The Benson Family Story 

We have two Grandsons that have Batten Disease and both are blind!! We Love them with all our Hearts! God Bless Them

I feel your pain, it is heart breaking to see children suffer.

I cried for Christiane. So sad.....

My prayers are with this family and all the families who are having to fight this battle with their child may god bless and be them all may he give them the strength and courage to get through this and may a cure be found for all these sweet precious children I lift them all up in my prayers 🙏🙏

Hi. I have cerebral palsy. I came across this whilst doing research for my page, and your video is great for spreading awareness of rare diseases. I also try to spread awareness of conditions other than my own. I've shared the link and your daughter is cute.

I shared this video on my facebook to continue my on going fight to spread awareness of this dreadful disease

Love and hope. God bless.

I know someone with Batten Disease she is now fully blind & is getting a wheelchair. She said she's excited because it's going to be hot pink :) God bless you good people -3

But I read where they have made great inroads with medication to slow the progress of this cruel disease. I pray they can get it on the market soon.

keep on fighting for the cure!

Millions and Millions o dollars are spent on social programs: Welfare Section 8 Housing EBT Cards Free College Free Groceries Free "Rent" Free Childcare etc. That money *Tax Money* should be used to find *CURES* for children. Nothing will change unless We the People rise up and demand that our children come first. They are our future. May God Bless this family.

I used to think I had this disease...I wanna spread awareness of this heart-wrenching disease. I know that kids like me with this disease will be cured someday. And I can't wait for that day. Lots of love, Ashley ❤️

I also have a daughter that has this Batten disease and i hardly get to see her all i hope for is for her mom to snap one day and see i want to be there for my daughter i she brings her every now and then but i wish i could be with her at least everyday.... And the sad part is she has a little brother and sister that love her allot if there is any people out there with this disease im sorry and my prayers are with all you...... God is watching over them....

❤

Sad

han pasado muchos años.... y me imagino que diarimente...Su imàgen y millones de recuerdos vienen a sus mentes.. Saben.,..DEJENLA....viajar junto a Dios....

This is the video which inspired my latest Novel. "A Quest for Skye." Please watch and please help support a cure for Batten Disease and all rare diseases . We can do it. We will do it.

So cutee

More funding for children’s diseases research will help find a cure

Isn't there a test to see if you carry the gene before having children?(for our genetic disease we can get tested at 18)

Very btautivie

So sad that everything in life is just about the money.

Is she still alive?