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MEET the twins battling a one-in-two-million condition that is slowly turning their muscles to bone. Lucy and Zoe, 30, from Northern Ireland, were both born with fibrodysplasia ossificans progressiva (FOP). The condition, which is so rare that the sisters are one of just three sets of twins in the world known to have it, causes muscle tissues and tendons to be replaced by bone, growing outside the skeleton. Zoe said: "Your body becomes frozen, like a statue." After being diagnosed aged eight, despite the medical challenges they faced, they enjoyed a happy childhood. But as adults, they have become more affected by the condition - with Zoe now requiring a walker or wheelchair to get around. Knowing exactly how the other is feeling means they have forged an unbreakable bond, and often document their adventures together on Instagram, where they are both trying to raise awareness of FOP. Though it is uncertain how the condition will continue to progress in the future, both women are determined to stay positive. Lucy concluded: "FOP is so unpredictable, so all we can do is love life and live life."
Follow Zoe and Lucy here:
Zoe: / a_littlebitoflife
Lucy: / allthingsbeautifullymade
Videographer: Paddy Murray
Producers: Erin Cardiff, Kim Nguyen
Editor: Ethan Edwards
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22 авг 2024
