How refreshing to hear Professor Iwasaki plainly say that "respiratory viruses" can affect many organs! I have commented many times about "unknown" "really tough" viral illnesses that predated COVID. A basic pattern was these illnesses started with mild respiratory symptoms and about 48 hours later intestines were affected. Neurological symptoms followed for many and a number of people never fully recovered after that. Disabling sequelae after viral infections are not new but until Long COVID, doctors did their best to deny such could happen. Thank you, Gez and Professor Iwasaki!
Excellent comment! My personal experiences and that of others -anecdotally - matches the chronology you describe. If folks are truly ill due to either Covid/SARS COV2 or following the mRNA injections, it's already established that the S-protein travels through the body via the blood and seeks to attach to ACE-2 receptors ANYWHERE in ANY ORGAN. ACE-2 receptors are found in epithelial tissue, the liason tissue between blood vessels and organs. Therefore this/these are diseases of the BLOOD. And disruptions of the IMMUNE SYSTEM, as the messenger RNA retrains the innate immune system to focus on only this one pathogen. To the detriment of other immune readiness. The intestinal organs as both a neurological and an immunological "command center" are clearly involved. 🤓
I believe CHRONIC STRESS is one of the most important factors as to why people develop Long COVID, Chronic Fatigue Syndrome/ME, Fibromyalgia, Chronic Lyme Disease, MCAS, and POTS. Eliminating the Chronic Stress root cause is required for treatment and prevention of these diseases. If the Long COVID patient has reached the point where some movement is also possible, stretching , light yoga, mild exercise, such as a walk in Nature, may help improve Sleep, further reducing Stress. The JUST ROB Channel offers Polyvagal exercises to calm the Nervous System and other unique information. Loss of a Loved One, Divorce, Loss of a Job/Financial Security, a Traumatic Accident or Childhood Event, Surgery, or Athletic Overtraining are all examples of Chronic Stress. But one of the WORST Chronic Stresses is if you Believe you will get Very Sick or Die from an illness. A Type-A High Achiever/Perfectionist Personality typically will place healthful activities, such as getting a proper night’s sleep, as secondary to accomplishments. Type A’s will often want to quickly resume work and exercise, rather than rest and fully recover. An acute infection, such as COVID-19, can be merely the Trigger to the complete breakdown of an ALREADY Compromised Immune System from Chronic Stress. Once the breakdown occurs, secondary infections of other viruses (such as Epstein-Barr Virus), bacteria, molds, protozoans, and parasites that were FORMERLY being held in remission will now resurface. There is also little innate Immune System response to stop any NEW infections. The exacerbation of the effects of Environmental Toxins, Autoimmune Diseases, Allergies, and other Comorbidities may further complicate the disease and make it unique to almost EVERY Long Hauler! 🙀 Chronic Stress suppresses the Immune System and Digestion, making it more likely to develop Immune System dysfunctions, such as MCAS, and poor absorption of essential nutrients, leading to deficiencies that can cause issues like Leaky Gut. A deficiency in B-Complex Vitamins can lead to Leaky Gut as well as a Leaky Blood/Brain Barrier. A leaky BBB will allow pathogens and foreign proteins into the Brain, where they may cause inflammation, leading to Dysautonomia, Brain Fog, Loss of Memory, Headache, Depression & Anxiety, Chronic Fatigue, and other neurological symptoms. A B Vitamin deficiency will also make you feel more Stressed, and the primary objective is to Reduce Stress. Deep Sleep is the ONLY Time the waste products of inflammation and normal metabolism are removed from the Brain, so reduction of Chronic Stress to allow a Good Night’s Sleep is important for treatment. Typically, a Change in Attitude is required to reduce Chronic Stress and disrupt the endless repetition of negative thoughts. LifeWithKyle discusses how he uses Meditation to Calm his Nervous System and diminish Long COVID symptoms during a relapse. He offers Guided Meditations that are designed to make one feel SAFE, reducing Stress and avoiding the “Fight or Flight” Immune response. Fasting is a good Lifestyle Change to help restore integrity to the Gut and Blood/Brain Barrier as well as repair a dysfunctional Immune System. It gives the intestines a rest from Digestion, allowing energy to be focused on Repair. Fasting is a Stress on the Body, and like Exercise, should be approached gradually, probably AFTER you’ve had success with Meditation and Breathwork. However, one should realize EVERYONE FASTS WHEN THEY SLEEP. The key is to extend the benefits of Fasting into your Waking Hours. You should start with Time-Restricted Eating, gradually reducing the time of your Daily Feeding Window until you are comfortable eating within an 8 hour or less Feeding Window. From there, you can attempt a 24 hour or Multi-Day Fast. Don’t be discouraged if you end a Fast early. You can try again on another Day. Fasting will be easier if you follow a Healthy Low Carb, Whole Food Ketogenic Diet. Dr. Eric Berg can show you how to begin. Eliminating Grains and consuming Nutritional Yeast, a great source of B-Complex Vitamins, along with other B Vitamin-rich foods and supplementing Vitamin B1, will help to restore Intestinal and Blood/Brain Barrier integrity.
