A brilliant, informative and heart breaking interview. Well done to both of you for making these efforts to enlighten the communities, still full of myths and widespread ignorance. Indeed, devasting to hear the limited knowledge within the medical space as well, i.e. offering paracetamol and ignoring the critical need for hydration... Good god!!
I'm also a sickle cell and I'm also having big problems with my hips with they told me i need hips replacement with i can't afford....and it's breaking heart i can't also carry on with my anything in my life my family thinks nothing of me...i feel like killing myself
I'm so sorry to hear you are struggling so much with your hips. I encourage you to ask your doctor about being connected with a support group. Where abouts in the world are you? facebook.com/australiansicklecell/ can connect you with a group of people. - I promise you're not alone. If you're having thoughts of harm, please contact Lifeline on 13 11 14. I promise it gets better
