Spinraza vs Risdiplam: My Opinion

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Filmed in 2021, I just forgot to publish the video.
Woman with Spinal Muscular Type 3 talks about her experience with Risdiplam (Everysdi) vs Spinraza (Nusinersen).
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Опубликовано:

19 янв 2023

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Комментарии : 11

@koljajurawski6731 Год назад

Thank you for sharing your impressions!

@moo7490 Год назад

Thanks for sharing your experience.

@katja8321 4 месяца назад

Thank you for sharing. I had 19 spinrazas, but they are getting hard. I'm thinking about switching

@CourtneyFrazer 4 месяца назад

I have heard different opinions and have heard some people say they feel weaker after risdiplam. The spinraza injections can definitely be hard, especially if you get headaches with them! You might want to ask if you have the option to switch back to spinraza if you don't like risdiplam before you fully switch. Im still on risdiplam and have only fallen a few times. Most recently because I got knocked down by dogs and because I tripped over something.

@katja8321 4 месяца назад

@CourtneyFrazer there's no way back... I'm a type 3, non walker since I was 11. But I have reasonable strength in my arms since spinraza. I only had a spinal leak once, I lay flat for 2 hours after injection. But I do have nerve damage. They keep hitting it... the access is getting hard because of the injection is always at the same place...