The Questions Campaign- Sara- Turner Syndrome Foundation

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The Questions Campaign video series aims to share the stories of those who live with Turner Syndrome and their caregivers. We hope to highlight the diversity of experiences with TS and help others learn from the stories.
It is an initiative led by the Turner Syndrome Foundation's volunteer Awareness Committee. In this video, meet Sara, a Committee member. She talks about her diagnosis, health challenges, future goals, and more.
Thank you to Sara for sharing your story, and for the Awareness Committee for making this possible. Another thanks to Michael, the volunteer editor of this video, who can be found on RU-vid at / @nondiegeticyt .
This and other TSF programs are only made possible through the generous support from donors and time given by volunteers. Thank you for your support!
Donate: turnersyndromefoundation.org/...
Volunteer: turnersyndromefoundation.org/...
Connect with TSF!
Website- www.tsfusa.org
Instagram- / turnersyndromefoundation
Facebook- / turnersyndromefoundation
Twitter- / teamtsf
LinkedIn- / 2950931

Опубликовано:

19 июн 2024

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Комментарии : 10

@leascrap 3 года назад

Thank you Sara for sharing your TS story. I am 40 years old and was diagnosed with TS at birth. I love hearing the journey that other girls/women with TS have gone through.

@sorayanasser558 3 года назад

This woman is incredibly pretty.

@marli21099 3 года назад

Hi Sara, thank you so much for sharing your experiences and being such a light. I was diagnosed with classic TS at age 16, I’m 21 now and am excited to participate in the campaign as well ❤️🦋

@shannonnoziglia1371 3 года назад

Thank you so much for this, my daughter was just diagnosed as at 6 weeks

@lenorajames920 3 года назад

Hi, i was diagnosed later also - at 17, they were not sure i had Turner syndrome but after a labroscopy and a genetic study, said that i had the components of it - i did not have a growth issue, i had ovarian failure, thyroid failure and anemia (perniscious) since my twenties. I am now 58. I have been on hormone therapy since 17 and stopped about 8 months ago. Having some issues. Looking for a reproductive endocrinologist in the Orlando area, just moved her. Thank you for sharing, and helping others learn.

@TurnerSyndromeFoundation 3 года назад

You can contact the Turner Syndrome Foundation at info@tsfusa.org if you need support, or visit our website at www.TSFUSA.org.

@Devoted2as 2 года назад

Beautiful. Thanks much.

@TurnerSyndromeFoundation 2 года назад

Thank you too! We would like to encourage you to join us here: turnersyndromefoundation.org/home/welcome/join/

@Duakhan7869 3 года назад

Can someone have this same keryotype or someone pls explain me this, I’m 31 weeks pregnant I got this abnormal female karyotype of my baby girl 46,x,r,(X)(p22,1q21)[12]/45,X[51]

@TurnerSyndromeFoundation 2 года назад

Recently a family asked to connect with parents of children with a different mosaicism. If you would like to help, please email info@tsfusa.org. Thank you.