This Is Probably A Bad Idea, But... (Life With Stage 4 Cancer) 

A short daily update obviously doesnt give us the full story. Given that you have stage 4 cancer it isnt abnormal that we in hearing about escalating symptoms imagine things to be worse perhaps than they seem to you or actually are. We dont know everything you are doing so perhaps we are missing some info. Those of us who have had experience with Cancer either as patients or caregivers know that sometimes side effects or symptoms in stage 4 can be disastrous. Hence the “ over”reaction( from your point of view perhaps). May I ask If you have had prior experience with Cancer either as a family member or close friend? Just wondering as I think that affects our perspective sometimes. Anyway, I get what you are saying here. IMHO we all need to take into account the fact that we arent fully aware of your situation because it is impossible to get the full picture from a short update. I trust you know best how to handle this.

Thank you for sharing your thoughts/experiences on hospital stays. This isn't something those without experience would necessarily intuit. You are a fighter...sharing all of this certainly takes strength too.

I don't have cancer but I have MS. I have had it for 15:35 40 years. Having lived with it for so long, I am attuned to my body and disease and I know when I need to go to the ER and when the whole process of going to the ER will exercebate (sp) the disease process I am going through. It's a constant balancing act.

I’ve bee watching you recently and my heart goes out to you. My daughter had brain tumors. I spent years chasing down doctors and nurses. They mostly were at a loss to do much. I took over giving over the counter meds. It was impossible to get help. Had to wait for hours for doctors to prescribe precious pain pills. Going to urgent care,pretty useless when you have a serious diagnosis. It’s the same treadmill,MRI s cat scans,blood pressure,take useless vials of blood. When you are out of touch, you reccomend hospitals,doctors, we are on our own.People think doctors are saviors. all we can do is handle symptoms as they arise.I am so sorry people judge you when you know those solutions are often dead ends.I did pray my child thru the awful journey and handled the symptoms as they came up. I think you are wise to use your own body signals to dictate the best avenues to live with this lonely. Journey. not many people get it. I certainly do.

You are so sweet to share these things. You are not obligated though. I totally understand you wanting to be home rather than waste your time in a hospital because you pretty much know the outcome to be told to go back home and rest or whatever. By the way, you look amazing today. You know me by now that I’m going to tell you I’m praying for you. I’m not trying to push my beliefs on you G. I figure you share your connection with the universe, so.. I’ll share my connection with the God I believe in. I’ll continue until you say stop 🛑 I’ll bow out gracefully but I’ll never stop praying for you. Yes, we all care about you very much! I’m glad you understand this. Let the healing continue. Onward!!

I agree.. when people state the obvious, I just want to scream!! Do you really think I haven't done that??? Or understand why Not to do that???

I can imagine that there are days during which you are really too exhausted to read and answer to our comments, but don’t worry; we can understand you have high days and bad days to manage with. So please don’t be worried for us, try to keep your strength for facing all your problems. I read different comments: most of them whished you the best and really hope for your health to improve . So you don’t need to answer anybody. Everyone here is hoping for the best and some of them (like me, for example) are sure you will come to be completely cured from your cancer. I’m positive ❤️ So I suggest to do only what you feel like to do. Answer in you want, don’t if it looks like a waste of time and energy. Send you hugs from Italy 🤗🤗♥️

It would be impossible to comment on every comment Your whole day would be taken up

Allo Guillaume......j'apprecie tu as le droit choisir comme tu veux. C claire le ER n'est pas le mieux.

❤❤❤❤❤❤🤗🤗🤗🤗

You need pain management team. Im surprised with someone at stage 4, you don't?

I am sure doctors in ER will NOT send you home with Tylenol and say there is nothing they can do. To a stage 4 cancerpatient?

The comments( most of them) are meant to encourage and help you. We dont want you to be stressed out by them or pressured because you have to respond to everyone. It would be nice to know you have read them so I have a suggestion. Just respond with a little heart and only type a response to some, especially when you are feeling poorly.

I don't think you're an idiot at all. I do think you're stubborn. But that's not a bad thing at all, especially as you're fighting this. I will tell you the one thing that confused me the most is when you said you take one Tylenol. I just can't imagine that doing much, but maybe it's a different type of Tylenol--I don't know! I just know that when I hear that as your pain management I feel concerned. Hell, I took two Advil this morning for an earache and I don't have cancer. I'm glad you do recognize everyone was posting out of concern, not thinking you're sitting around doing nothing. I hope you're feeling better today!

