I have sIGA (0.4), I have had chronic minor/moderate GI issues for as long as I remember, about a year ago I developed joint issues, I am still fighting to get diagnosed with anything, I suspect some form of UCTD which hopefully doesn't progress to a full CTD, many doctors seem to know little about the link with auto-immune disease with immunodefficiency (in the UK). I would just be wary from my experience, of saying 90+% of people don't have ANY symptoms, I suspect there are a fair number who have chronic 'low level' symptons that MD's do not diagnose as being a reconginsed medical condition, in effect people like myself stuck in no man's land without a diagnosis but experiencing some issues that may be linked to immune system misfunction.
Interesting. I went to the gastroenterologist for chronic GI issues and that's where we discovered my IgA levels were low. I'm waiting on my appointment with immunology to investigate my IgA levels further. I'm glad I'm not the only one who's dealing with this!
In exactly the same position as you unfortunately , maybe we could have a chat as I'm banging my head against a brick wall trying to get answers from Drs in the UK who appear to have no clue about this condition
How do you contact this guy!? I have IGA in the 30s and IG three below the lower limit and efficient and IT for division… And I have serious histamine hypersensitivity and Cmc… His hell and his and has been hell for a long time…
I have been diagnosed with seronegative celiac disease with a total Marsh atrophy. I always had my iga around 1,4 but when i got covid it increased by 4.. why?
Hi Rosa, We're glad you reached out! IDF offers a wide variety of resources, including information on PI, different types of treatment, programs that offer education and support and ways to find a physician in your area who is experienced with PI. For more information on the various programs IDF offers, visit here: primaryimmune.org/living-pi/programs We also offer ASK IDF, our way for our community to ask the questions they have about living with PI and get a response from someone who is best equipped to answer it, this also includes our Find a Physician service. To do so, visit www.primaryimmune.org/my-account and create an account. The account also allows you to easily access our publications, register for events, and more. If you have any other questions, please let us know. We hope this helps! Thanks!
