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Seeking a Diagnosis of Ehlers-Danlos Syndrome in Ireland 

Kitty Colbert #EDS4IRE #HSD4IRE
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If you live in Ireland and think you may have Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder, then this video is for you!
The links mentioned in this video...
✦Dr. Brian Mulcahy: www.irelandloo....
✦Dr. Nicole Ambrose:
www.drnicolaamb...
✦The Hypermobility Unit in London:
www.thelondonh......
[Disclaimer: As always -I am not a medical professional and speak only from a patient perspective. As I note in all of my videos, only a trained rheumatologist can diagnose EDS and HSD, and give you advice on what tests and treatments are best suited to your unique case. My advice is simply on what treatments exist out there, and where to access care and support. For further information see www.eds4ire.ie]

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13 сен 2024

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Комментарии : 2   
@oh2887
@oh2887 3 года назад
Thank you so much .
@dumbmusorowan
@dumbmusorowan Год назад
i don't know if this will be of any use to anyone, especially since i didn't get any sort of diagnosis, but i saw dr. john ryan in cuh and he seemed to be aware of classical eds. i wasn't up front with him in saying i think i had heds or hsd because i was so scared of being labelled as a hypochondriac, but i told him my symptoms and he did a quick check for stretchy skin and scars, and a not very thorough beighton score. i wish i could give some better information but i was really stressed and inarticulate in my appointment so i don't know if my experience would be the norm. i just thought i'd comment anyways since it seems like he knows at least enough about eds to diagnose the classical type. he sees public and private patients, both based out of cuh and an initial private appointment costs €250. edit: cuh means cork university hospital btw
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