal because the council are not government and the police are not supposed to work for the government they’re supposed to work for three things the land the people in the crown don’t get me wrong the crown or not the Royals there is a job title only my friend, I know this may seem hard but we need to take back our rights as disabled people. I do not class myself as disabled. I class myself as enabled because the so-called normal people in this world are more mental and have more illnesses. then the people are classed, disabled or enabled like myself. Rob keep your chin up and your beautiful wife, give her a cuddle because you will deserves it. Thank you for your time peaceloving to everybody.
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