I know it helps you so much on your journey to recovery to say what you’d like to say. Good health to you G❤ Your wife sounds amazing ❤.

Hi Guillaume, it’s good to know you are always checking in with the nurse about how you are doing. I don’t think anybody thinks you are dumb but the opposite - you are very intelligent. I’m glad you cleared it up for us, Guillaume. Personally, I find it hard to see someone in pain for so long. And you don’t have to reply to anybody or everybody because the good guys will still be here. The trolls are waiting for a response/reaction, I’m sure. I get that hospitals are depressing and glad you are feeling better! See you in your next video. ❤️🇨🇦🙏

Sounds like your situation wasnt as dire as it came across to us. However seeing a few consecutive videos on how bad it is from someone who is always positive did give us the idea that you were in a bad way. I am relieved it isnt so bad, good you clarified. As for comments you should just do what you are able to. Am sure most will understand.

Thank you for sharing. It would be less frustrations with palliative/hospice care. They will regulate you and will not leave your side until you are comfy.

Follow your intuition and your heart. You seem confident in your plan, blessings.

Am glad you acknowledged these repetitive comments come from a place of Love and Concern. I hope you realise also that since none of us are there observing you, we are basing our assessments of your situation on what you are telling us. In one video you looked and sounded particularly bad. I don't think we over reacted because even your wife got the wrong impression when you communicated with her. It is not just the language barrier but also the fact that she has to imagine how you are doing based on what you tell her rather than seeing for herself. I know it wasn't your intention but I think you didn't give us the full picture e.g your communication with your nurse and team( the extent of it). You just focused on how difficult it was, which is natural. But that left us with the impression that it wasn't manageable and you weren't getting any help. There are gaps when communication online, " lost in translation" so to speak. Not your fault or ours. I am not offended by anything you said in this video but some are. Many of your subs are heavily invested in your progress. Praying for you, waiting everyday for updates. So I am going to be frank here Gui. I don't think it was a bad idea to record this video but I think you could have put it across more gently, in a way that would not have made some feel upset. I don't want to see you lose subs, especially those who genuinely care for you so I feel compelled to say that. To subs who are offended, let me say this. Bear in mind Gui is pretty ill so when he feels poorly he might not do the best job giving us an accurate or full picture . Can we give him some grace for that and not take things too personally?

I think we were all concerned you were alone not with anyone ,was under the impression your wife wasn’t there ,I’m sure we’re ok with you not replying at least I am ,anyway I’m glad you’re wife is there again ,it’s fine you don’t have the same belief ,take care of yourself and I will continue to pray for you gods blessings on you &your family ,please don’t worry about replying I’m sure we all understand ❤I’m glad in this video you’re not coughing

I get your point. I have something different going on but I understand your point. I just know you don’t have to be in pain. But like I said I know the ER & hospital game all too well. You just looked like you were in a lot of pain in the last video.

Continue to focus on your healing. Peace be with you

I totally understand..hospitals are not always fun if we can avoid...of course when its necessaly one has no choice but to go...talking from my own expérience....so judging noone.....

No obligation to respond. Only when you want to.

Please dont feel the need to respond to comments. Its too many and it seems exhausting. This is yr channel and your words.

Turn that frown upside down! 😂 I totally get it, truly. Know that a huge percentage of us are rooting for you even when that comes across like we’re an overbearing mother! Apologies from me. Now get back to being your sarcastic, funny self! 😂

Good Afternoon G. My fam and I are always praying for you and your wife. Have A Wonderful Day 💙❤🙏🙏✨✨

Continue to do and be you. Watch all your video's. I've commented before about my husband having medical problems since 2009 and came down with an aggressive form of cancer in 2022. He had some of the same reactions seeking the doctor or hospital. I understand what you're saying . As his wife, sometimes it was hard for me. May you have the strength and comfort you need. Sending love and a hug to you and your wife.❤🫂

She knows your cancer has a poor prognosis that is why she reacted that way.

RESPECT ✨️✨️✨️

Thank you for letting us know that you have an excellent health advocate that you can contact. Having one makes all the difference when you are facing a serious health issue that needs management. Anyone who is expecting a personal response from you after leaving a comment may not be doing it for the right reasons. This channel is for you, for your encouragement, for you to share your journey and your experience. Not for viewers to glean warm fuzzies by recognition. It's a warm fuzzy enough to reach out and encourage someone who is going through a storm in life a word or two of encouragement, some unsolicited advice or a word of understanding. May God be with you and your family today and everyday. As far as hospitals are concerned, my saying is there is no rest for the weary there. I can't stand them and have to get home to recover from sleep deprivation after being in one. Not to mention being under horrible lighting and not being allowed to go outside when you want to for some Vitamin D3 or just to feel nature which some of us thrive on. And as you mentioned, the food you like, not the horror that most institutions present you. They just can't do food justice for a large population. God bless.

