The Test That Saved My Life - Eosinophilic Esophagitis 

My daughter whom is 8 was recently diagnosed with this after 4 months of eating issues. We found out shes allergic to gluten and dairy. Taking those out of her diet has given us our happy little girl back and she's eating like a champ again!!

Thank you for your post. My 9 year old daughter was just diagnosed with this today. We are at the beginning of the journey. Bless you and thank you for spreading awareness.

Was just diagnosed with this yesterday. I'm being sent for allergy testing, again. Thanks for the video support

Hello! My name is Courtney and I am 17, I was diagnosed with Eosinophilic Esophagitis almost a year ago. I totally understand where you're coming from, it is a hard thing to deal with. It's so good to know that I'm not alone, thank you for posting about it!

I have eoe and I am trying to discern what I can and can't have. Unfortunately, allergy testing has proved confusing for me as my blood work (allergy tests) contradicted my skin prick test. That said, I have taken it upon myself to try the 6 food elimination diet. I've been on this diet for 2 weeks & it does feel like I am having some improvements. Please post more videos about your eoe experience, it helps me to hear from others who live with this condition. Cheers!

I have Eosinophilic Esophagitis and had the dilation done in the ER. Tried the elimination diet myself by cutting milk and got better. I went vegan and have been great ever since. I did not take the Prilosec as anti-acids prevent absorption of calcium.

My son was diagnosed with EOE just yesterday and I am just starting to do research in it. He is only 10 months old. I am very happy that I found your videos. Keep it up! Looking forward to watching many more.

I was diagnosed with EoE almost two years ago but I am one of the weird ones with no known food allergies. I have reacted to pretty much everything, for example rice, chicken, apples, chrisps and pasta. all allergy tests have come up negative and even though I get a reaction sometimes I can go weeks with no problems even eating things like chicken and rice. the advice I was given was basically just chew all food proberly, dont eat on the move and avoid risky foods in public. is there anyone else is my situation?

I was diagnosed when I was 3 and right now I'm 100% complient from the top 6 allergens I was just at the doctor on Friday and I was so sick after it like I usually am I feel bad for anyone who has it bc it is not fun at all trust me you have breathing problems, stomach aches all the time, problems swallowing, and are only limited certain kinds of food consider yourself lucky if you don't have it

I just came back from the emergency room and they did an endoscopy to get a tiny piece of stuck lamb chop out of my esophagus. I'm terrified to eat now. I've only been eating liquid soup. I spent 8 hours gagging and unable to swallow even saliva, coughing the whole time trying to gag it out. By the time they did the procedure on me I was so weak I almost died on the operating table. My breathing kept stopping.

Thank you for sharing this video!! I've had swallowing difficulties for years(food can get stuck for hours sometimes, dry food in particular). Today I saw an allergist and from the skin test it looks like I was allergic to everything, awaiting blood tests this Friday. I saw gastro last week and awaiting endoscopy next month. They both think I have EoE. Bodybodying with EoE was sort of my next question, gonna go watch that now!

Hi! Wow, I had this same shit for years but had no idea. I just experimented and noticed I improved by cutting out grains and dairy, it is interesting that you don't have negative symptoms to oatmeal or other grains. Thanks for teh videos, I watched and liked all of them.

I had a piece of bread stuck in my esophagus for hours - went to the gastro and he said it's probably EoE (haven't had my endoscopy yet). This test seems like the kind of thing I need - something to give me answers without trial-and-error.

thanks I'm suffering from EE right now u help me a lot man, many kids at school don't even think it's real but it's there

Had a piece of salmon stuck in my esophagus recently. After an hour of trying to vomit it out, my girlfriend gave me some olive oil…And it came right out! Definitely not a cure for EOE but it lubricated my esophagus. Been struggling with EOE for 8 years, eating is always scary!

I find your videos interesting and helpful. my young son was diagnosed wirh EoE 2 years ago. We have had allergy testing , he continues on a restricted diet but the only thing that gave him a clean scope was swallowed Pulmicort for 4 months. my son is only 13 ... not too articulate about his symptoms ... it's interesting that you can feel your esophagus immediately reacting to particular foods!

I was diagnosed with that 4 years ago, with the same allergies you have. (I'm 17)

I just got diagnosed with this condition. I now can't eat bread, potatoe, anything starchy, eggs, milk, and more. I don't understand how we all of a sudden can have this disorder. My digestion has suffered a lot the past 9 yrs.

My husband was diagnosed with EoE about 6 months ago at the age of 27. We found out about his diagnosis after an endoscopy procedure to figure out why he had issues swallowing food. I'm glad the gastric doctor was aware of this condition and that he knew how to proceed! His throat is also so incredibly fragile, they attempted to stretch but were only able to stretch just enough to fit the pediatric size camera down. He hasn't had allergy tests done but I definitely want him to. Best of luck to you in your journey.

My Ige tests, showed no allergies to anything but 2 very low allergy (dust mites, mold). Wondered why a Ige test wasnt done with it to see if enough Ige. Another Dr did Igg food allergy test and wondered why had so few allergies. I react to quite a few foods , so was amazed didnt show on labs. Celiac showed neg and enough IgA, but another lav (saliva, showed low SigA). Do much better without wheat or processed foods. (Learned by age 5, cakes were yucky (frosting nauseating and bread part made shaky).

