Starting CLL Treatment (A Clinical Trial!) & Then Cancer Relapse, What Next? | Michele Nadeem-Baker

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Watch and wait is more like ‘’wait and worry” or “watch and worry” - Michele Nadeem-Baker shares what sparked her and her doctor to start her on treatment after active surveillance, and what led her to participating in a clinical trial as her frontline treatment.
As an experienced patient advocate for years, she also shares what she’s learned and what CLL patients and caregivers would benefit from knowing, including:
- Screening tests
- Signs for needing CLL treatment
- Reasons to see a CLL specialist
- More
Thanks for sharing your story, Michele!
Full story → www.thepatientstory.com/cance...
Videos:
1) Cancer Patient Stories: Getting Diagnosed with Leukemia (CLL) : • Cancer Patient Stories...
2) Starting CLL Treatment (A Clinical Trial!) & Then Relapse - What Next? : This Video
3) Finding Purpose After Cancer: Fighting Myself & for All CLL Patients: • Finding Purpose in Can...
The interview has only been edited for clarity.
Join Our Community:
Website : www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
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Contents Of This Video:
00:00 - intro
00:48 - What prompted the start of your CLL treatment?
05:13 - Describe the regimen for ibrutinib + FCR
05:59 - Side effects of ibrutinib + FCR
07:29 - Any other side effects?
13:56 - What was your oncologist's opinion about stopping treatment because of the fatigue?
19:13 - How did you process having to go back onto treatment after a couple years off?
21:58 - How did you decide which treatment path to take?
24:31 - Describe the acalabrutinib regimen and any side effects
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#ThePatientStory #CLL #Bloodcancer #Cancerstories #Leukemia #clinicaltrials

Опубликовано:

7 авг 2024

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Комментарии : 13

@lj9524 Год назад

Thank you for participating in a clinical trial for all people who have or will have CLL. You are a brave woman. God bless you dear one! 🙏❤️🧘

@darcya.9390 Год назад

I was so shocked to see this young woman being treated so young and so early on for cll. I had no idea that happened with cll My husband was diagnosed about fifteen or so years ago and he's still pretty stable not needing any treatment yet. Such good information. Thank you!

@mdrahamatullahmd4574 9 месяцев назад

I am a cll patient. Would you please explain me diets that require to take in it.

@satokos9230 Год назад

Thank you very much for sharing. It’s very helpful since I was diagnosed with CLL and it’s rare disease in my country and my age, 44. So there isn’t much information.

@farokhemami1949 2 года назад

Thank you so much for sharing your experience with us. It is very helpful for new patients , who are new to this disease.

@ThePatientStory 2 года назад

So glad it could be helpful! Michele is a light in this world, for sure.

@kimp7977 4 месяца назад

Going to start treatment soon and have no idea what it entails so thank you

@davewagner5408 Месяц назад

I had the same symptoms and side effects, almost exactly me I was on Obinatuzomab and Venetoclax.

@jenniferboughton5966 Год назад

Thanks ladies, much appreciated videos, along with great advice ❤️

@bobbiemauk1879 2 года назад

Thank you

@johnmccarthy6999 2 года назад

Michelle, have you any thoughts about Loxo 305 or Venclexta as a second line treatment?

@davewagner5408 Месяц назад

I was on Obinatuzomab infusions for 6 months. And oral Venetoclax for a year. In remission for over 3 years now. I had all the same symptoms as you leading up to treatment.