"Poster children" for these pathogens that enter through the lungs and can take up residence include tuberculosis and coccidioidomycosis ("valley fever" - a fungal disease). Both can include involvement of much of the body.
Excellent examples! Another of my interests is history and if we think about what was needed in order to survive, even in the last century, there has always been the need, even the morality, for people to get well and be productive citizens again. In the last century in the U.S. there was involvement in one war after another and the need for the populace to pretend to be well enough to be drafted and support war efforts. Then there was the "War on Poverty" and the piecemeal steps toward government socialization. Through the 1960's doctors would tell folks that remained ill after flu for instance, that they were malingering, mental and they had nothing to complain about because soldiers who had seen combat had experienced much worse. Unless we had seen combat, we had no excuse to malinger and complain. Then welfare and disability payments were expanded and I think government was afraid to admit that common flu could permanently damage a significant percentage of those who had it, some so badly damaged that they needed disability payments. At least one of my female friends suffered for years, being told by doctors that she was mental. She began drinking more and more alcohol due to pain and eventually this affected her mind. Then she was OK'ed for disability based upon mental illness. Instead of even acknowledging a suffering person, by all means, tell them they are crazy, make sure to drive them crazy and then feel good about allowing them disability on a diagnosis of mental illness! [Sarcasm intended!!!] @@flagmichael
Great to hear this relatively old theory (viral persistence) is finally being examined seriously. I hope this is good news for people who've been affected by other viruses as well 🤞 They've been excluded from medicine (and society) too long. Thank you both for the interview and Gez for the video. It's truly a public service!
Such great information here….. Thanks for sharing. As a long haul Covid sufferer it’s nice to hear that the medical community is finally ready to consider that it’s not just “all in our heads.” These symptoms are real…..and debilitating. ❤️🌞🙏
I am not a Long Covid sufferer but it didn't take me long to recognize how serious this problem is. A close co-worker had chronic Epstein-Barr virus infection and I have known people with fibromyalgia. In each case too many doctors dismissed their complaints as having no medical basis. Now we have this virus that may have long term holds on a very significant part of the population, and it *still* is not a top priority. Sometimes I feel we are all caught in the plot of some poorly written novel... who would believe we would ever be so unresponsive?
After spending the summer touring (slowly) around central Europe, I've found my anger again. I want a treatment for this bloody thing. I'm tired, and tired of being tired, and just plain angry and we're being essentially forgotten. As for losing Dr Khan's part - if all parties are able to record locally then if it fails on one end you can always courier the recording across on a hard drive. (May not work when having guests.) Thanks for all your work over the last couple of years - you've been a ray of hope. It's a real joy to see how your recovery has come along, as with many of us we're still not at 100% but it's not as dark as it looked a while back.
@@RUNDMC1 what about our anger at governments who fail us by failing to acknowledge that masks and ventilation work and only focusing on vaccines and hand washing? I am angry that they are contributing to mass disabling events on the daily. I am angry at the lack of science and the denial.
Post-Covid after Infection 03/2020 here (with ME/CFS following, Myokarditis, lung fibrosis, cranial nerve damage and so on). Acutally the first time reinfected. I got Paxlovid three days ago. I am ill (sore throat, headache, elevated temperature) but I feel GREAT in comparison!!! The first time in >3,5 years I have no muscle pain, no nerve pain.... My smelling and tasting is a lot better (every doctor had said to me "the nerve damage lasts too long, don't have hope it will get better, accept it will never return". It HAS to be Paxlovid or my immune system get's with the reinfection something finally right. I'm hoping so bad, that this good developement will persist without Paxlovid...
Hope you are feeling better, Gez and that the energy you have in the video matches your reality. Appreciate greatly you sticking with this topic and interviewing one of the TOP experts in the field. Really interested in the next 2.
So grateful for this professor's analysis. I have been dealing with lond Covid for 1.5 years, mainly respiratory(sinuses, trachea, cough, joints pains, blurry vision and heart palpitations), finally watched some interviews speaking about Paxlovid after Covid, tried Paxlovid ( despite the doctor's resistance) and I had instant improvement, my inflammation cleared, less cough , easy breathing - like I feel finally myself. Thank you professor Iwasaki for what you do. We should never stop trying to find the answer, especially after being lied about the Covid in the first place.
