Hi Maddie, So happy I saw this video. I have been battling symptoms for 15 yrs. No one I saw even thought about testing me for Lyme. I moved to Georgia a yr ago and found the center that treats Lyme with Sot. They were the ones that found it and I am starting the process of Sot. You have given me so much hope after listing to your video. Glad you are better and I hope I get the same results!
I got it almost 4 months ago. No relief yet. How long did it take for you to see things turn around? I can longer drive. Severe fatigue. Cronic nerve pain. I feel defeated.
49 years old tested positive for Bartonella babesia and a bunch of co-infections. I've had it for many years but was in remission until seven years ago. This time it hit me hard I lost my ability to walk now have muscle atrophy and went through several spine surgeries which was not the answer. Recently found out misdiagnose and it is lyme Santa doctor to do sot should be in within the next two weeks. I'll keep you posted but this will be in modern miracle if this works for me. Always active extremely healthy so hopefully the ball is in my court
I’ve done 8 SOT infusions over the course of 2 years for my Lyme & coinfections. Unfortunately it didn’t work for me & the babesia microti sot actually made me even worse off with a 3 month herx 😣. I decided to change my approach to regenerative medicine.. hbot & embryonic stem cells 🙏🏼 praying this is what gets me remission. I have been suffering so much .. I need my life back. I’m glad it worked for you though 😌
I just had one for raging chronic EBV a few months ago and symptoms have worsened intensely, the die-off still hasn’t dissipated. I hear that typically the 1st will induce a worsening of symptoms and the 2nd pulls you out. Sucks to hear that it didn’t work for you, I also have chronic Lyme, a combination of different abx that address all growth phases of Lyme over several months did some decent work. I hope SOT is better in the context of EBV
@@Jonathande_yeah I was doing pretty well up until the babesia sot. It hit me so hard & have still been crawling back to where I was since which was about a year ago. The odd thing is that my babesia wasn’t even technically positive in the testing. It was only borderline & I haven’t tested positive in any other of my tick panels for babesia. At this point I’ve done so much “killing” with sot therapy so I’m starting approach this with more regenerative ideology of modulating the immune system, supporting mitochondria, reducing inflammation & repairing. Hbot helped get me to a better place but after 110 sessions I discontinued as felt the effect plateau at session 80 or so. I did 200 million embryonic stem cells which gave me an uptick of improvement as well but still no remission. I just started eboo therapy yesterday & getting exosomes infusions along with it. See how that route goes. I had done exosomes in the past with weekly one pass ozone in the past & just so happened that was when my neuropathy & pain had dissipated the most so far out of all these treatments I’ve tried. ..🤞🏽 feeling hopeful but we will see. A very complex illness & the onset of all my symptoms came 5 years post my tick bite when I lived in aspergillus mold so even moreso complex in my case
@@Jonathande_I did the ebv sot as well. For me it went fine. So did the sots I did for borrelia strains & Bartonella. I don’t think I’ll ever do another babesia sot it was way too harsh on my body. I’m not even testing positive for it & never technically did it was only borderline. I hope your reaction to the ebv dissipates but yes I heard to fully get ebv especially you need a few rounds. I did 2 rounds for Lyme & 1 round for Bart. No longer showing positive for bartonella but was showing a little Lyme left. But then again all these tick panels are based of antibodies so hard to tell if it’s still officially there. What are you treating for persistent forms?
@@Annalovestheocean did you go through any worsening of symptoms with EBV after 1st round? How many in total did you do, and when did relief set in? Much more fatigued, inflamed, weak, and foggy since 1st round... I know others have experienced die-off / worsening symptoms for EBV, but a bit more ambiguous and hard to find other anecdotes of the same type of experience. Also, I was on doxy, ceftin, and flagyl. Nystatin to control yeast overgrowth during. I was several bands positive prior, as well as ELIZA and Blot at certain points, following the 3 month course I am now only 41KD positive, which was the only band positive prior to reactivation, and most Lyme sufferers will have this indefinitely... blot negative now as well. May do igenex testing next. I also did a vibrant wellness test for Lyme and tick borne following abx, very expensive and sensitive test... also negative outside of mild igg for borrelia, igm low though, so did not warrant SOT.