Sensation of a lump in the throat with a bit of tightness very gradually coming on after eating a certain food, goes away sometimes depending on what you do, comes back off and on throughout the day? Sometimes gives the feeling of needing to yawn/ gag a little bit? (No trouble breathing at all) Sometimes waking up not intensely swallowing “mucus” that isn’t actually there but from the lump

Got diagnosed with EoE a few weeks ago (I’m 23). I’ve had issues since I was 8 but it wasn’t up until recently that I begun puking blood. I do have my share amount of allergies, but that wouldn’t explain why absolutely everything can get stuck. Peanuts will apparently kill me, so I haven’t tried eating that. Then there’s soy protein, but I only really feel that if I eat a high enough dosage. Perhaps I should get a new proper allergy test. My last one was when I was around 7, so it’s very likely it may have changed since then.

Do you have to take a PPI such as omeprazole along with avoiding these certain foods or do you just do well on your clean diet? Thanks for spreading awareness!

I was diagnosed with this this year I figured out I had this from years of food getting lodged into my throat like bread lots of meats if I had something like a milkshake in a burger i would feel like I had a pain in my chest and one day I got chick fil a lodged into my throat for twenty four hours it was hell but I went to uva and they solved everything and put me on a wheat dairy eggs and soy diet and it’s all good now

Hi Colm, Thank you for posting these videos. My 18 year old son, who is a long distance runner, was diagnosed with EoE just recently but has been suffering from this over the last 7+ years. What a relief to finally know what it is! Like you, he is allergic/intolerant to many foods - all poultry, fish, and according to the blood tests lots of other common foods. He's been struggling to gain weight and eat more, but as you know it's nearly impossible when your throat is closing up. I will show him your website today and I know he will be relieved to learn from your experience how to live and rebuild his body despite this medical condition. I am curious to know if you are treating your throat with any medication? Our doctor in France has prescribed mixing a Budesinide suspension with honey and swallowing it twice daily to get the swelling down. Thanks again. Good luck!!! Stephanie

Hey there! I have EOE and I found this video and it's nice to know im not alone with this disease! QUESTION! Have you looked into BCAA's (l-glutamine) and how it can help decrease symptoms of EOE? I'm really hoping you can get back to me, I don't know how else to contact you!!

I was diagnosed with EoE almost two years ago but I am one of the weird ones with no known food allergies. I have reacted to pretty much everything, for example rice, chicken, apples, chrisps and pasta. all allergy tests have come up negative and even though I get a reaction sometimes I can go weeks with no problems even eating things like chicken and rice. the advice I was given was basically just chew all food proberly, dont eat on the move and avoid risky foods in public. is their anyone else is my situation?

i have eoe a hiatal hernia gastridis gerd and alot of inflamation of the esophagus they put me on pantoprazole im having some dizzy spells i believe from it have only took it 3 days

I was just diagnosed a couple of months ago but just had the allergy testing done a few weeks ago. Starting fresh on removing the foods I'm allergic to (which is practically everything good lol). Not sure which of the foods is my trigger so still need to go through the process of that. Some foods I was found to be allergic to I don't seem to have reactions to. I go in 2 weeks for the skin test so I guess we'll find out more then

Hi Coach, I have skin allergy test coming up on Wednesday. First, the rashes happened. Now, Im having symptoms of EOE and my throat feels like it’s narrowing! I have a question if I may.. You said that “your diet is so clean.” What do you eat that doesn’t give you any reactions? I appreciate you sharing your story. Thank-you for sharing!

I have EOE too I’ve had it for 3 months or more I had an endoscope yesterday I also have allergies and Azma I’m 12

Hey, did you organise the RAST testing with a gp or was it through the consultant that diagnosed you with EoE? I'm finally tackling this as opposed to needlessly suffering and considered a dietitian but assume a GP would have to organise the bloods?

Hey just got dignoesed wit EoE and wanted to ask are you taking a PPI? Btw great physique you are a true motivation!

Almost everything gives me chest tightness. Though, my blood test doesn't show alergies against them. I also have very severe gerd. Is there any tip how to avoid allergic foods.

Have you tried Dupixent for your eoe? If so any side effects or anything?

Where did you go for your allergy test I need one?

Hi. I was diagnosed with eosinophilic gastritis last year. How many types of foods contains a RAS test? I'm on a strict diet but it wasn't enough. I have to take steroids as well.

Is this a globulous sensation you get when you swallow ? Or pills get stuck now and again? Back of tongue whitesh from like LPR?

I have esophogitis and have been diagnosed over 10 years ago.I haven't done much about it but the first swallow of food always gets stuck.Then i have to cough it up and then i am good to continue eating.Bread is very bad for me and i do soo much better without it in my diet.I don't think there is a cure for this disease.

was this rast test IGE or IGG?

I have esophyolagitce

Coach you take anything for eoe?

parasites cause EOE