Thank you Matt for your openness and sharing your journey. I was diagnosed with Menieres Disease and Vestibular Migraine just over a year. I still haven't found any treatment that works and the 24/7 head pressure is driving me suicidal. I'm now with the primary mental health team as I'm currently high risk suicide. I'm on alot of medications for anxiety and depression but I'm still in a bad place. It's hard to see any light at the end of the tunnel. If my parents weren't alive, I would have taken my life long ago. I just do not believe I will ever get better as this past 18 months has proved a steady decline. Every day is torture. Wish you well with your future.
Anthony - I’m so sorry to hear you are suffering badly. Please hang in there for your mum and dad and for your future self - who will be much improved and able to better manage the condition. It will get better even though it is very hard for you now. Believe me.
"As you were you'll be again". Those words have kept me sane during some very dark times with VM. Thanks for all your videos. You are making a real difference to other sufferers by sharing your experience and wisdom.
Yes it crossed my mind all the time! I suffer migraines that sometimes last for weeks, this last bout was almost three weeks, and if you include the pre and post phases of the warm up and cool down, it would be a month long migraine! I also deal with fibromyalgia and rheumatoid arthritis, and they all play off each other so I 'm always trying to battle those thoughts and looking for reasons to live! I'm always forcing myself up, and forcing my self to get out! I try to tell myself that my life matters, and that I can't stab my mothers and my husband in the heart! My Mother lost my father to cancer and lost my brother before he was 40. So I couldn't hurt her that way! I couldn't harm my brothers children that way, they've been traumatized too much over losing their father! For me telling myself that pain changes, and things always shift and pass, and looking for reasons to live, and getting out, and always getting your basic needs, sleep, nutrition, meds, and some exercise, will help with the constant pain. Because sometimes you just have to suck it up. But no it's not selfish, it's normal. But also accepting the pain, making peace with it, also takes the edge off. And weed. Cannabis NOT SMOKING has helped me cope with the pain, and when it gets too intense, take something stronger! But don't end it. Life will get better. Ride it out. And if you need to say no, say no. Take time for yourself and rest listen to your body! I notice that no matter what you do, you will always feel pain. But you can control how you cope with it, and the condition your body will be in when that pain hits.
@@hariharans386 well first I'm lucky that I win my disability claim so I don't work. So in that area I am so lucky, because I wouldn't be able to keep a schedule the way my body carries on! But if you must work, you have to be very blunt with yourself and choose a job where you can choose your schedule, and one that can accommodate your pain, ie, if you have finger pain, no typing, or leg pain, not much walking, or sitting, you get it! But going through a thought phase for me is a whole body graine, so a migraine you feel all over with the flashing lights spots auras, the dizziness, the unbearable headaches that pounds and doesn't stop and the starts creeping down my spine, then I start not being able to coordinate my walk, I get clumsy slur my speech, I see blurs, even fall, so I have to lay down and it feels like electric current is running through my body and it makes me nauseous. I get overwhelmed and my feelings get sensitive. If allowed to persist I become skilled my blood vessels become swollen on my head so I get nose bleeds even I get high blood pressure and I get bleeding in my bowel movements which, I also get diarrhea, so it's like my whole body is on supercharge, and I have to take something to calm it down or my migraine will keep spiraling. So my first step is Tylenol with caffeine, but usually that only helps a little, not really. So I take a cannabis THC oil which helps a lot more because it takes the anxiety down, and alleviates the pain. Usually that will help. But if it doesn't stop within two hours I then take a Vicodin. And I take my clothes off and stay in my darkened cold room, after I have taken a cold shower in summer or a warm shower in winter. And I have a Popsicle. But cool running water on you head and back is the best feeling for a bad pain episode! But not in winter for joints! So be warned. I also have a cannabis ointment for my joints because the pain from ,y auto immune disease can kick off a migraine, so I have to constantly be on alert and put out little fires before they turn into huge ones! Hope this helps!
@@hariharans386 and if you are at work and you have one step away from your screen, go into a dark room, loosen your stifling clothes, and get some COLD caffeine like mountain dew, a cold double shot, and meditate, even guided meditation. Get a prescription for a migraine medication. Because narcotics can't be taken at all jobs you'll have to do some type of work around. Chamomile, fake weed, Tylenol, anything but try to get it when it starts, and get some visors that filter out the blue light from the computer because glasses if you don't wear them regularly can also cause headaches. And do something else away from the computer. It's hard, but you will have to find a way.
Ah, I am so sorry to read about your suffering. I wish I could help you as it sounds horrible. You are one brave girl. Sending you my best wishes and you hang in there - things will get better.
It’s horrendous having this I’m 3 years in with vestibular disorder Some days are so bad But I’m ok I live with it I’m alive and happy Being positive helps and being less stressful has helped me rapid
Can't say I was suicidal but in the beginning I went through some dark anxiety something I'd never experienced previously,it really took me by surprise and even now two years on sometimes resurfaces. Getting an MRI and talking about it really helped me ,don't suffer in silence things will improve, thanks again Matt.
Brilliant video Matt. I’m glad you spoke about it because this conversation needs to be normalized. I’ve tried making videos about this topic before and I’ve gotten so much backlash from people getting angry about it. It’s like it’s taboo but you explained it all in a very brilliant and compassionate way . Kudos
Please look up the Steady Coach on RU-vid. You can actually cure these conditions by retraining your brain to stop perpetuating them. I am currently in that process and it’s helping so much
Hey Matt another great video and a important message I still can’t believe you are symptom free given me and so many others much hope and reassurance are you able to go into busy environments again like nights out or busy work environments without getting symptoms like headaches migraines dizziness or visual zig zags?
Thanks Water. Yes, myself and may others are symptom free, and you will be too. Yes, I am able to go into them. I wouldnt say it is my favourite thing to do but I can put up with it! I obviously couldnt when I was chronically poorly.
No I don’t have lingering symptoms. If I have a couple of poor nights sleep, for example I’ll notice slight symptoms- but they go as soon as I get some rest 😊
A cure in my mind would be it going away after treatment and not requiring any further meds, mitigations etc. So, I dont think it is a condition that is cured. But it is possible be 100% better (with ongoing mitigations keeping you that way).
@@laurenbaldwin6068 Check out my other videos, Lauren, they explain in detail how I got back to normal. Right meds, tweaks to lifestyle and FL 41 specs were my saviours! Yes, I felt dead. I once asked my Mum if I had actually died and if I was in some sort of hell.