@@Jonathande_I only did one ebv sot. I didn’t have a reaction good or bad, maybe slight uptick of energy levels a week or two after. I’ve done two types of tick panels. Infectolab at first then switched to vibrant. My first infectolab showed positive Lyme, bartonella & ebv. My first year of treatment I did one sot for Lyme & one sot for Bartonella along with one pass ozone weekly. I retested 6 months post sot infusions & my Lyme levels significantly reduced to almost borderline levels & my Bartonella showed negative, but then I also showed borderline babesia & positive ebv. So the second round of sot I did was for babesia & ebv. Then after those infusions I realized infectolab doesn’t show all potential tick infections so I retested 3 months post 2nd round of sot thru vibrant. My vibrant showed only positive igm for ebv but no positive igg, negative for also Bart & babs. Only positive igms I had were multiple strains of borrelia so had another round of sots for those for different borrelia strains. I just retested my vibrant tick panel & results are pending. It’s been about 8 months since my last sot infusion.
How are you doing in March 2022? Many LLMD's don't say remission.. you either have Lyme or not. A better term is the borrelia is in hiding, buried in scar tissue or in muscle. How does SOT actually KILL the borrelia? Does your blood sample have to contain the borrelia bacteria in your to create your SOT? And you can have multiple different strains of Borrelia in your body.. what if you don't catch every strain of that bacteria in the blood draw?? You can take 10 blood draws and never get part of the bacteria in it.. And if you've been on ABX, your likelihood of getting a positive lyme test is diminished. I sure would like to hear how you are doing today?
I think it really depends what's wrong with you. I had 5 types of Borrelia and Ricketsia. I had 2 shots in 4 months. Also. I was on tons of ozone. 6 months after I started they told me my Lyme tests were negative. It took a full month after the shot to come out of the flare. I flared with intense itching. It was intense. It was all worth it. Now I'm just dealing with getting over the chronic fatigue or heavy metals.
I've been entirely sick with lyme for a year after a known bite. I was completely healthy and normal before this happened, but can now barely walk or stand on my feet more than a few minutes at a time. I also have CONSTANT dizziness with vertigo, and blinding light sensitivity due to soft-tissue loss around my eyes. Need help fast.
My sister did this and it really worked for her. She also eats a lot of fruit and raw living foods. If you can't afford the SOT and if you have the discipline you can also try experimenting with detox tools like fasting and juicing and the raw food diet. A lot of people do really well detoxing it out....just takes a lot more time and effort. SOT is faster.
I only heard about SOT today! I have had very bad neuropathic pain for over TEN YEARS NOW.....how bad was your nerve pain? And what is your fatigue like now?
Did you get any answers? Have you done SOT? I just did it yesterday. I've had horrid nerve pain in my left foot since 2015! I have tried everything! I did ozone for 1.5 years and it didn't relieve that nerve pain. Numerous injections, nerve blocks, you name it to try and ease this nerve pain. Went to yet another clinic a couple months ago and they told me about SOT. Nobody had recommend it before. So preying to God it gets this nerve pain.
Hi Maddie, I’m working with Dr. Sloan now…I was super fit a year ago and now I can’t walk and am atrophying from spine out with severe CNS issues. Hoping to get SOT within a month.
@@TheJanaMitic I haven’t gotten my infusion yet. My infusion got lost but I got a new one from Greece. I had to have it shipped from GA to NYC. The AIM Center may be doing it for me mid July, now. I am much worse and having really bad circulation issues and nerve issues, with joint problems. Like Lupus and a few other things.
