I am thankful I came across your educational video! It's been 12 years, and still yet no answers. I have had MRIs in the past but have only shown degenerative disk & joint in lumbar & cervical since age 32. It was June/ July every year warm season begin and the same numbing, tingling, shocking, and pain on either left or right side. I have not been able to see well since 2011. Everything is blurry within arms length. I suffer from optical neuritis in my left eye., and I'm here because I'm trying to find answers. Last week, I explained all my symptoms to a nurse at the hospital doing my stress echo, and she suggested I see a neurologist because my symptoms and new ones present MS. My new symptom is the squeezing around my ribs. She was diagnosed 5 yrs ago, and she had the same as me and was diagnosed 5 doctors later. Be well Im glad I found your channel 😊
@@akajoviix Thank you so much for being here and sharing your story!! ❤️ Please don’t stop searching for answers and also try to test different things to see how your body is responding. For example, regarding food, without focusing strictly on what is healthy “in general”, try to see if some ingredients make things worse or better for you. For me what plays a MAJOR role negatively is ultra processed and many processed foods, all sugars (besides natural ones such as fruits and honey), alcohol, products with lactose, I would say gluten but then also non-gluten solutions impact me negatively, and more. Also not enough sleep makes things worse. Some stretching exercises make like electricity passing through my body the next day. My menstrual cycle impacts A LOT my symptoms. Also if I am upset or stressed everything goes bad. When it’s too hot, I under function in all levels. But when I know what is helping and what not, this information becomes amazing tools! So, be a detective of your body and see what impacts you positively and what negatively. Knowledge is very powerful!! (I will definitely make a video on this!! 😆)
Thank you so much!❤️🙏🏽 I am doing better than I have ever hoped and always search for new healthy paths to feel even better 😊 I truly hope your journey has been smooth so far 🫶🏽
😮 Lucie, your presentation simple blew me away. 🎉 TY ‼️ for THE most thorough, brilliant, successfully- communicative, yet HUMAN, kind, & humble. From a now 72-year-old S. CA woman retrospectively MSer since age 14 but no diagnosis til 1996. Blessings ❤. When's your book 📖 publication date?!
Dear Jennifyr, Thank you so so much for your words that went straight to my heart!! ❤️ I bet you have a very powerful and inspiring story to share as well. I send you all my love and appreciation. I hope your MS and overall wellbeing are good. 😘
I am 100% certain i have MS, but I havent been diagnosed, however but I think being 65 years old is going to be my biggest obstacle. I think medicare will preclude thw treatment that i would get if i was 30.
Hi. I was diagnosed in 2015, although my symptoms began in 1998. If you haven’t contacted your doctor, please do. I don’t know your symptoms but whatever they are, self-diagnosis is not a good idea. Keep in mind that MS symptoms vary widely, so what you may see in MS patients on RU-vid may be very different from your experience.
Hi Connie, you must think if it's important to you to get some closure if indeed you have MS or any other condition. And then your doctor will guide you. Of course, MS or not, there are always things you can do to feel better. For me what has helped me so much are proper nutrition, rest, physical exercise and many more things which I will soon share on this channel. Please feel free to reach out to me at any time even if it's for a simple human to human exchange! contact@mslifecoach.com All the best to you, Lucie
Me too. I was told by one doctor after viewing my MRI that I had loss of Myelonie in my brain . I was in my late 50’s then. At 65 I was diagnosed at ER about my Rhuemtoid Flare. I was 65. . My gait is worse than ever. At 70 now just had an MRI . I’m in a Wheel chair now. Curious to see how many lesions I have now?
