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Sunflower Syndrome: Patient Experience 

MassGeneralHospital
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14 окт 2024

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Комментарии : 7   
@HappyWarrior888
@HappyWarrior888 7 месяцев назад
Great presentation...Very thorough!!! 😊
@jonathonpankhurst3866
@jonathonpankhurst3866 2 дня назад
I think my 7 year old may have this. Any suggestions on support/info in Australia?
@leeannebanks9761
@leeannebanks9761 8 месяцев назад
My daughter was diagnosed with sunflower syndrome last year x
@brielleajveve1967
@brielleajveve1967 2 года назад
I’m so thankful for this video because like both of you my daughter was just diagnosed last year but her neurologist doesn’t know how to treat it so we’re at a lost. Her meds are not helpful but want to know what are they giving you and is there a support group? We’re in California. Thank you 🙏
@annelorelagae3771
@annelorelagae3771 2 года назад
hey, my daughter has also this syndrom. if you want you can contact me
@mariahfonseca8899
@mariahfonseca8899 Год назад
My daughter was diagnosed about 4 years ago. She’s been off and on medication and is now currently off because we feel like it just doesn’t work and those side effects were making her feel lousy. She is almost 14 and starting high school soon and I’m so worried for her.
@mariwashere3191
@mariwashere3191 7 месяцев назад
I have it and your daughter and I are really close in age, I just like knowing I’m not alone
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