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A teenager in India has broken her bones over a 1,000 times due to a rare condition which means her bones are so weak the slightest noise causes fractures.
Sabal Parveen, 18, a student, from Bhagalpur, in Bihar, northern India, suffers from Ontogenesis Imperfecta, a rare genetic disorder which affects the bones and leaves them break remarkably easily.
The severity of the disease has meant that Sabal has broken 90pc of the bones in her body.
She said: ‘I don’t want to call myself disabled because I have the will to be better, my brain is functioning just fine, but my problem is that I cannot move. My body let’s me down. I cannot eat, walk, move, sit, or sleep on my own. My parents help me with everything. It’s a nightmare. No one can understand my frustration. Everything seems lifeless when you cannot do anything on your own.’
Sabal was born normal but when she was 20 days old, doctors noticed changes in her body.
Mother Ghazala Parveen, 37, a housewife, said: ‘She had extremely thin skin from birth but after a couple of weeks doctors told us she had very weak bones. She was given heavy doses of calcium as well as other medicines but her issues only increased with time. We watched as she slowly got worse year by year.’ Ghazala nurses her oldest daughter of six girls, 24 hours a day. From the moment she wakes up in the morning until the last thing at night. But Sabal is a strong and refuses to be a patient.
‘I hate that I’m having to rely on my mother,’ Sabal admitted, who is on a high dose of pain killers daily. ‘I want freedom like other girls my age, like my sisters. My body is like a prison. ‘Now a days I take happiness from little things in life. I rely on small things to keep me entertained.’
Videographer: Faisal Magray
Edited by: Tanzeel Ur Rehman
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28 фев 2017
