Spread Your Wings UK - Life with Angelman Syndrome

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Alex and Jenny Vainella, parents of Leo, who lives with Angelman syndrome, share their story in a heartfelt video titled, "Life with Angelman Syndrome." Learn more about the Spread Your Wings Charity at spreadyourwingsuk.com/
This video was created by Zuzanna Jakubczak.

Опубликовано:

19 фев 2024

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Комментарии : 6

@melissanguyen4904 5 месяцев назад

This is so beautifully shared! 😭😭😭 all the feels. My son is 10 with deletion and we live in rural South Carolina

@talkingtab20 5 месяцев назад

Weldone mum and dad, I have a son with angelman syndrome ,I feel your frustration and uncertainty, you guys are doing great ❤

@GXDmusic 5 месяцев назад

So inspiring guys. Good on you for sharing this it’s super powerful ❤❤ Daley & Jess x

@raniarriyani2484 5 месяцев назад

keep your spirits up and don't forget to be happy I'm from Indonesia, my daughter has Angelman syndrome too, in February 2022 she passed away

@christinefinn6180 2 месяца назад

Your an incredible family and a beautiful couple I’m familiar with the syndrome keep going there are so many things you will all achieve together.. love and best wishes to you all

@talkingtab20 5 месяцев назад

It's a lonely journey for the most part, but I focus on every small and big wins.