@@danaking3568 I did. I got SOT for Lyme, Bartonella, and Babesia. Unfortunately still declining very much so. Going to Mexico for stem cells…hard to travel for how sick I am. All my tissue is stiffening and getting no good blood flow.
I had never heard of SOT prior to your video but will research it. You said your doctor was in Georgia. I am in Georgia. Can you tell me who your doctor was and where you had SOT done in Georgia? I am so glad you are feeling better. I would love to feel like myself again! I also thought all Lyme tests are negative with chronic Lyme since we no longer have antibodies. My Elisa test was negative but i was diagnosed based on my symptoms. The Igenex is different? Thank you.
Have had lyme sot and ebv sot. Hoping for bartonella and cocksackie test next. (Not cheap) as I am South Africa. I have definitely felt impromenrs after the two sots. But also some serious ill fatigued, dementia like symptoms lately.. Trying to work through that was hell. Does one need to be potentially have another sot with lyme? How long were you sick for? How long to recove? 🙈
question what practitioner on earth knows how to care for someone who has had SOT, I am woking with a gentleman who has had three treatments, please for everything holy who would we reach out to that knows enough about sot and after care nutrition environments chemicals what lifestyle best fits, for instance we know that after the covid shot those individuals should Never take steroids EVER. what doctor what group what forum would know any of what you mentioned at 12:44 minute in
Maddy, what's a good email to reach out in regards to having you on my podcast? I messaged you on IG too, but not sure if you'll the it. Thanks! Autumn
Did antibiotics help you at all? The only specialist who is available and within a few hours of me and takes insurance does an antibiotic approach and this is my first official start of treating Lyme after treating mold... or even helpful for coinfections?
I did take antibiotics when I initially was diagnosed in 2009, but I haven't taken any antibiotics since then. I honestly couldn't tell you if they helped or not... they definitely really messed up my gut and that has caused a lot of issues for me, but I could have also gotten even sicker if I hadn't take those antibiotics. I feel like doctors have a much better understanding of Lyme now than they did 10 years ago and there are so many more alternative treatments available, so you don't necessarily have to go on antibiotics, which I think is a blessing. The doctor that I see now who is wonderful does not recommend antibiotics unless you can start them immediately after you get the tick bite. He says that using antibiotics for chronic Lyme will only make them form more biofilms. I did take a short course of antibiotics after I did the SOT treatment for Lyme to treat mycoplasma and the antibiotics were very effective for that. I definitely think that antibiotics have their place, but I personally don't like the idea of using them long term to treat chronic conditions. I have a podcast with my doctor called LymeLight thats here on RU-vid and also on Apple and Google Podcasts where my doctor talks more about his opinion on antibiotics so that information might be helpful for you!
Question for you Maddy. In your prior podcasts you mentioned you were able to get rid of Bartonella AFTER SOT with a short course of abx. Here you say you think you handled it PRIOR to SOT with abx but took care of mycoplasma AFTER SOT. I have a very heavy bart infection so I do not believe my immune system can take care of it magically on it's own. Hopefully I'm wrong. Can you please clarify your bart/abx situation? Thanks for sharing this info :)
Hey Andrew! To clarify, I did get rid of Bart many years prior to getting SOT and it was most likely due to the antibiotics I was taking during my initial infection from 2009-2011. The only coinfection I dealt with after SOT was mycoplasma pneumonia, and I took antibiotics for a month to get rid of that. It ended up being very easy to treat. You will probably still need to treat Bart after you get an SOT for Lyme; my point was that once you sequester Lyme, your immune system does begin to function properly again so you will have more options for how you treat Bart. You may be able to treat it with herbal therapies or you might need a course of antibiotics. You just won't necessarily need to get a second SOT for Bart as well, your body may be able to take care of it with the help of other medical modalities. I hope that cleared that up!
I am clear of Lyme! Pre-SOT I was in and out of remission several times over about 10 years but post-SOT I've been completely symptom-free without doing any other treatments for over two years now!!