@@1969WasYesterday0:09 TODAY 0:09 0:09 Facilitate Research in Venous Cerebrospinal Blood Flow Treatment/s, as Baseline Primary Care Option Treating Neurovascular & So Called Autoimmune Disease! #CCSVI XXXXXXXXXXXXXXXXXXXXXxXXXX Many feel and KNOW, so called Multiple Sclerosis is a vascular mechanical issue NO drug, treatment, or therapy can solely rectify! #CCSV Choose what's right for you! I have a history of Endothelial Dysfunction, a pre-curser to Multiple Sclerosis, as to the newly confirmed Causative factor CCSVI. As well, I have had a noted Blood pressure related irregular microalbumin count. AND with a lifetime of hampered Blood supply of Nutrients and Oxygen to every Cell in my body. Sheep Dip! I am thin 5' 8" don't gain weight and am convinced, if I would have had a lifetime (thus far) of better Blood Flowing. I should be 6' + tall weigh 180-190lb, and I could be just as Handsome and Charming. Being positive of that and knowing that corrected my Circulation now is my best option for Longevity and Quality of life. Knowing that as much that if so called Multiple Sclerosis runs its course, every Season change can see the introduction of new SymptoMS, and the possible heightening of existing SymptoMS! Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in 4Veins are not widely available. #CCSVI CCSVI has been Scientifically confirmed to be a causative factor in so called Multiple Sclerosis. Should the treatment of CCSVI be widely available even if it can alleviate symptoMS of Multiple Sclerosis! @ms_matko history of Endothelial dysfunction more recent irregular microalbumin count seemingly needing answers to questions yet to be asked 101% CCSVI study needing Peeps on right page of History Science Knowledge and Progress! #CCSVI @ms_matko #CriticalHealthcare_Research Hi! Possibly take an interest in Neurovascular disease Longevity Quality of Life Depend! #CCSVI #BloodFlowMatters Circulation Issues? Can you relate? Do you know about #CCSVI and #neurovasculardisease? @ms_matko FB Group: MultipleStenosisSociety With a history of Endothelial dysfunction a precursor to the circulatory Vascular cause of MS and Plays part studies show43 other Neurological Afflictions Including Alzheimer's. Have also have had a more recent Bloood pressure associated irregular microalbumin count. Seemingly needing answers to questions yet to be asked? #CCSVI #BloodFlowMatters #STROKE #OriginalResearch: Reduced #albumin levels (≤3.4 g/dL) are associated with higher risk of early #cardiovascular events and death in patients with ischemic stroke; analysis based on federated health research network #TriNetX. #AHAJournals ahajrnls.org/4a315yO facebook.com/share/p/YFCabx3AmQRadarF/?mibextid=oFDknk Dying for a cure , MS so happens if you hadn't noticed apparently an Individual undertaking Venous Angioplasty treating CCSVI can require up to 3-4 treatments to notice any impact. Even if a miraculous outcome is noted Symptoms can return and an additional procedure may be a benefit! Fighting the Neurology firewall @ms_matko you can concur certainly! So happens Dr. Zamboni stated CCSVI is a significant causative factor in the Symptoms of so called Multiple Sclerosis and treatment of the recognized Medical condition needs more research as it is known miraculous results can often be noted why it is Death knell of MS autoimmune THEORYHYPOTHESIS! MINIMALLY INVASIVE so happens Dr. Zamboni stated that individuals undertaking Venous Angioplasty treating CCSVI have the procedure inside ones own jurisdiction as part a clinical trial. Flghting for treatment of the cause of M$ Symptoms Organizing 40 Million Canadians demanding research into our Blood pressure/Circulation issues be addressed and treated immediately in CANADA! #CCSVI @ms_matko twitter.com/ms_matko?t=iNqfsHvkdnDnpcTqdl5oCg&s=09 As long they stuff us with palliative vital organ destructive drugs we will beAll destined to die guinea pigs of nowhere. Likewise until scientific societies begin to collaborate constructively to heal a patient rather than make him survive hardship losing dignity right to life. If you hadn't noticed "The extension of disability isn't stopped by the use of drugs for MS, which is based on the MS autoimmune hypothesis. Rather the disability