Care Partners have an essential role in the lives of their loved ones with Ataxia. In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey.
Ataxia is a rare neurological disease that can have a wide array of genetic origins. For more information on Ataxia, please visit our website: www.ataxia.org
Become a Free NAF member! bit.ly/JoinNAF
Follow us on Social Media!
NAF Facebook: / ataxiafounda. .
NAF Twitter: / naf_ataxia
NAF Instagram: / ataxiafound. .
NAF Subreddit: / ataxia
About the Speakers-
Panelist 1: Marian McDowell is the mother of an adult son with Friedrichs Ataxia. She has a degree in early childhood education and had a career as a primary school teacher. She worked with adults with Learning Disabilities for many years after she retired from teaching.
Panelist 2: Suzanne Martin is a wife and mother of two adult children. Her 26-year-old daughter was diagnosed with a rare form of cerebellar ataxia from a non-inherited gene mutation. Since her daughter’s diagnosis in 2021, she has become an active member of NAF. She is involved with fundraising, advocacy, and support groups.
10 июл 2024
