I can't tell you how greatful I am to this woman! Just bringing eyes to the stigma around people with disabilities and sickness. My mom has MS and I have lupus and we have both at times dealt with embarrassing symptoms and ailments caused by our disease. Also dealing with the shame society has made us feel for not always being super hero. Women especially get measured on appearenceand when you suffer from something like this your soul cycle class isn't necessarily your top priority. So again I'm forever grateful this woman is sharing her story.
@@annastasia248Exactly and they want some sort of Irrefutable proof that you feel the way you do. Unfortunately extreme dibilitating fatigue can't always be proven by a simple blood test or some scan. Even though I look like a normal 17 year old when I first got sick or today at 34 that doesn't mean I've been faking a serious disease since I was a teen. Just because you saw me for 1 or so hours one day doesn't mean I wasn't in the bed barely able to walk to the bathroom on the days you didn't see me. Whew sorry about my little soapbox rant. Sometimes you just got to let it out I guess! 😆✌️
Suvannah Guthrie was such a great interviewer. Full of compassion and total interest in Selma's life journey. Selma was so captivating and inspirational.
I have to pause every couple of minutes to just absorb the truth and emotion. I want to hug her and tell her how proud I am of her as a woman and a human and how much light she is bringing into this world.
You know what? We need more women that live with a chronic illness to share how they parent their kids because it is so hard and the mom guilt is unbearable sometimes. Im always waiting for Selma to keep sharing her journey, because there are so many of us going through this. I have mast cell activation syndrome and autoimmune urticaria. Selma dear thank you 🙏🏻 so much.
I agree! I keep thinking us chronic disease sufferers need a you tuber showing how they take care of their kids and house etc... but then I remember um.... yeah there isnt any. Because we are all literally just surviving and doing best we can and don't have any energy for anything else.
Superb interview - and what a fighter! Amazing to see she is doing so much better now. Deeply appreciate her commitment to telling her story and doing good by shining a light on the hellscape that can be for those of us with chronic illness.
I'm crying, I've had these symptoms for over 2 years bean to every specialist and get no answers 😭 I feel as your talking and the words are exactly how I'm Feeling
Hi Roberta- hang in there & keep pushing for answers.. tell the Drs, “if this was your daughter or wife telling you something is not right here, what direction would you give? “ I was diagnosed in March & am on Kesimpta. Boy, did I get after it! I even had a brain biopsy in another state to get a diagnosis! Best to you from Colo💛
This is so so inspiring to see! I have severe SLE Lupus with multiple organ involvements right now and I needed to hear this more than I even realized. She gives me hope to keep fighting 💜
I always thought Salma was beautiful,I always thought she's always been a great actress. Now I think she's one of the strongest people there is. 😊❤️🙏✝️✌️😎💕
Thank you Selma Blair...for your inspiration in teaching others to overcome & be kind to ourselves...loved the interview... I always enjoy watching the movie Legally Blonde...
Wow! Just wow! Every interview I see with her just makes me feel like she understands the chaos that is my own life. Not all the same challenges or lessons but I relate so much to her point of view at this point on her journey. Sending all love and positive vibes to Selma and us all. ❤️🌺❤️
Great interview. Her memoir has crazy holds in my two local county libraries so I bought it and will donate when done. Too many of us need the validation that we are not alone in our health battles and life goals that take more energy than we predictably have.
I am a big fan and with a great understanding...I will curl up with a large cup of coffee and read your book!! Stay strong and celebrate. Your life is very Awesome(🙏🙏🙏🙏🙏🙏🕊
Thank you so much! It feels like I'm being electrocuted and I and feel my arm! I'm so proud of you Selma. We are not burdens! We are amazing! We are Fearless! We are Strong!
Omg hello I have ms too 23years and I'm still here living I say to people don't allow urself to be a victim of ms I just say I'm different but we're all different if we were all the same it wud be soooo boring but stay strong 💪 and keep going we all deserve to live be kind to yourself ur so special wen I have a bad day I always say I'm grand il have a better day tomorrow ❤
I know exactly what she meant about wanting to die with the least pain possible. When your in pain all the time & your body can't function, it feels like, "what if this never ends"? But then I have good days & I think, "what if I can make it thru this"? Then I want to try harder, but when your getting no help from your doctors & they're telling you that your just stressed, your thinking, "how is this stress"? and "of course I'm stressed, you moron"! I even started smoking pot because they told me I just needed to destress. That helps me not to care & that is all. It certainly didn't stop it. We need better doctors that will take the time to look into our problems instead of half listening & trying to hurry up to get to the next patient & the next money making opportunity. Many doctors are part of the problem & not the solution. I still have no definite answers for my challenges. I hope that people like Blair can make a difference for all of us. Not just for MS but for every hard to diagnose problem. We are people & don't want to suffer. We're not there just to make a quick buck for these unscrupulous doctors. 🙄 I just love Blair for doing what she's doing. 😊
I just want to share that by researching minerals I decided to try taking 3/4 t potassium powder & high dose B1 Thiamine & it has helped me tremendously to walk again sending Hope to all 💜
@@morbidmanmusic I’ve reduced B1 some & could tell there was an effect and when I miss the potassium I can tell by end of day so resumed after my Dr agreed it’s best to continue the high dose minerals for now with the remarkable recovery ❤️🩹 We are instead focusing on a plan for reducing the prescription med dosages slowly over the next 6 months so I’m thankful he is open to minerals as my neurologist was not even willing to discuss the research studies so brought to my appt. So I took a chance on my own then told my primary who was baffled initially but curious as well
I can relate to her story of her mom not wanting to be pregnant with her. My mom has the same story about me. She said she sobbed when she found out she was pregnant (my brother was only a few months old). The doctor even asked her if she wanted an abortion that is how emotional she was. But that was out of the question for her. She didn't tell me the story to be hurtful. Like Selma's mom, she told me the story because of the "thank goodness I did have you!" ending.