is associated with the loss of brain volume, which is correlated with the loss of gray and white matter" So happens CCSVI is a MINIMALLY INVASIVE TREATABLE Congenital Science Confirmed Recognized Medical Condition studies show causative factor so called Multiple Sclerosis and role/part 43 other so called Neurological Afflictions Including Migraines! SymptoMS often ease/disappear including fatigue, vision, bowel and headache in the CCSVI angioplasty group #Symptoms often ease/disappear! Collaboration Neurovascular Disease Research! #CCSVI FB Group: MultipleStenosisSociety t.co/YYPIA4tRuM An exciting new RCT shows improvements of Clinical Functional Measures in multiple sclerosis following PTA. Despite the little sample fatigue, urinary urgency, headache, cognition are significantly better in the PTA arm. FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/permalink/1547908968728729/ HELP Facilitate Research Cerebrospinal Venous Blood Flow Baseline Primary Care Option Treating Neurovascular Disease like Covid-19! Longevity Quality life depend! @ms_matko #BloodFlowMatters #LongCovid 'Fluid leaks from small blood vessels and collects in tiny air sacs in your lungs so they can’t fill with enough air' #microbleedings #BloodFlowMatters So happens CCSVI is a MINIMALLY INVASIVE TREATABLE Congenital Science Confirmed Recognized Medical Condition studies show causative factor so called Multiple Sclerosis and role/part 43 other so called Neurological Afflictions Including Migraines, Asperger Autism, Dementia/Alzheimer's, Aphasia, Optic Neuritis, Tinnitus, Transverse Myelitis, Parkinson's Disease, Lyme Disease, Meniers Syndrome, Ehlers-Danlos ect., Ect., ECT.! As much the unproven autoimmune theory so called MS is being referred to as a slow Stroke! #BloodFlowMatters Keep in mind! Supplying Oxygen and Nutrients to every Cell in a Body, Blood circulation, including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! Nothing else matters! Science!!! FB Group: MultipleStenosisSociety facebook.com/groups/493935520792751/?ref=sharec Apparantly nothing else matters critical Healthcare research facilitate collaboration defining the path forward establishing the understanding and treatment of Neurovascular disease organizing unified clarity in Science knowledge and progress! #CCSVI 'Fluid leaks from small blood vessels and collects in tiny air sacs in your lungs so they can’t fill with enough air' #microbleedings #BloodFlowMatters So happens CCSVI is a MINIMALLY INVASIVE TREATABLE Congenital Science Confirmed Recognized Medical Condition studies show causative factor so called Multiple Sclerosis and role/part 43 other so called Neurological Afflictions Including Migraines, Asperger Autism, Dementia/Alzheimer's, Aphasia, Optic Neuritis, Tinnitus, Transverse Myelitis, Parkinson's Disease, Lyme Disease, Meniers Syndrome, Ehlers-Danlos ect., Ect., ECT.! As much the unproven autoimmune theory so called MS is being referred to as a slow Stroke! #BloodFlowMatters Keep in mind! Supplying Oxygen and Nutrients to every Cell in a Body, Blood circulation, including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! Nothing else matters! Science!!! FB Group: MultipleStenosisSociety facebook.com/groups/493935520792751/?ref=sharec Apparantly nothing else matters critical Healthcare research facilitate collaboration defining the path forward establishing the understanding and treatment of Neurovascularular disease organizing unified clarity in Science knowledge and progress! #CCSVI Establish Venous neurovascular disease research Including Dementia/Alzheimer's! Help in cerebrospinal Blood flow treatment/s as a primary care treating Neurovascular Disease like Alzheimer's and so called Multiple Sclerosis! #CCSVI #BloodFlowMatters Offer For You EDUCATION IS KEY TO CHANGE! Save MS Healthcare Facilitate make available research Cerebrospinal Blood flow Impacting Neurovascular & Cardiovascular Disease! #CCSVI is A congenital Sci CONFIRMED recognized Medical condition CAUSATIVE MS Symptoms & role/part 43 other SO called Neurological afflictions studies SHOW! WORLD CCSVI AWARENESS May 3 - 10 Multiple Sclerosis Healthcare Game changer when the cause of the Symptoms of so called MS eliminated! #CCSVI HELP Advocacy