Wonderful to see my two favourite researchers discussing Long Covid. I've long been an admirer of Dr. Iwasaki, and of course, you. I hope the Paxlovid trial provides helpful insiights (crossing my fingers). Thanks Gez!
as a patient who had everything but respiratory problems (bowels, constant fatigue, chills, heavy legs) I feel relieved by what the doctor said. Thank you so much, Gez.
And very happy for this because as a Long Covid sufferer l just got my third infection a week ago and started right away with Paxlovid.And if it is promising in the treatment of Long Covid l will go on taking it. Thank you so much! I will start watching right now🤗
@@samanthapurcell3125 It is a promising remedy against Covid developed by Pfizer but only works when you take it at the beginning of the infection ( that’s the evidence until now), it inhibits the virus replication.
I'm currently dealing with a recurrence of my Long Covid symptoms (not that they ever went away entirely) due to my most recent Covid infection over a month ago. Please let us know if Paxlovid has staved off a flare in your Long Covid symptoms starting from 3 weeks+ after infection.
Hi Gez. Another great video, although we're all still in the dark when it comes to a cure for this terrible illness. Who knows how long it will take for all these trials to show anyting?? I'm looking forward to your next video about the vaccines...👍👍
I've seem to come right, through I'm still very very cautious. I picked up an ecoli infection from swimming in the sea and was put on 2 x antibiotics and strong anti acids for a month. Not sure what happened but I suddenly felt like I started getting days back that felt like my old life!?!? 2 months later my vo2max has climbed by 5, back in the gym, bjj and can run like normal again. Not sure what happened, not that Im complaining! I still wonder what was the actual switch, I was like that for over 3 years. Im still convinced everyone will recover 100% it just takes longer. 98%the world got covid and they all recovered and moved on as normal so it's not like it does something perminant it's more like a tripped switch in your body vs cut wire.
@@sadnagoso-yn6iz hey the antibiotics if I remeber were- Adco-metronida 400mg Clarihexal 500mg One was for a month the other 30 days NOT SURE WHICH ONE WAS WHICH!! Anti acid -omerzole 40mg 30 days (I still got the bottle so I know this one is correct) I remeber thinking I was convinced I had heart problems, but it was more to do with my stomach tube and they lie so close to each other it's hard not to jump to the worst problems. Not saying it is the cure but it certainly was a major problem in my LC health journey.
I've done Transcendental Meditation for 30 years; I do have a sense that it may be the reason why my LC is not off the charts. I do it twice a day, which is the protocol. Most cities have centers that teach it. Myabe, post-covid, they do it online. It's the only meditation technique that requires no effort at all. No stopping of thought is required. I don't think my overactive brain could do any other type.@@RUNDMC1
Other viruses, bacteria, protozoans, parasites, and molds coming out of remission in Long COVID sufferers makes it less effective to search for only SARS-CoV-2 persistence. These other pathogens may be responsible for many of the same symptoms.
COVID originally affected my digestive system.. and my long COVID affected that part too .. then my gastroenterologist said many with long COVID have SIBO bacterial infection.. so he tested and it turned out to be a positive test for SIBO ! Yes long COVID activities other things and maybe it's not the actual COVID infection people may have
An article in the Cleveland Clinic Heath Library entitled “Epstein-Barr Virus” states: “Epstein-Barr virus is very common. In the U.S, an estimated 50% of all children up to 5 years of age and about 95% of adults experience an EBV infection in their lifetime.” “Once you get the infection, it will live in your body in a dormant (sleeping or inactive) state. Certain events can trigger EBV to wake up (reactivate) and make it contagious to others, potentially causing symptoms in the host. Events that trigger EBV reactivation include: - Stress. - Weak immune system. - Menopause or hormone changes.” “Symptoms range in severity for each person diagnosed with Epstein-Barr virus. Symptoms include: - Sore throat and throat inflammation (swelling). - Fatigue or feeling extremely tired. - Fever. - Swollen lymph nodes (a bean-shaped organ in your neck). - Rashes on your skin. - Enlarged spleen and liver.” This is just ONE other virus. The fact that it exists in a dormant state in 95% of the World’s Population shows the extent of the problem. I believe CHRONIC STRESS is one of the most important factors as to why people develop Long COVID, Chronic Fatigue Syndrome/ME, Fibromyalgia, Chronic Lyme Disease, MCAS, and POTS. Eliminating the Chronic Stress root cause is required for treatment of these diseases. Getting out in the sunlight is good advice. In addition to providing Near Infrared Radiation, getting outside is a good Stress Reliever. If the Long COVID patient has reached the point where some movement is also possible, the mild exercise, such as a walk in Nature, may help improve Sleep, further reducing Stress. Loss of a Loved One, Divorce, Loss of a