The Parkinson's Podcast Unfiltered: Perspectives on Pain 

Hello to All , the irony of subject of the pain. I got notification and I was struggling to see the message. You my friends are angels I was just coming out of this painful experience with muscle spasms and spinal lumber stenosis . I am still recovering from 5 levels back fusion surgery.

Exactly , when you’re in pain you are not feeling whole because all your focus is how and what else can I do to get rid off it . I agree with you I found myself slowly and get more and more finding excuses because even I felt to go out to meet friends because I don’t want to go out and have the fear that I have one of the scary and painful episode . I don’t want to ruin people good time . I looks at pictures from different events and you can see how my face tell it all .

You ladies blessed having each other to support each other. It’s hard trying took some to your friend people. It’s what you’re going through how PD is uniques in itself because they say it goes when you see one Parkinson’s you seen one.Which is very true but for some reason, healthcare providers are conditioned to write meds as first line of treatment rather than focus on other natural remedies.. I strongly believe that that one Dr with you on the carpet of Loba and all these other medication with their side effect it’s hard to come back out of that you know so it’s I’m just getting mad. I’m just thing mess because the first neurologist diagnosed me, will not listen to me. Today , I am far fond from being able to be meds free 😢😢

Have curling toes that are very painful! It only happens on my left foot. I’ve had Botox shots every 3 months because of insurance. Also I was diagnosed with a tarsal coalition or missing a joint in my left ankle. I never know when it will happen I was diagnosed with missing joint at the age of 40. PD at the age of 75.

As. Ram Das said, we’re all just walking each other home

We talking about how some doctors don’t hear what the patients telling them . I am the epitome of been diagnosed at the age of 47 with no family history either genetic study. I had done with NIH referred to the Parkinson clinic because of the presentation in the abnormality and by the way, this is like the fifth doctor so because my movement sent me to her colleagues who is work in the Busson clinic at NIH because basically they just bouncing me like a football from ❤️doctor to another because they don’t wanna deal with what I’m telling them what all I am dealing with and meds I was given didn’t help in fact worsen my pain and tremors etc . They kept saying no no no no this is not a Parkinson no no no this is not from Parkinson or maybe just orthopedics if you legs did that right after the very first time I took siement but falls on deaf ears, egos because I am not a textbook patient with the Parkinson’s I often wondering if I even have it

Well I just wrote a veritable book, and Windows narrator lost focus when the browser timed out, dropping all of it after I nearly had it all edited. That was about three hours, dancing with the worst editing software options in text to speech navigation ever. No wait. Talkback is worse, on an Android. I constantly question myself like Kat, and am also angry like Heather, about the people conditioning us to constantly question ourselves over and over, and not even acknowledging what all we have actually done for years trying to mitigate our situations and do what ever we can. There is no magic bon bon.