What a great new version of the students with epilepsy video! My only concern is the long length! Many of my program requests are for short programs! I have a doctor and hospital Relations person need to see this new version to understand why remaining silent is not so easy. This video and the parents and children explaining all the reasons could really help them understand! Thanks so much!
In case you want to meet a historic person, I am Ian Anttila; I was the worst case of epilepsy in North America due to a staph septicaemia back in 1980 where I got back home from sick kids on Dec 12! 1980; the same day that Trudeau passed bill 82. As I was AVERAGING 20-30 tonic clonics and 200-300 complex partials a week I was not allowed to go back to school at first, but then my mother (an RN) and my cousin who was Mayor took my side and went to the federal court of Canada with a copy of bill 82 as it reads “every human has the right to an education” and won the battle. My mother drove me to school and attended it for 3 years but then it sparked special needs education.
I would love it if they could cut this video into the separate sections for the different types of seizures. I'm an English teacher, and this was helpful to me, though I already know how to deal with the students and the medical part as I am epileptic myself. Now, I have a younger sister, who is also epileptic, though she only suffers absence seizures, and she's still in elementary. I would very much so like to be able to show the absence section to her teachers without the need for the rest.
When I was diagnosed at the age of 10 in the summer time, I became an advocate right away. That year in 4th grade I introduced my self as Teresa and I have Epilepsy. And I went up to the chalkboard and drew a brain like my dr. Showed me. That way nobody had a problem with it. My teacher happen to know all about Epilepsy and that helped a lot. My son has it a long with Autism and adhd. I am forever an advocate. Now I speak at different places like the capital of our state to fight for epilepsy knowledge. Money for our schools. Wherever I can help. I am no different than any body else, and Atleast I have proof that I have a brain! LoL L
My student is ostracized daily! She has a seizure disorder and intellectual disability and she’s in class with regular learning students. They shun her all the time and it pees me off!!!
Ketogenic diet and valerian (herb) should help against high level of the excitotoxic glutamate in the brain and avoid all processed food with the MSG (monosodium glutamata). The storm of APs in the brain should start with blinking in your vision or tinnitus . The aura is caused by the oscilating action potencials thet can increse into the all brain structure = attack of the seizure . This energy-intensive event will stop after deplete of Adenosine triphosphate (ATP) that is the energy source for ion pump (Na+/K+-ATPase) that charges the neuron to its original value of about -70mV. Without this pump, the cell could break with osmotic pressure (headache - cytotoxic edema), and in the charging phase it loses sensitivity to the nerve impulse. The valerian have link to the GABA A receptor with Cl- (chloride) ion channel that polarized the neuron up to the - 75mV by Cl- ions (from >70mV) and decreses its sensitivity.
I what is so frustrating is when teachers don’t know. I cannot tell you how many times I was scolded for not paying attention. Tonic clonics are embarrassing. Complex partial are always fun especially when the teacher is upset thinking you’re just high or something cause you’re walking into the wall repeatedly. , simple partials are annoying cause you’re all disoriented randomly til it stops.
this is a great video but they should also add PNES I know PNES is not a EP type but it is vary simler and has all the same things as EP but not the Electric en balance
One time recently, I was sitting up at school, I wasnt sure what was going on, but when I snapped out of it, I was tilted noticibly, was that something I should know about? Was it a seizure?
I live with partial complex seizures, and Absence seizures. My family does not know anything about this. I think if they knew they would reject me. I live in silence.
I’ve gotten multiple seizures; pretty much all the types before, but mainly absence and tonic-Clonic. Living in silence about something as serious as seizures is *not* a good idea, trust me. People will learn one way or another. And I can assure you with all my heart that your family won’t reject you out of something so out of your control. Why should they?
I have abscence seizures and tonic clonic seizures i shake violently in my tonic clonic seizures and i also have sudep thats sudden unexpected death in epilepsy means i could die randomly in my sleep or die after a seizure and honestly its scaring me like crazy knowing i could drop dead at any second could be today could be tomorrow who knows. :/
Me watching this scares shit cuz epilepsy runs in my family......................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................................fun
I'm a school nurse and still don't understand why doctors may prescribe a rescue med that requires you to put it in their mouth... yet you're not supposed to put anything - including your fingers! - in a person's mouth having a seizure. Makes NO sense! Not to mention only an RN can administer a seizure rescue med... yet in my state, school nurses aren't mandated, so a school doesn't even need one.
Sometimes I get very depressed and very lonely I do not feel sorry for myself inotherwards ok I have epilepsy so what I just wish I had people to talk with. just to get my mind feeling better or just to live in a senior home and making friends for some reason I would feel better