flghting for treatment cause of M$ Symptoms organizing demanding research in Blood pressure/circulation issues be addressed and treated immediately! #CCSVI @ms_matko If your veins are blocked they should be opened if you have SymptoMS or not! So happens CCSVI is MINIMALLY INVASIVE TREATABLE Congenital Science Confirmed Recognized Medical Condition STUDIES show causative factor MS Symptoms role/part part 43 other SO called Neurological Afflictions! HELP Save MS Healthcare Facilitate make available research Cerebrospinal Blood flow Impacting Neurovascular & Cardiovascular Disease! #CCSVI is A congenital SCIENCE CONFIRMED recognized Medical condition CAUSATIVE MS Symptoms! Q: @ms_matko twitter.com/ms_matko?s=090 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
You have a very nice wisdom and energy. I have a new neurovascular autoimmune dissase and i am trying to get used to my self. I have neuropathy disautomia and burning feet and hands in particular but it is not the worst compared to other patients
Thank you so much for your message and wonderful words!! I used to have burning feet and now just sometimes. What has made a huge difference for me was the radical change of diet. In case you want to try: No sugar, processed, alcohol, most cheeses. I would say also no gluten but any gluten-free version is still a problem for me. So I just stopped eating any bread, wraps, pastry, pasta and stuff like that. Just in case, I have started a video podcast also in my RU-vid channel, here, and on Spotify. It's called Endless Opportunities - Life with MS and ADHD. I focus on life with neurodiversity and auto immune conditions. I wish you all the best and I hope you will stick around!
My first symptom happened when I was about 50. It felt like there was cell phone on vibrate in my foot. That was 15 years ago. Things have gotten progressively worse.
Thank you for your comment! This is completely understandable to me. When something like that happens to us we need to find out again and again who we are. Changing could also mean evolving! I truly wish you all the best!!
Constant pain on left side of body neck shoulder,arm my left shoulder swollen an hurt an lower part of arm feel like someone punched me arm fingers go numb can't sleep on left side have to lay on back
I have TMS I got it at age 14 now I’m almost turning 25. I live in Davis CA my tumor was in the middle of my brain stem you may be my friend if you’ll like.
Hello. I’m trying to find someone who can help me find what I have. I thinking that I have MS because I have a lot or I can say all the symptoms of MS but because I have another rare disease that can help to have a Neoro disease they are losing time with the other disease. Can you tell me the name of the doctor of France?
Hi Filipa, I am so sorry you are dealing with many health issues at the same time and still searching for some answers. It's not an easy phase but please stay strong. Unfortunately I don't remember the name of the doctor as it was 22 years ago but the hospital was in Aix-en-Provence, France. If I find his name, I will write back to you - in case he is still in practice. In the mean time, please, take the best possible care of yourself, eat well, sleep well, stay away from too much heat. Stay out of sugar, processed foods, alcohol, because they cause inflammation to the body and this is our biggest enemy. Also, focus on the quality and quantity of your sleep. No matter the health condition(s) you have, reducing inflammation and giving your body what it needs could make a HUGE difference. I truly wish you all the best!
Hi Lucie. Can't you fit a small safe sturdy shower chair and not stand in shower? That's what I have for many years. Earlier I wrote general introductory hello! Hope you received! "esther"
Hi Esther! I am so sorry I missed your previous hello...🙁 Your idea is an awesome and safe practice. I definitely need to get one of those shower chairs! Thank you so much for your input ☺ I am sending you many greetings from Switzerland towards wherever you are located! ❤
@@luciepetrelis Hi Lucie. I am 77f nyc.ppms DC 1989. Can walk a bit using rollator, eyes gone, bladder very big problem. More later. I will be intouch. Your history quite difft. You must be RR?
