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She's exactly like me! 

ParentXP
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For once I decided to film on a day when I wasn't showing up as my best. My temper was fraying at the edges, I knew I was going to lose my rag, I was impatient and frustrated with both my kids and with myself. Because I have come to a realisation about Alice. She is exactly like me! She is a scatter brain, she is unfocused, she multi-tasks and gets distracted. Exactly like me. Watching through this footage was like holding up an obnoxious little mirror to myself.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

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18 сен 2024

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Комментарии : 15   
@EntertainmentForAllNetwork
@EntertainmentForAllNetwork 3 месяца назад
Thanks for sharing!! You are a wonderful mom and are doing all you can. Don't be hard on yourself. ❤
@CWengrovius1420
@CWengrovius1420 3 месяца назад
Hi. Your doing a great job do raising your girls. Great reminder to take deep breathes to calm down. That works for me as well on my harder days in my life or when things get hard for me & my mild disability & anxiety! Have a wonderful day & night with your girls!
@kortneykennedy7303
@kortneykennedy7303 11 дней назад
Do you want to be friends with me on tex I'm a girl I'm 38 old I'm in a wheel chair my body hurts you too play with your body on tex
@kortneykennedy7303
@kortneykennedy7303 11 дней назад
Play with your body down that Al the way with no clothes on your body on tex
@glencahalin4786
@glencahalin4786 3 месяца назад
Loved the classic little Tova smile 15mins in, when Alice says it's not fun :-)
@Meemagolding
@Meemagolding 3 месяца назад
I hope everyone gets a good nights sleep ❤❤❤❤
@brendalevesque6384
@brendalevesque6384 3 месяца назад
Hi Tova, hi Elin, hi Alice. I hope you all have the much needed good night you all seem to much need. I hope tomorrow is a better day.
@louiseleonard1992
@louiseleonard1992 3 месяца назад
Hi Tova i am Louise from Australia your biggest fan and i absolutely love you and your gorgeous girls a true credit to you your channel i bloody love it so much thank you
@caseyslifewithcp3727
@caseyslifewithcp3727 3 месяца назад
It's funny how sleeping meds affect everyone differently, I take mine and I am out like a light 30 minutes later, or maybe 15. LOL. I hope you're doing okay today.
@enistinemacrae4841
@enistinemacrae4841 3 месяца назад
❤❤❤stay calm and carry on 😅😅😅😅
@samuelthomasmccann.1170
@samuelthomasmccann.1170 3 месяца назад
Hi there hope you don't mind me asking do you hoist ellin a lot now or just now and again and does Alice still ask to go onto ellins hoist I've been on a hoist although I can walk but I enjoy going on a hoist there's always support staff with me when I ask its my sensory impact I feel as though that the hoist is enclosed while in the hoist it helps my autism and adhd and my twitching and keeps me happy being in a actual hoist doesn't matter if its tics or anything a ceiling hoist or portable hoist but at the end am happy and healthy.
@davidtrishhope9841
@davidtrishhope9841 3 месяца назад
Hi from New Zealand
@enistinemacrae4841
@enistinemacrae4841 3 месяца назад
Bloody ❤love you from Lichfield you
@abigailmagiera9938
@abigailmagiera9938 3 месяца назад
😮😊
@enistinemacrae4841
@enistinemacrae4841 3 месяца назад
Oops 😬
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