Thank you for helping me understand about the on and off days. I am so much more patient with my mother. When I see she is off with her reasoning and thinking ability, I don't push for understanding. I do what she asks me knowing this will pass and we will have a good day again.
Hi M, thank you so much for letting me know that this video is helping your relationship with your mother. Be on and off times are difficult for you and they are difficult for people with Parkinson's as well thank you so much for understanding. 😊❤️😃
I can see the off time in my husband’s brain at times. I worry about my health - in that I may have difficulty helping him later. (I need to come out of my mourning so I can get better too.) We’ve been married for 42yrs. I need to be the one to take care of him, always. In 18 months we lost our son, my mom (who my hubby was closer to than his own) and my husband’s mom. For us - too much. And we have a lawsuit we are fighting in another state, which means air travel periodically. Airports and PD…not good! All around stress. Please keep the videos coming!!! And maybe one day your wife will give us some caregiver videos, hey?!?!!!
Hi Jeremy I wish I could handle it like I used to as well but I just can't that is a hard thing to let go of and let others deal with. A very hard thing 😊🙂😃❤️
Hey David and Kiwi, I unfortunately have been on that same rollercoaster 🎢😢 Severe sudden loss of a loved one or traumatic event has caused my body to react to stress in a whole new level of not being able to relax. My apathy increased 10 fold But like you said you can't just shut it off. To help I found a new hobby I'm enjoying. It's an emotional support one that's very helpful 😊
Yea KiWi Still nice clear skies there I see . Tornado carnage....right on point . Some looses are more difficult than others . Hope your weather is nice . And thanks KiWi for dragging Dave outside
Hi Jerry, kiwi ays that she loves being outside and wishes you could be here too. I thought the tornado point was a good one thanks. Our weather is beautiful right now in the Okanagan. 😊🙂😃❤️
I'm so sorry for your loss. Thank you so much for sharing and putting these videos togethers. My mother has Parkinson's and you help me understand her. I appreciate you so much. Thank you for all you are doing.
Hi M, you are very welcome. Comments like yours are very heartwarming and rewarding as I see doing this to be a privilege and not a right. I am very grateful to share my Parkinson's journey with so many I am glad you are able to better understand your mom.
Thank you for sharing, David. It is so easy for all of us to become introspective and fall into despair. We are all in this together. At different moments we lose sight of sunrises, sunsets and the miracle of rainbows. Keep your videos coming. Fight the good fight!
Hi Tom, thank you for the encouragement. It is much appreciated. I agree, it is so easy to become singular in our outlook, and I have done that often. It is much easier to deal with the stresses of life and PD in a group setting.😀😁😊
David, I'm falling a lot and hurting myself among other things , any tips,,,, seventy three , have had it for at least ten years ,took eight years for the Docters to find out what was wrong ,love your channel ...thanks.
Hello, without knowing your situation fully it is difficult to give specific advice. Is there a physiotherapist you can talk to? Sorry to hear about the falls. I have near misses with them now nearly every day because of freezing. Are your falls related to freezing? If so I recommend that you check out NexStride, the device built specifically for Parkinson's to help with freezing of gait. I have been testing this device now for almost two weeks, and will share some of my results next Saturday. They have been good. This link will save you 10% yes.getnexstride.com/discount/lifewithparkinsons10
My husband has had PD since he was 43. He’s 66 now. We lost our son 18 months ago. We know your pain. My hubby also has no discs in his lower back so exercise is difficult. But getting him to use a Walker has been frustrating. He freezes all day, everyday, so he tends to just sit in his recliner all day. He wants to go out to his shop everyday, but it’s hard. I wish he had your attitude.
Hi Lori. Thank you for sharing some of your life with us, it really helps to get to know you better. We definitely have had some similar experiences. I am sorry that your husband suffers from such bad freezing. I get it as well, but not as bad. I have been testing a device from our newest sponsor the last couple weeks that was built specifically to ease freezing for a person with Parkinson's disease. It easily attaches to a walker, can, or walking pole. Perhaps it is something you might want to look at or speak to your healthcare team about? I will be putting out a video about my results it this coming Saturday. My results have been good. Here is the link to the company if you want to check it out. The link will save you 10% it is sold in the USA yes.getnexstride.com/discount/lifewithparkinsons10
Here is a link to a short video I made about the NexStride. ru-vid.comrIAaAd8qdoQ?feature=share Here is a link to a good interview. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-cJxtrCoxzCg.html
Your bird is cute! I can relate to loss. Maybe do some activity that would relieve your stress in honor of your son, like inhale I am.. exhale stress free.. I need to do this, too!
Hi gazeac, deep breathing is a good suggestion. Someone also recommended a vagus nerve reset a few days ago that I have tried, and it works. Thanks for watching and saying hello.😀😁😊
All that you said I agree with. Stress makes symptoms worse. Grief is personal. We have to work through it in our own time. When we loose someone we love it takes time to work through the different stages. I havent experienced the freezing aspect of PD. I can only imagine how uncomfortable it must be. Thank you for sharing.
Hi Rory, I have not tried it, but I have looked into it, there were a few concerns I had about it, but I would be interested in hearing more about your experience with it.😀😁😊