Hello from.Pauk.Thanks for giving us the full picture on your medical support. And the support team you have The shortest time you need to spend in emergency room the better.some people can pick up nasty bugs in emergency room Hope you don't mind me asking Do you have any pets

I was worried about you the last couple of days. You look very well today and you have a lot of energy. Good to see. I don't know how anyone could feel that you are somehow not taking care of yourself. To me you are so proactive and you are taking responsibility for your own health. Also, you know yourself very well. You just keep on keeping on.

QUESTION PLS when you sip out of the blue drink bottle is that medicine or a drink ? 😊 🌾🌾

Bless your heart ❤ I know you’re doing the best for you mentally and physically. I’m sending you so much love and positive healing prayers always xxx❤🙏 stay strong 💪

What I mean is, we all want the best for you. It is a lot you are going through. So I don’t want you to add a burden on yourself believing you need to respond to me. I know your intentions are good. Mine are too, so I just meant no offense taken and carry on. Know that our intentions are in your corner.😊

ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-oINxdu2Y7q4.htmlsi=QRkYRTMiiENCSddo how did she beat it if it's incurable ?? She was also stage 4 ?

I’m wondering if some of the confusion is due to the different medical systems. I’m in the US and we don’t really have an individual health care coordinator like you do in Canada. But don’t feel that you have to respond to comments. Also, I totally get not wanting to stay in the hospital. Plus, you can catch something from the hospital.

I fully understand as I can see you highly intelligent xx❤

Good afternoon, very interesting video. And true that perception can sometimes be deceptive. You are the absolute captain of your boat and I apppreciate warptching

You're not an idiot, I suppose it's just one of those situations where I would feel so responsible if something happened to you because I (and others) didn't urge you to get checked. Not everyone knows the signs for certain illnesses, it's nothing personal :) hope you're doing better today 😊

It's your channel so nothing you post is a "bad idea". I think many people- myself included- were more worried with your "I give up" video and you being alone... but I get it, and I am sorry. I also totally get you not wanting to be in the hospital or ER (guilty of saying that too). I would be the same way so I am sorry for 'advising' you to do something that I wouldn't do myself. You are doing what YOU need- don't spend any time on the naysayers and the ones who are just miserable and want you to be too. We don't know your whole life and what you do every minute and we don't need to and you don't have to justify anything to anyone. We want to support you and listen to you when you need to talk- so I will "think before I type" going forward. I admire your positivity and your persistence- so please don't stop being YOU. 🤗🙏 and please know there is NO obligation to respond- taking care of yourself comes first♥

Understand 💯 muah

💖

Peace, brother!

Hello friend! English obviously is not my first language and some words can be misunderstood unfortunately. Some people were feeling worried about you because you were not going ER. We know exactly when to go or not. Obviously you appreciate such good words but one person was rude with you and me. He or she thinks is right. Poor person. Anyhow I'm here for you. Hugs to your wife😊💐

We can all be Doctors. But Doctors can help not cure. One day lets hope there will be a drug that stops Pain. But the breathing and sat on the toilet not Good. And i like that tea shirt i got the same one on. Bit odd that.😇😇😇

Hi, I've watched every video you've done and have always thought you a very straight talking guy. I must admit I was thinking maybe a inhaler might be of use for the cough so I rewatched your asthma video and accept it's not for you. All my love from uk.

You don't have to respond to each comment. Sending good vibes

💙🩵

I too don't like hospitals so understand where you coming from.

Sure hope u not thinking of quitting blogging

Thanks again for all of you and for letting us know your feelings. It's all good. It's constructive .

❤️😇🌟

RU-vid playing with my comments … AGAIN , so hope you see this one @G , heard and understood , thanks for your honesty . In future I will trust you and your judgement and encourage you instead of being bossy (even if it was meant lovingly ) . You are an intelligent guy and this is YOUR journey , we just hate to see you in such pain and distress and I was scared for you , not gonna lie . You owe us nothing my friend , respond when you are able , wishing you nothing but peace and love 💙. Hope you see this 🤞🏻🫶🏻