Selma mentioned manic depression when in her youth, whether she had it or not. Honestly it's difficult pinpointing when MS starts and differentiating between it and PTSD from other traumas. I had eye problems where my nose was in my book but my eyes were fine, i got glasses to make my mother happy., I had movement problems, i was alwaysthe slowest and walked a bit crooked, i knew it but no one else did. I was always tired, needed to sleep more, was sooo very slow, but eevryone consideredme lazy and fat. I had, severe leg pain ehich wouldcause me to cry but i actuallyhave a high pain tolerance.... My mom krpt me in from school but people felt that i wanted attention, when in reality I am introverted and don't like attention. I had mental disorders as a young child but I was being molested. I could go on and on, I wasn't heard either. I was just diagnosed before my 52nd birthday, I think that I've had this about 40+ years. She mentioned Christina Appellate and the power that she derived from watching her. Honestly, both ladies help me make it through the day and I haven't dealt with half of their issues. They are my heros...
Her speech has improved impressively; how terrific. Just to be clear, she did not have these symptoms "my whole life"; MS is extraordinarily rare in childhood. She is clearly intending to say that it was happening for a long time as an adult. Remember, she has brain lesions. She also did not describe her symptoms in detail to the neurologist, and expected doctors to guide her to see the right specialist. Look up your most troubling symptoms and request referrals, even if you also think your substance abuse and trauma could be the cause of your symptoms. Because once the right tests are done, the (correct) bad news will come.
I totally understand you because I had the same proble as you . I get pregnant whan I was 40yeaes okd I started to have the proble with tremor in my heands. Thay told me bsby msybe push some nervene so I was thinking only for baby and after without any comlication I got beautiful girl now she is almost 17y and I was focused only on her till i went gor shesk up for her hips an fotunately there was my sister in low Doctor specialist for ultrasound and she spoted my tremor, and imidiateli senr ti to MR and to took liqoi analize for neurologisr. So I foun out that I got MS and feom these times I under controlof Doctors and so many different terapies and 7 relaps and keep on going with good times and bad times. Very nasty deasease. All the best for all of us❤❤❤
I hear so many ms stories everyone seem to be doing well coping what I don't understand after my relapse in 2022 I don't feel the same my head always seem like it is getting full I cry easily I do not want to do anything I had a job for many years and because of ms it's gone.Did anyone have this and how did they get over this I pray that God can turn this around.
I wish I can say I'm doing well but I am so depressed I wish I had kids family support is my husband and mom. Ms relapse for some reason makes me not feel like myslf
so touching. Thank you for giving Selma a voice. Selma, thank you for sharing your experience. We love you. God in Christ Jesus loves you and died for you. May He become your life and reason for living, and give you full recovery for His name’s sake.
nobody died for her?! Wow, ... keep your cheap god sales pitch to yourself, or we will have to talk about the sickness of the bible, and a god that would torture humans for fun. Life is the reason for living, not some fantasy you can't grow out of apparently. They say it is usually under-educated that believe and end up filling prisons. odd, but true statistics. Good god.....
My dear salma! You are so brave,I have so much respect for you,,you are beautiful person,,,I wish you the best! I tsunami of kisses to you and wonderful son🥰à la vie,to good life ,good health,happiness and love🌺🦋🌹💕💝🎉🎉💖🧚♀️☘️☘️☘️☘️
I’m not sure about that, but she does have a gift of expressing emotion (emoting) in the context of who she’s interviewing, without inhibition. It’s a form of empathy, or rather , connecting overtly with the person in front of you on the level of feeling, even without knowing that person very well. Not everyone can do that in a sincere way like she does.
Idk this lady's history, maybe I shouldn't comment. But I feel I need to, Selma seems like she's not all there, capitalizing to sell her book. No thanks, get well, then show up. Or go home take care of yourself and child....
You don't know her story indeed, so why put a comment? I have MS too, just like Selma , only got diagnosed 3 months ago. Selma gives me hope and strenghth, and she does to many many others. So yeah, don't comment on something you don't know anything about.
That's the problem we have here. Judgement. What you see is a woman with a very nasty disease. We are talking brain damage and spinal cord damage She is doing absolutely amazing!!
@@donnabolt5847 it's judgement without having any knowledge🙄 guess this reaction came from someone who has low or no self esteem, and just kicks on getting people to react.. its a f-ed up disease, literally nerve wrecking😥
