This race has become a tradition in the Columbia area while it supports a great cause and promotes awareness to Ectodermal Dysplasia.
Ectodermal Dysplasia is a rare inherited genetic disorder that affects 1 in 17,000 individuals worldwide. It is a multisystem disorder that typically affects the hair, teeth, nails, sweat glands, and skin. The primary feature of HED is lack of or diminished sweating: hypohydrosis. The National Foundation of Ectodermal Dysplasia (NFED) is a nonprofit organization that helps and supports families affected by HED. They have been so helpful to the Duke family since the diagnosis of their son Nicholas. Their mission is to empower and connect people touched by HED through education,research, and support. Their vision is to be a recognized leader among health related nonprofit organizations and will be known for providing comprehensive services with loving care for individuals affected by HED. NFED will help individuals and families benefit from early diagnosis care, and will continue to be there throughout their lives. Ultimately, a cure will be found and NFED will be the force behind this cure!
Song Information:
Song: Jim Yosef & Shiah Maisel - Slow Down [NCS Release]
Music provided by NoCopyrightSounds
Free Download/Stream: NCS.io/JSSlowDown
Watch: • Jim Yosef & Shiah Mais...
#sweatitout #runningvideo #runninghighlights
7 сен 2024
