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Side Effects of CAR T Cell Therapy 

HealthTree University for Multiple Myeloma
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15 окт 2024

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Комментарии : 34   
@m.e.3358
@m.e.3358 Год назад
I mean I thought that we cure cancer in my lifetime but in my early 20s? I'm excited for this technique to be perfected
@debkt5599
@debkt5599 2 месяца назад
Gosh! This is enough to put you off having it! The peripheral neuropathy alone can be hard to live with. My husband has High Risk Cytogenetics, is currently ‘watch and wait’ and is considering all of his treatment options. He’s actually considering having no treatment at all as he values quality of life over quantity. But of course he understands that no treatment can also be very difficult too. 🙃😳🇬🇧
@michaelmeenan5522
@michaelmeenan5522 Год назад
These maladies haven't been explained to me in this detail, and I am about to undergo CAR-T Immunotherapy.
@tanyashawbristow7771
@tanyashawbristow7771 9 месяцев назад
Watch videos on the subject to get a better understanding. I pray you have a full remission that doesn't relapse. My prayers are with you and yours.
@lillyrocks2011
@lillyrocks2011 3 месяца назад
Hi, How are you? What medical condition do you have? How's the treatment going? I'm interested but here in my country it is not available yet. Hope you're feeling better 🪷
@michaelmeenan5522
@michaelmeenan5522 3 месяца назад
@@lillyrocks2011 Multiple Myeloma. Since my last post, I'm glad to report that I have achieved Multiple Myeloma's rendition of remission - minimal residual disease negative. MRD neg. That means that no monoclonal cells can be found in a random search of one million resulting from a bone marrow biopsy. It's a funky recovery process - can't drive for two months and dream hallucinations are very entertaining lol. The great news is that there is no damage to my bones, kidneys and liver, which I attribute to eating natural food (Ukrainian Borscht!), a great wife and an outdoor lifestyle. You have to want to live. Where are you from? 😁👍❤️
@msKita43
@msKita43 Месяц назад
I'm curious about your recovery after treatment. My mom is getting this for her lymphoma this week.
@michaelmeenan5522
@michaelmeenan5522 Месяц назад
@@msKita43 My understanding is that CAR-T Immunotherapy is even more effective against Lymphoma. I achieved MRD Negative (minimal residual disease, negative).
@emmanuelking9988
@emmanuelking9988 8 месяцев назад
I have multiple myeloma and goodness sakes, is there a treatment out there that doesn't bring you to the brink of death before it "helps" you?!! 🤦
@michaelmeenan5522
@michaelmeenan5522 3 месяца назад
@@emmanuelking9988 Like a stem cell transplant and CAR-T Immunotherapy lol.. I had both procedures last year. Yikes!
@randellpernell
@randellpernell Месяц назад
I was considering this therapy but now I'm not too sure
@emmanuelking9988
@emmanuelking9988 Месяц назад
@@michaelmeenan5522 I will be undergoing a stem cell transplant...how did it go for you? Any really bad side effects? When did you start feeling better after the transplant?
@emmanuelking9988
@emmanuelking9988 Месяц назад
@@randellpernell Yeah, this treatment is not for everyone... please do a lot of your own research and do what is best for you 🙏
@AMJGameTime
@AMJGameTime Месяц назад
​@@randellpernell​From what I've read it's not a guarantee you'll get these effects or that they'll be severe even if you do, but that's a chance you have to decide you want to take. I'm hoping this can be used to one day treat my wife's Lupus. It was kind of a last resort sort of treatment for the clinical trials but all the patients were cured and like 40% of them ended up with a mild case of CRS
@orscrub3161
@orscrub3161 8 месяцев назад
this not a cure, there is no cure……yet. car t was approved for MM in March of 2021. my husband received car t in january of 2022. in june of 2022 his MM had progressed to plasma cell leukemia. he passed in March of 2023. he fought a long hard fight. we aren’t there yet but we are going in the right direction.
@michaelmeenan5522
@michaelmeenan5522 3 месяца назад
@@orscrub3161 I'm sorry. Truly.
@ShineSwarupi
@ShineSwarupi Месяц назад
Is there a cure for MM. Is death definite?
@HTUMyeloma
@HTUMyeloma Месяц назад
Hi! There are multiple treatment options for Myeloma. If you search "Myeloma treatments" on our website www.healthtree.org/myeloma you'll see a lot of resources available to help educate on the options Myeloma patients have!
@hriatpuia24
@hriatpuia24 Год назад
so we cure cancr now?
@Pretanoisma
@Pretanoisma 9 месяцев назад
Very good question, ore are we getting very close
@MrWatshisface
@MrWatshisface 9 месяцев назад
Occasionally
@emmanuelking9988
@emmanuelking9988 8 месяцев назад
By the information of this video, I think not really 🤷🤦
@kekenjoyer7356
@kekenjoyer7356 8 месяцев назад
Car t is indicated for blood malignancies mostly
@SJ-wu9gx
@SJ-wu9gx Год назад
You mean car t therapy is worth nothing?
@HTUMyeloma
@HTUMyeloma Год назад
CAR-T is a great therapy, I recommend you learn more about it before jumping to conclusions healthtree.org/myeloma/university/courses/Ydp2hGIGsHfOWq0t4TGn
@tanyashawbristow7771
@tanyashawbristow7771 9 месяцев назад
CAR-T is an excellent therapy. I'm living with Multiple Myeloma. I have read and understand. But it does and can have serious side affects like all therapies. Progress in therapies for blood cancers have improved and are continuing to improve quality and quantity of life. Thank GOD for those brilliant minds that are used to help others.
@emmanuelking9988
@emmanuelking9988 8 месяцев назад
For the sounds of this video, that's what it seems like 🤷🤦
@Werewulff333
@Werewulff333 Год назад
Minor side effects. Im sure these effects can be reversed somewhat to live a normal life
@tanyashawbristow7771
@tanyashawbristow7771 Год назад
Neuropathy is debilitating. Others systems can be deadly.
@BrianaRosa
@BrianaRosa 9 месяцев назад
​@@tanyashawbristow7771Hey, could you explain about it, please. It isn't temporary side effects?
@bottomsupbarmaid1987
@bottomsupbarmaid1987 4 месяца назад
Not minor or temporary for all, my son is still immune compromised 4.5 years after car t and I have to give him subcutaneous infusions every two weeks to boost his immune system.
@michaelmeenan5522
@michaelmeenan5522 3 месяца назад
@@Werewulff333 The aftermath is a slog. Here's how I look at it - let the wonderful oncology caregivers do their thing, and I live a sympatico lifestyle. Eat healthy, get outdoors, exercise, laugh a lot with family and friends, and enjoy every moment. Together, we're on a mission to transform MM from a deadly disease to a chronic disease. We all have our part in this effort.
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