Socially Constructing Down Syndrome: Confessions of a Rockin Mom | Cara Jacocks | TEDxACU

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Cara discusses common Down Syndrome myths and explain how a community of “rockin moms” (moms of kids who “rock” an extra copy of the 21st chromosome) are working to socially construct society’s “next” conversations about DS through critically examining the impact of our language choices.
As a communication scholar, Cara has always known that words are powerful. But her scholarship took a personal turn in 2013 when her son, Everett, was born and diagnosed with Down Syndrome. You can find her talking more about her experiences on her blog at mamability.com.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

Опубликовано:

7 сен 2024

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Комментарии : 45

@juanitaneil1891 7 лет назад

Cara is my brilliant sister-in-law and Everett is my amazing, adorable nephew. As a nurse, I am disgusted by the things that nurse said and I apologize on behalf of my profession. Cara, your analysis and conclusions for the way ahead are incredible, and spot-on. Thank you for this insightful, and enlightening message.

@justinoiler9749 5 лет назад

Leax atoaf Adam boact

@pookysgrl 4 года назад

Juanita Neil - me too! I have a 25 year old bro with DS. I love that man so much, my life is forever changed for good by him. My bro rides bikes, reads, speaks full sentence, the empathy he has is beautiful! He’s still learning new things. I want to be part of the change.

@Bffs4life797 7 месяцев назад

@@pookysgrl I have a friend who has Down syndrome who’s 20 and when we were in public someone was staring at him and i looked at her and she looked away as soon as she saw me staring back and i almost started laughing because she was acting like a child i mean I can show my mean side if you make fun of my friends 😂. I agree with her and u.

@louiseking4519 5 лет назад

Good for you, go tell the truth. Children are gifts to us, in many way they come.

@bettymoonlight6203 Год назад

I agree, people with Down syndrome are more alike all people than not, except they bring joy, love, amazing hugs, non-judgmental on a higher level to their families.

@Bffs4life797 8 месяцев назад

I agree I have friends with Down syndrome and they have changed the person who I am and i hate the r word and “downs”.

@MrStaybrown 2 года назад

My son has down syndrome and I encounter people from all walks of life that are just mean hearted..teachers are the worst, certain family members are very insensitive, patronizing people. Amazingly how people you thought were friends all of sudden stop talking to you when they find out you have a child with a disability.

@Hai_Doan 2 года назад

I am with you. 💙 I myself am a disabled person, so I know how mean some people can be to the disabled.

@Us3r_x 7 лет назад

Informing the uninformed. Brilliant! :)

@pookysgrl 4 года назад

The selective termination breaks my heart. It would be great to encourage those potential parents to spend time with the beautiful people with that huge EXTRA. Extra love, extra hugs, extra laughs & your heart grows so much bigger.

@InventaChris Год назад

You have no clue what you're talking about. DS is a severe intellectual disability, not just a cosmetic condition. Most DS people have heart issues, risk of early dementia, and infertility. Most DS adults have the intellectual capacity of 8-9 year old children and likely won't be independent.

@NAConen 2 года назад

To equate someone calling him a “downs boy” with the phrase “down, boy” - a command you’d give your dog, is absurd. Just because they sound similar phonetically doesn’t mean the meaning is anywhere close to being similar. That’s such a disingenuous reach. 🙄

@patsycav 6 лет назад

Great answer, Cara..."how high functioning are you?" So on point. Namaste.

@justinoiler9749 5 лет назад

Justin Jessica Melissa Todd Danielle Luis Misty Scott Megan Mike Michelle Kevin

@blackalien6873 2 года назад

Enough to live independently and pay my own bills.

@TsukiNaito1 4 года назад

Wow. I went to ACU. When she described the nurse, I just thought "Yep, that's Abilene, TX."

@spoonyquine1584 6 лет назад

Lol, "how high-functioning are you?" May be the words of an exhausted mom, but ive wanted to ask people that if they have asked me that.

@randomamy615 5 лет назад

This video needs more views!!!!

@Bffs4life797 7 месяцев назад

My school lets the ec class eat lunch with us and come to the pep rally’s and they have a ec prom and they have a class where they go help them

@christipena9487 3 года назад

WHOOOO THATS MY PROFESSORRRRR!!!

@aceg3095 6 лет назад

I wouldn't want to bring a kid into this cruel world who will be treated with redundant obstacles for the rest of his/her life.

@michelehilgart6329 6 лет назад

Then don't have kids.

@me16047 2 года назад

Nonsense everyone's got obstacles some just tolerate it better.

@InventaChris Год назад

@Michele Hilgart Not wanting a DS kid is perfectly valid. DS is a severe intellectual disability, not just a cosmetic condition. DS people have higher risk of heart issues, early dementia, and infertility. Most DS adults have the intellectual capacity of 8-9 year old children and likely won't be independent.

@justinoiler9749 5 лет назад

Oiler with son's girlfriend Oiler's mommy & step dad oldest daughter & son in law Step sister & Son in law

@melissaoiler2414 4 года назад

Justin Pullin Melissa momma Mike step dad Danielle Pullin sister Luis Luciano Brother Misty Brown sister Scott Brown Brother Megan Ellis sister Mike Ellis Brother Michelle Story sister Kevin Story Brother

@kelmoy6343 4 года назад

Cara jacocks

@judgeonan4526 Год назад

Why just moms though?

@mysterygirl-xt4ic 18 дней назад

Moms though what?

@marionb.7635 Год назад

❤ from France

@NAConen 2 года назад

If you are willing to have a child with DS, you have the financial means for the extra care and you have the extra time, more power to you, but the majority of women don’t have that luxury and I’m in favor of NOT guilt tripping them for exercising their right to choose what’s best for them and their families.

@clairemcneil2038 Месяц назад

As with anything that happens to anyone who loves their children, whatever your circumstances you find a way and your life becomes richer for it. I hope you have the wonderful opportunity to learn this glorious lesson of life one day. Life has more colour with such circumstances that challenge us to grow. With love and respect from a single-parent of a wonderful two year old girl with DS.

@AstralJam 5 лет назад

I hope she and her child are well. The story about the woman asking her how high functioning her child will be was almost certainly purely fictitious.

@sharonmiller9100 3 года назад

Huh? No it's not... I have a 5 month old with Down Syndrome. The number of times people have asked me this is numerous. Especially with older people and some well meaning nurses. I never know exactly how to respond. Of course we all want high functioning kids. But not everyone is or will be... it's a hurtful question, really... and is altogether too common.

@TheTruth-ju9fm 7 лет назад

She lost me when she started about "I suggest we start using different language"

@NAConen 2 года назад

She lost me when she said it was callous to say, “Your baby has Downs.” Uhmm did she not want to be told? (The “save the better name for your next kid” comment was weird, though).

@katedawson6020 2 года назад

Why? language evolves ... if Downs Syndrome has negative associations, as other offensive labels used in the past have and are now no longer used (eg. spastic) then its obvious there's a need for change. Sounds like you are a bit flakey and oversenstive LOL

@ricardodavila9000 4 года назад

If live gives you lemons you make lemonade and zip it with a smile. If I had a choice I'll stick with cool aid. No thanks lady! If I were a woman I would never be so selfish to bring a highly disabled child into this cruel world.