it's that time of year again! EDS & HSD awareness month comes around quick! I'm back for my 5th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have 27 zebras with 4 different types of EDS and HSD from 8 different countries sharing their experiences of what it's like to live with these rarely understood conditions on a daily basis.
This is the first video in the 2021 series and we are talking about the worst symptoms of HSD, hEDS, cEDS & vEDS. From chronic pain and fatigue to dislocations there are huge lists of symptoms around but I want you to hear from people living with EDS on a daily basis what the worst symptoms they face are.
This video is dedicated in loving memory of Saarah Ahmed who wanted to take part in this series but sadly passed away before she could. Saarah lived with a very rare type of EDS called kyphoscoliotic EDS and she always wanted to raise awareness. Her family want her legacy to live on so please visit the links below to learn more about Saarah & her advocacy work.
/ saarah_ah_
www.newsandsta...
www.thesun.co....
I am fundraising for @TheEhlersDanlosSociety throughout May please head to / chronicallyjenni to donate
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Huge Thanks to Everyone who was involved in this video:
Adriana, North California, USA,18, hEDS, IG: @adrianaedswarrior
Alexis, Alberta, Canada, 20 , hEDS, She/They, IG: @therarewanderer & @ggalexis12 Blog: therarewandere...
Alyssa Maryland, USA, hEDS, IG: @spoonfullygraceful
Amber, Gloucester, UK, 18, HSD, They/Them, IG: @_prisma_art_
Amy Mckee, Yorkshire, UK, 22, HSD, She/her, IG: @voldycat7 YT: / @voldycat
Ayesha, Brighton, 33, hEDS, She/her, IG: @ayeshashasha777 YT: @AyeshaShaSha
Bradley, Victoria, Australia, 29, vEDS, he/him, IG: @veds_zebra
Caroline, Essex, UK, 35, hEDS, IG: @lilcaz10
Catie, Pennsylvania, USA, 25, hEDS, She/her, IG: @lifeasazebra & @sunflower.catie
Clara, Texas, USA, 21, hEDS, IG: @clara_and_arlo
Eleanor, Scotland, 22, hEDS
Eliza, London, UK, 24, hEDS, They/them, IG: @disabled_eliza
Emma, Kent, UK, 27, hEDS, She/her, IG:@ehoughton24601
Georgia, Cardiff, 22, heds, she/her
Jasper, Newcastle, UK, 26, hEDS, He/him Twitter: @queercanthear
Jeannie Di Bon, London, UK, hEDS IG: @jeannie_di
Jenni, Essex, UK, 25, hEDS, She/her, @chronicallyjenni
Jenny, Hampshire. UK, 32, hEDS, IG: @jennycole1998 YT: @JennyCole1988 Blog: jaffacat.co.uk/
Jill, The Netherlands, 27, hEDS IG: @jillhubersmooren
Kate, Northumberland, UK, 26, hEDS, IG: @katestanforth
Katya, London, UK, 26, hEDS, IG: @positivelychronictravels
Luca, Ferrara, Italy, 35, cEDS, he/him, IG: @tre8bre FB:@tre8bre.1985 YT: @tre8bre
Marisol, Mexico City, Mexico, 28, hEDS, She/her, IG:@solprni
Rachel, Essex, UK, 25, hEDS, IG: @racheleanneblog
Robin , Vancover, Canada, 29, hEDS, IG: @robinhahnsopran YT: / @robinhahnsopran
Simon, Devon, UK, 42, hEDS & cEDS, He/him, IG: @the_bodyboarding_eds_pilot
Special Thanks to my amazing boyfriend Ian for helping with editing!
You can support my content by:
Buying me a virtual Coffee at www.buymeacoff...
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Taking a free trial of audible audiobookswww.amazon.co....
Heading to my Amazon Store & purchasing from my POTS & EDS survival kits -
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23 авг 2024