Job/Financial Security, a Traumatic Accident or Childhood Event, Surgery, or Athletic Overtraining are all examples of Chronic Stress. But one of the WORST Chronic Stresses is if you Believe you will get Very Sick or Die from an illness. A Type-A High Achiever/Perfectionist Personality typically will place healthful activities, such as getting a proper night’s sleep, as secondary to accomplishments. Type A’s will often want to quickly resume work and exercise, rather than rest and fully recover. An acute infection, such as COVID-19, can be merely the Trigger to the complete breakdown of an ALREADY Compromised Immune System from Chronic Stress. Once the breakdown occurs, secondary infections of other viruses (such as Epstein-Barr Virus), bacteria, molds, protozoans, and parasites that were FORMERLY being held in remission will now resurface. There is also little innate Immune System response to stop any NEW infections. The exacerbation of the effects of Environmental Toxins, Autoimmune Diseases, Allergies, and other Comorbidities may further complicate the disease and make it unique to almost EVERY Long Hauler! 🙀 Chronic Stress suppresses the Immune System and Digestion, making it more likely to develop Immune System dysfunctions, such as MCAS, and poor absorption of essential nutrients, leading to deficiencies that can cause issues like Leaky Gut. A deficiency in B-Complex Vitamins can lead to Leaky Gut as well as a Leaky Blood/Brain Barrier. A leaky BBB will allow pathogens and foreign proteins into the Brain, where they may cause inflammation, leading to Dysautonomia, Brain Fog, Loss of Memory, Headache, Depression & Anxiety, Chronic Fatigue, and other neurological symptoms. A B Vitamin deficiency will also make you feel more Stressed, and the primary objective is to Reduce Stress. Deep Sleep is the ONLY Time the waste products of inflammation and normal metabolism are removed from the Brain, so reduction of Chronic Stress to allow a Good Night’s Sleep is important for treatment. Typically, a Change in Attitude is required to reduce Chronic Stress and disrupt the endless repetition of negative thoughts. LifeWithKyle discusses how he uses Meditation to Calm his Nervous System and diminish Long COVID symptoms during a relapse. He offers Guided Meditations that are designed to make one feel SAFE, reducing Stress and avoiding the “Fight or Flight” Immune response. Fasting is a good Lifestyle Change to help restore integrity to the Gut and Blood/Brain Barrier as well as repair a dysfunctional Immune System. It gives the intestines a rest from Digestion, allowing energy to be focused on Repair. Fasting is a Stress on the Body, and like Exercise, should be approached gradually, probably AFTER you’ve had success with Meditation and Breathwork. However, one should realize EVERYONE FASTS WHEN THEY SLEEP. The key is to extend the benefits of Fasting into your Waking Hours. You should start with Time-Restricted Eating, gradually reducing the time of your Daily Feeding Window until you are comfortable eating within an 8 hour or less Feeding Window. From there, you can attempt a 24 hour or Multi-Day Fast. Don’t be discouraged if you end a Fast early. You can try again on another Day. Fasting will be easier if you follow a Healthy Low Carb, Whole Food Ketogenic Diet. Dr. Eric Berg can show you how to begin. Eliminating Grains and consuming Nutritional Yeast, a great source of B-Complex Vitamins, along with other B Vitamin-rich foods and supplementing Vitamin B1, will help to restore Intestinal and Blood/Brain Barrier integrity.
RU-vid hates external links, even to prestigious sources, but I found a Mayo Clinic Proceedings paper titled "Prevalence, Incidence, and Classification of Chronic Fatigue Syndrome in Olmsted County, Minnesota, as Estimated Using the Rochester Epidemiology Project". The paper reported (in part): "Studies from 1993 through 1999 reported prevalences of 0.004% to 0.56%, whereas more recent studies have reported prevalence rates of 0.24% to 2.6%." That is, ME/CFS is between 6 and 60 times greater in the study area than it was pre-COVID. By the same token, we could expect at least five out of six cases of chronic fatigue syndrome to be the ultimate product of COVID infection. I realize this is a tough nut to crack, but institutionally we are not trying very hard. To find the paper try googling the quotation. When I do that it appears as the third link.
I'm so relieved to hear the professor say that ots not just a respiratory illness - My long covid experience is more to do with the gut and cerebral - along with fatigue etc However it's been really difficult because Doctors etc all expect me to have respiratory issues - initially yes but that has long since passed me by. Thank you for another fabulous podcast Gez 👏🏻👏🏻👏🏻👏🏻👏🏻Ps I have horrendous tinnitus- a constant whooshing noise in my head 24/7 . I've been given hearing aids in an attempt to help me - sadly they've made no difference whatsoever.
Those are the same LC symptoms I had for over 6 months after a Covid infection last January where I wasn’t offered Paxlovid. It tore me up. But.. I had a second infection 6 weeks ago and finally took Paxlovid… I’m now feeling MUCH better. WTH? Note I’m immunosuppressed with Methotrexate.. but my ANCA or disease markers (SED rate etc) weren’t elevated??? Hello?
