Surviving everyday grief and the loss of a child with zellweger syndrome 

Hi Suzanne, I stumbled across your video. My deepest sympathy goes out to you and your family. May God give you all peace and strength during these difficult times. Words cannot express how sorry I am for the loss of your beautiful son, Jacob. You’ll always have an extra guardian angel 👼 by your side ALWAYS. I also lost a child, my only child - 8 months ago, so I can relate to your pain - it’s a pain like no other. Thank you so much for taking the time to make this video and sharing your story. You and your family will be in my thoughts and prayers. 🙏

I understand very well what you have been through, because my child has the same illness as your child. he was born on 12/28/2019 and he died three months later on 6/4/2020. Now I just gave birth to a baby girl and she behaves just like my first son. I am very sad now and think that I will lose her again

My son has Zellewegers Syndrome. I live in Kirkland. I’m alone too