First, thank you for your service to the USA, Lydia! Second, thank you for sharing your story. So many doctors still do not realize that pain can be a part of Myositis. Your story, how the doctors dismissed your symptoms as psychological, is all to common with Myositis. Myositis, being such a rare disease, is hard to diagnose. This is why we need to educate physicians and healthcare workers as much as we can. Even you, as a nurse, had never heard of this disease and this is what we hear so often. Your story will truly help others learn more and hopefully understand what we go through.
Thank you so much for sharing your story. I am currently in the process getting diagnosed with Dermatomyositis. taking high dose steroids and worried about what medicines they will prescribe next. It is so helpful to hear others speak about their experience. Bless you!
thank you for sharing your story , 2021 , 7yrs later it stlll impacts us all and is still Relatable in our myositis community, thank you for serving our country , sending love and light your way 🙏