@@flagmichael That is a relief albeit a very sad one if you know what I mean - I can't remember a time of peace n quite in my own head space - it's soul destroying isn't it 💔
@@geogu3images Me too. Long hauler since 03/2020. ME/CFS. Very bad state. Actually reinfected, got Paxlovid, I am acute ill with Covid but I feel GREAT in comparison. It's mindblowing. I'm hoping so bad the better state will persist...
Thanks for covering this. I’m legit wondering how t protein tests and such work as well. All the symptoms of LC, but doctor did a "t spike" antibody test, then said he was 99% certain I didn’t have Covid ever… yet seeing some sources say no such certainty in antibody tests exist. Still lost on such accuracy and such, and if need to explore more LC or need to look for other possible problems
Hang in there. Long Covid is so new that the average doctor knows less about it than you do. My experience, with tests and doctors, is that unless you have a flair up things don't show up. We are all pulling for each other to get better, this includes you.
@@craigsawyer6453 the thing is, this was supposedly an expert in it, in Japan. I live here and it has been a just void of any answers, effective treatment, or anything helpful. After that test, which I don’t even know if it was correct, I was almost immediately treated like, "okay whatever we can’t do anything, why are you still here anyway?"
COVID originally affected my digestive system.. and my long COVID affected that part too .. then my gastroenterologist said many with long COVID have SIBO bacterial infection.. so he tested and it turned out to be a positive test for SIBO ! Yes long COVID activates other things and maybe it's not the actual original COVID infection people may have hiding somewhere but something else it caused or triggered
Same here i have Sibo too! Still working with a functional doctor to overcome this! I got Sibo after my first corona infection.... For me it is so difficult to treat. I am taking thing to kill the Sibo, but still with no effect. I also do hypnotherapy for the gut to calm dowm the vagus nerve. I really hope i will overcome this Sibo. What are you doing to treat the Sibo? I am to scared to take Rifaxamine an antibiotc, because after covid i had also high levels of Clostridium difficile i was so sick that i had to take an antibiotic and i got so many weird symptoms, could not sleep for days, anxiety, brain fog. Wishing you so much love from the Netherlands ❤
Thanks to your Video with Dr. Scheibenbogen I am now on LDN. Will let you know if it worked. Thank you so much for your work! We are at least two from the Long Covid Patients watching your Videos in Cologne.
Excellent content once again, Gez, thank you! 😄 So helpful to hear what immunologists are grappling with, and theorizing about, in real time. Sadly, they really havent gotten very far, in 3 years. I would love to hear how other treatment protocols are going, such as with Iver*mectin and/or the early "cocktails" tried by doctors in Vietnam, Korea, India, etc. that leveraged known treatments for malaria, ebola, etc. Perhaps you've done this & I've missed it, will scroll thru the 150 to see! 😊 Love & Hugs from Brooklyn! 💕 🥰 💕
If Professor Iwasaki’s wants more people for her next Paxlovid trial SIGN ME UP. At this point I would try wearing rotting chicken feet and garlic around my neck if I thought it would do something... anything. My neighbor said to me the other day that he thought I should consider this being terminal - Not helpful.
You know as well as I, that good and bad days happen. I am grateful for your comments and wisdom. Thank you for understanding that I was having a bad day and just needed to vent. @@RUNDMC1
Long hauler here for 2 years, ive gotten better in many ways, but my eorst symptom is when i lay down and when i sleep. I vibrate inside. Im pretty ok during the day, able to walk and get around. Does anyone else feel strange trying to rest ?
I get tingling in my extremeties along with fatigue. This mostly feels worse once i’m resting. And the more activity i had the more intense the symptoms are once i am at rest/laying down. Also get aches along with tingling if i really have overdone it.
As a healthcare worker, I’ve had Covid 4 times with long covid that started the first time I had it. I took paxlovid this last time and noticed a huge difference. No lingering symptoms this round.
How are you Gez?! I hope you're keeping well. I've caught up on all your vids, thanks so much for all your heard work and contributions! I hope to see some new vids, they've been keeping me motivated and sane. But mostly just hope you're keeping well.
@@RUNDMC1 No need to say sorry! I'm glad you are - I fully understand how tough it is. There's no pressure from the likes of me, you have to take each day as it comes. You've given so much already. (I just caught the big C again and it's laid me out. I'm officially a total hermit!) You've built a good thing in this corner of the internet, thank-you. :))
@@deel2435 oh gosh, I’m so sorry to hear about catching Covid again :( It really is bloody miserable. You may bounce back ok - I’ve heard a few long haulers get back to baseline quickly afterwards. Fingers crossed!
