Center for Endometriosis Care's Dr Jeff Arrington and The Endometriosis Summit's Dr Andrea Vidali talk standards of care for endometriosis, informed consent, and the basics of where to begin with endometriosis.
I have had chronic pelvic pain for 25 yrs. On a good day, I can be very active until a stool sits on either a nodule or compressed nerve and therefore my pain is triggered. If I have peristalsis of stools in my sigmoid colon, it triggers pain. If my stool is lower in the bowel and no peristalsis occurs, I don't have pain. Surely, if someone removes the mechanical trigger, my pain may reduce overtime? I can't go on living like this.....the pain is exhausting and even though I've done gynae physio, keep my pelvis as relaxed as possible....work in the garden on all fours on a cushion and don't think about pain.....yet the mechanical trigger continues. I was stage 4 , bowel endo, cul de sac, sacral ligaments, and had radical hysterectomy for adenomyosis. I haven't had further surgery since I was 26 yrs old....due to lack of experience of surgeons in my country......and only offering me Lupton or botox injections. What are your thoughts? I'm an ex nurse, and have researched endometriosis most of my life.....so I understand medical talk. Joanna Massey. I'm 53 now and fed up with having pain everyday.
Exactly my daughter was 17 18 on orlissa! Scariest drug ever! And she had surgery one year after first surgery and in that year 7 months of being on orlissa and she still had a 3 hrs surgery for endometriosis.
"Remove the insult". If endometriosis is not retrograde menstruation, what exactly is it? A tumor? A growth? If it is a mechanism how is it defined in physical terms? What is the inflammatory insult itself? We know what it does, but what is it? How can it he removed?
Perhaps you should explore the channel a little more. Endometriosis is not retrograde menstruation. Almost every single one of our videos discusses what endometriosis is and how to manage it
@@theendometriosissummit5427 You mention excising the mechanism causing endometriosis. What is that mechanism exactly. You are quite clear surgery is the best way to treat it. What exactly are you surgically removing? You are clear on the impact, clear on what pills treat, but not exactly what you are removing.
Sorry, after listening, my previous question seems stupid, and I can't edit it. So the main point is that endometriosis is not a period gone wrong; that is, it is not the menstrual lining going back into the body instead of monthly dispelling itself.
I do not think those women in Mali were not feeling pain. They just had no other options but to walk miles and miles. Desperate people do what they need to survive. Of course they are living in pain!