@@RUNDMC1 I won't bore you with my backstory but in a nutshell I'm old school with ME. I'm in the UK, like you and know that help for us can be...lacking?! Nowadays of the mind that if we were to develop something like MS or Parkinson's we'd have to come to terms with it. That's not to say we can't do everything in our power to feel better and even improve. But the amount of internal frustration that we can experience from letting ourselves down, letting others down etc is exhausting in-and-of-itself. I tend to believe my mind is like a see-saw, one side is full out war with this condition, the other is total apathy. I aim for a middle ground where I'm actively taking steps toward betterment but also accepting this step is where I'm at, right now. Knowing there's others, like you mentioned, that are getting better provides that fuel to keep going. Otherwise my see-saw mind would be in the tank! This and keeping a community of understanding folks around makes a difference. Please don't feel obliged to reply if you'd rather not, I don't expect anything from you. :) Just hope you've got a good support network around you. Btw - there's a YTer that I stumbled across that I'm going to reach out to. He has ME, he was bed bound for I think a decade he said. He's an academic, philosophy (right over my head). Also in the UK. He says he's much better now, though not 100%. I'm thinking of asking what, if anything he's done to recover. Happy to share here, with you, the community only if he's comfortable with me doing so. Regardless, I'll give him a heads up about your channel. Who knows what'll come from it, if nothing else a nice chat that may end in an education about Niche, Marxism and moral philosophy?!
Gez, A big 'THANK YOU' to you and Prof. Akiko Iwasaki. One question...there seems to be some confusion on pronouncing the first & last name of a 'KEY RU-vidR' here. YOU! Can you spell it out phonetically? 😂 Thank you, I know I speak for all of us when I say your efforts on RU-vid with the Long Haul Community is much appreciated. You look happy & healthy. 🎉 Thanks again for all that you do.
Yes, it’s been a mystery G to me too. Gez, you are doing so much for so many. I found LC comprehension, belonging in a strange way, while isolated and possibilities on your channel. Look forward to every single one and am really grateful with each video. You’ve carved a path for only about a million people!!! Wow!
Nice haircut! Have you trued paxlovid ? Hopefully, this research is one step nearer finding some working therapies.( Dreading this winter in school, poorly ventilated classrooms with kids going off with Covid, hppe to dodge another bullet this time round. 😢)
Gez, i saw an article about "inverse vaccination" where researchers are chanining immune reactive antigens into sugar molecules which thereby train T-Cells to not attack these proteins anymore essentially wiping specific cellular memory. Just wondering if you saw this and maybe what the science says about complexity of something like this being used for Long Covid in the future.
My friend recovered from covid but when he had the first vaccine (astra) the symptoms knocked him for six and didn't go away. Then the second jab he got worse again and has not recovered. 2.5yrs with long covid. No one can tell him why, they won't test further...he's desperate for answers and help.
Much of what you're saying makes sense. Is there any difference between the viral protein remnants and RNA circulating post acute infection and the way that other viruses can stay in your system such as herpes or chicken pox virus? HIV? In my case, the idea of residual infection languishing in certain tissues makes sense, right from the start of infection, also the inflammation they cause. I still routinely must take aspirin to help breathing sometimes. I know it helps reduce inflammation. Thanks and appreciation - please keep me posted on any updates.
So Drs are STILL chasing around for a test which potentially can say you are negative for LC even though you have all the symptoms and differential diagnosis doesn’t seem to be a thing that your GP is allowed to do any more in case they were tempted to go off piste and risk there job! Meanwhile the V Damaged who have a reaction noted on their medical files (as opposed to still going round in circles with consultants who effectively say nothing to see here) there referrals are being cancelled because the have a reaction on their file, so there is, well nothing to see here
Thanks for all you do for us. Is anyone looking into dietary modifications to help with long COVID? I am still not right after 3.5 yrs. But I am improving a bit and i made some major changes to my diet. Be well
Maybe ketogenic diet/low /lower carb diet adding more healthy fats, with enough protein and lots of fresh green salads might be helpful. A diet that supports the mitochondria.
Eating no added sugar and no refined carbs (of course drinking no alcohol), but eating fruits, vegies, wholemeal stuff (and lean meat, dairy, fish) helped me a lot. Hope you get better!
Gluten free, dairy free, soy free, corn free, aip protocol AND low hisitimine here. I react to so many foods now! Research elimination diet to determine what foods you are reacting to, so you can remove them from your diet. Three and a half years here myself, still struggling, but diet had gotten me out of bed and one my feet again. Now fighting pem and doctors who say I'm fine because their tests show nothing. 😥
@@cindyharigel4991 good luck. I know what you are going through. No carbs . Basically carnivore high quality protein. I just added raw milk last week so far good. Trying to heal my gut.
@Gez Medinger, my grandson 21 yrs has Long Covid (got ill in February2023) & now has found out that why he once started getting the "right' treatment that he wasn't getting whatever results or showing progress, so the problem is they did a test and he has a collapsed vein and so the consensus is that he needs a stint put in and so in a few weeks he has to go to Denver Colorado from Cambridge MA. I don't have medical detail information actually from the start, my son whose on overload tells me the basics, so I guess I comment here to vent because I don't even know what to ask and I get that you are not a medical doctor, my grandson really likes Dr Assad Khan. ~ thank you all, though the videos scare the heck out of me I trust your information ~
Very interesting, thank you. So we have to be patient for the results of the study. Meanwhile l will be taking Paxlovid as microdosis on a daily basis (the microdosis as established by Dr. Eugenio Martinez Bravo in Mexico and used in Mexico, Cuba and Argentina).
@@Seagoatsunday l got Paxlovid as a prescription here in Germany. I then applied the microdisis preparation which consists in making drops only from one daily dosis with water and alcohol, then you take the drops on the tongue several times a day. This way you only have the advantages of a drug without any side effects. You can do that with almost all chemical drugs out there. Only the desired effects and no unpleasant ones, if you have an allergy you would also have it with microdosis. But of course not approved by medical mainstream or big pharma. The genius Dr. Eugenio Martinez Bravo did not get any medal from pharma industry nether the medical system although he studied and applied it for almost 30 years, and quite a lot of studies were done by him and other doctors. But that could be the future. Google for his book or a more recent one from two Italian doctors, Marco Santello and Marcella Saponaro, there is a free pdf of Dr. Bravo’s book, but only in Spanish, amd the other one can be found in Italian also on Amazon Italy. But this is not a recommendation for anybody, l am trying this on my own because l don‘t want to wait for trial results in one or two years, my life is short and precious. Maybe it won‘t help at all, but at least l will have tried😉
Thank you, it helps to be accepted with such as longCovid for the people around me and it helps keeping hope for myself. I am so puzzled; should I get the next vaccination or not? I got ill already in march 2020 and for the second time februari 2023. And it feels I am getting more and more limited fysicaly. You give proper scientifically sound information, this is so helpful.
Thank you I too I'm wondering about the vaccination. I reacted badly to having it and think it contributed to my long covid. I wonder if anyone knows about non mrna vaccines? Chat GPT said the following 'Inactivated vaccines: Several countries have developed COVID-19 vaccines based on inactivated or killed versions of the SARS-CoV-2 virus. These vaccines include Sinovac, Bharat Biotech's Covaxin, and Sinopharm's BBIBP-CorV. I wonder if any of these are available in the UK
@@RUNDMC1 Yep, same for me. I had three vaccinations and three Covid infections and Long Covid as the cherry on top. So no more vaccine for me as it didn‘t help me at all…
The “inactivated” virus vaccines still contain the Spike Protein. If it alone has pathogenic properties or causes a more cytotoxic reaction from the Immune System, it would still be problematic to inject the inactive virus systemically. Same for the mRNA vaccines that produce systemic Spike Protein..The current SARS-CoV-2 variants have difficulty moving beyond the mucosal layer immune system defenses.
Is it possible that all the long covid issue is mostly with those who were vaccinated with mrna vaccines ? How come in countries with mostly non mrna vaccines, no significant issue of long covid or micro clots has emerged .
Good conversation. However, at end of the day, this is still all research, reaserch, research after 3 plus years with no definte treatments or trials. Dont keep your hopes up people. This long covid is still a loooonnggg haul!
Hi again Gez. I think it's a shame that Dr Bruce Patterson isn't getting more press about long covid treatment. He's getting results with the HIV drug Maravoric and Prevastatin... I wish someone would help us fast! When I go to any of my doctors and I have more than several, and I bring up the subject of long covid, they won't even acknowledge me. They just don't want to talk about it! Very sad...
The basic problem is that all the trials are just in the data phase. Taking any of the candidates now would be like taking HCQ in the early days of COVID.
Did we know at what tissue temperature did SARS COV2 better replicate ? Why ? Because at TWiV 659 at min29 virologist Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature.
The lymph nodes in my right groin have been enlarged for over 3 years now (also have testicular pain on the right side). I'm in really bad shape. My fatigue is so bad right now. Do you think I have viral persistence or is it autoimmune? Is there something I can try for the lymph nodes? Thanks
I had something similar. I switched to a low histamine diet and drank lots of fluids. When I have flair ups I use anti histamines. Getting control of the inflammation helped me I am hoping it can help you too.
I have something similar: pain in my right groing and tightness around right testicle. I have no idea if it is connected to Covid, but it appeared after my second infection and never really went away. Any way to heal this??
@@user-uu2fz3kq7bYes - have definitely helped. We knew low seratonin was implicated pretty early on but this most recent paper has just brought the knowledge out more widely 👍
How much longer are these Paxlovid trials going to go on? I heard that some of the patients stopped going once the care providers stopped masking (which is INSANE... how could you guys allow that). When might there be enough data to draw any conclusions about Paxlovid's effect on the "flavor" of LC that appears to stem from viral persistence?
Hello. Is there any way at all to get hold of Paxlovid when reinfected with COVID in the UK? I'm pretty desperate to try it as scared of what reinfection could mean. Any other tips around reinfection?
Thank you so much @@RUNDMC1 - I've ordered some. Do you know how soon you have to take it after reinfection? Hoping it arrives soon... and would you recommend trying to get hold of any other antivirals or similar in addition? Thanks again - massively appreciated - you seem to be the only one with actual answers and I'm hugely grateful
@@thejennybean1 Its preventative too, so I’d take it as soon as you’ve been in a risky environment, or as soon as you feel symptoms. Usually takes a couple of weeks to arrive. Vedicinals is purported to have some antiviral properties but I can’t vouch for whether it does or not!
@@RUNDMC1 ah. My partner currently has covid so 2 weeks may be two long unless there's anywhere else I can get it. I'll look into the other recommendation
*This is not a recommendation, just a wry observation!! Do not try to become reinfected!* If you become reinfected with COVID-19 there is a large chance you will be treated with paxlovid.
I remember in the 1980s Chronic Fatigue Syndrome was a leper (so to speak) in medical practice. No diagnostic test, no effective treatment. Fibromyalgia was widely regarded as a hoax. Compared to those days, we are moving at blinding speed toward Long Covid (and hopefully ME/CFS) treatment.
Thanks Gez for your continued videos! I haven’t been here in a while cuz I’m at the “This is my new normal” stage of life I guess. Mine is just inflammatory markers which give me shortness of breath. I just have to pace myself. I know there are those who are way worse. ☹️ But I’ll check these videos out and still praying for a breakthrough in our long covid journey. You’ve truly been a lifeline and just a huge emotional help to me and many others I’m sure! 👏🫶
This is really interesting to me because I've noticed a pattern in my LC symptoms. I can have months of feeling 100%, LC symptoms will return (luckily not as bad as post March 2020) but enough to effect my day-to-day existence and as a result of reinfection, overdoing it, exercise that involves my neck(?) etc. I'll return to acupuncture and within 48 hours will come down with flu/cold symptoms eg sore throat, blocked nose, aching etc until it clears again and ongoing acupuncture helps to clear that latest bout of LC. The last time my acupuncturist commented "it can't be lingering virus surely?" but I'm now wondering if the acupuncture helps release the residual virus? Anyone with similar experience?
@StephanieAlice I do not eat meals anymore I will have raisin bran or poached eggs nuts muffins some sweets ice cream bars love cheese my diet is not normal anymore like it was 2 years ago chicken gets stuck in my throat and well I throw up I do not eat meat anymore thanks for your question
The suggestion is that SOME suffer from viral persistence and will be a big part of the puzzle for them. It may not have been for you! The nervous system definitely implicated in all cases IMO
@@RUNDMC1 Not for me to say if viral persistence is the cause of some LC. I’m by no means an expert. My only concern is that putting the idea in peoples heads that they have secret viral reservoirs of replicating live virus may be contributing to their anxiety and driving their nervous system disorder. I found recovery came very quickly for me once I abandoned the worry that there was some damage in my body from Covid not showing up on blood or imaging tests. To me, the nervous system dysautonomia hypothesis made the most sense, and by working that angle, I recovered. But I don’t know what other people are experiencing or their physiology. Maybe some people do have reactivated EBV, HSV, or viral persistence. I wish everyone recovery.
some are just more delicate🤷and or we will all end up w some degree of damage whatever is your weakness obviously no one can actually stop spreading this crap! 🧠😷
It seems that you appear to enjoy your own voicess... oh marketing long covid handbook. Why not just makes these 20 seconds Long. Instead of having her expound on all the theoretical nonsense that leaves us lost, just say. "Do you know anything for certain yet?. She can say no, and we can go on with our day. 20 seconds max. And I'm a scientist. I hear nothing. The tital is how we treat viral persistence. If that question was answered in the 11:30 seconds I missed it.
If you’re a scientist you’ll know that the answer to a question is often more questions. But they have to be asked or you’ll never find the answer. We’re not at the stage of ‘here’s the name of your drug your GP will give you’. If we were there’d be no point in making these videos.
@@RUNDMC1 sorry I am not a scientist but wasting our time and playing with our emotions is evil U should summarise any important point in a short video Please