Throat cancer symptom advice from a survivor, things doctors don't tell you once you start treatment 

Who are the 10 assholes that would give this video a thumbs down. This gentleman is discussing perhaps the most difficult and personal of experiences of his life, for no other reason than to help others. Thank you, Mr. Barker for sharing your hard earned experiences with us. I do wish you a speedy recovery and I hope that you are feeling healthier now.

Really appreciate you making this video, I have a friend going through this and your tips are really good.

Gosh Jason.Thank-You So Much for sharing and In lightning everyone of your ordeal with this Horrible Virus and how it changed your Life. I hope your body was able to fight it off. I see your Facebook Group is Closed know. I've shared your YT Video on My FB in Hopes that it will Spread your knowledge and caring for others. Thank-You Again hope You are doing well. ~HUGS~

Thank you for making this. My mom is undergoing treatment right now. Having a horrrrrible time with mucus. :( looking for any help/answers.

Did you have symptoms for the HPV???

Jason, you are an amazing person, to go to so much trouble to help others is an incredible effort. All the very best to you.

Hi Jason. ..I had the exact cancer ..had the same systems and treatment ... I also had surgery to remove the tumour in my neck ..The mouth ulcers were heriffic ....It took me 2 years to fully recover from every thing...that was nearly 5 years ago...I couldn't believe when u said u had the same cancer...I had a bad reaction to plasters too...ur tips are brilliant ..They will help so many people. ..The only thing I can add is this treatment WORKS. ..I have a brilliant life I never even dreamed possible. ..I look normal ad feel good ..I can eat ad drink well...There were days I thought I would never walk again. ..but now I'm running around with my gorgeous new grandson and new dog ...The first thought I had when I got my diagnosis was ..I will never see my grandkids. .which I soon felt guilty about as I met younger cancer sufferers how only had very young children and were worried they may not see their children grow up ..I soon realised I was already lucky ..my daughter was 24 and my son celebrated his 21st birthday when I just finished my treatment. .I spent my 50th birthday in hospital very sick at the end of my treatment. .but Iv made up for it every Birthday since belive me...I am planning my gorgeous grandson Evan's 3rd birthday in a few weeks. ..I call him Evan from heaven.👼 ..I do feel terrible guilt when someone doesn't make it especially young people and children. ..I pray everyday for everyone going through horrible cancer..especially families who have lost loved one's. ...The only thing I can think to do is to live my life smell the roses for those who can't ...be happy with nothing. ..health is your wealth. .Jason I hope u continue to make a fantastic recovery. ..keep helping others ...I wish u a long and happy life full of goods supprises.. .😊👣❤💙💚🍀

I'd like to add that eating at a buffet to find what you can eat. I wasted so much money ordering food I thought I could eat and found out I couldn't. A Buffet is the key to eat out.

Jason, You are such a kind hearted person. Having gone through the ordeal you are pre empting others from the avoidable pains. I salute you. Others have a lot to learn from this video. I definitely have. My best wishes to you for cent percent recovery. Thanks, once again.

Hope you are doing well & enjoying life to the fullest today... thank you for sharing

I am just starting my journey, thank you and God Bless

2007 at age 61 I was diagnosed with throat cancer, stage 3 c . teeth pulled, surgery 5cm tumor, tonsils, adenoids removed, Chemo, Radiation followed. I lost 90 pounds but came through very very well, until October of 2016 when I got a sore throat that progressed to ear infections, I thought, Went to see my ENT, No Cancer but I now have Radiation Scaring that gets worse every day. I'm having a very hard time swallowing, living on malts and buttermilk and protein power, Head hurts like shin splints all the time, hurts when I breath, hurts when I talk. Docs so far haven't been able to help. Any Help out there? I planned living well into my 100s but not like this. Dr. D

The doctors gave me "magic mouthwash". It's pink and really helps with the mouth sores. I did not have a problem with fillings. You can win this fight and look back and say, "that is when I had my cancer."

great information and so kind of you to share the information with us... shaved my arms today, and beginning my journey this week... God Bless You...

you are absolutely amazing dude

I am glad you are feeling better. Stay strong as it does get better. I just finished the same thing though mine originated at back of tongue and they removed 16 lymph nodes. It did not bother my fillings but I did get a few sores in my mouth with one on my tongue that did effect eating. My ENT gave me a compound mouth wash (not magic wash) and it worked great. I would tell you the name but it is a compound so it has no name.. If you want, I can ask him more about it and share it with you. But why did they put the port in your arm? They put mine in my chest. Did you have a feeding tube to help with eating? I did and it helped a lot.I created a blog of my treatment that you can read here mycancerreport.blogspot.com/

For anyone showing up here because they have a loved one going through this cancer I'd like to give a few words of THANKS as someone who just finished treatment (35 radiations, 7 chemos) 2 months ago with the help of a devoted loved one. The daily support of a primary loved one is so important when we are going through this experience. It is like swimming through oil just to move from one place to another. The energy is sapped. The thrill of eating is gone. Normal hygiene takes so much more effort than ever before. The will to live is shaky due to pain, nausea, and fatigue. I am so grateful to have had a wonderful support person (my significant other) who didn't push me to do anything, but just kept me moving in the forward direction throughout the therapy phase. Thank you to all the loved one who are making the progress tolerable.

Jason I thank you so very much for this video. The love of my life has to go through this and I am looking into all this to be more than support and help for him. God bless you and so very happy you made it through and I know he will too!!! Stay Blessed 🙏🙏🙏🙏

You are awesome! My prayers for you! Thank you for your tips. Extremely helpful! ❤

Jason, you are a true hero. I love you dearly and am so happy that you are doing so much better! You look amazing, and I can't say how happy I am to see you still kicking!!!

I'm sorry to hear about everyone being diagnosed with cancers and such. It's truly a horrible thing. I am having trouble swallowing, food gets stuck at the top when i swallow and i usually get it down with a sip of water. It's been a nightmare, i'm steadily losing weight as well. Today i had two small ice creams and a bag of doritos which took me 3 hours to get down piece by piece. I no longer get hungry and that's is complete opposite of the normal me. I always woke up hungry and ready to eat now i just don't feel it, my stomach doesn't even growl. Depression has set in, you don't know what depression is until you lose your ability to swallow and eat normally. It's beyond describing. I'm set to have an EGD done to see if there is anything blocking or a stricture etc. I have smoked cigs in the past so i'm hoping it's not a cancer diagnosis. If it is, i'll be taking Cannabis Oil from Colorado or Seattle. I would never admit myself to chemo or radiation as they are very bad and only good at destroying your healthy cells and immune system etc. I encourage ALL who are diagnosed with ANY cancer, to look up Rick Simpson Oil on youtube and watch videos from REAL people who have beat their cancer with this oil. It's illegal in most states, and there is a reason for it. Legal Cannabis Oil would literally crumble the profit powerhouse of cancer. Not trying to say its your only option, but it should be our first option if possible. Do research and decide. It's the first and last medicine i would ever use for a cancer of any kind. Thank you so much for sharing this, you are a kind soul and i will update on he results of the EGD. Here's to hoping i don't get diagnosed with a throat cancer!

thank you for sharing, Jason. I also had the same cancer on the back of my tongue. 35 radiations and 2 chemos. kicked my ass. I'm 5 months post treatment...and doing well. I can speak well, but there is still a considerable difference in my voice. I am back to public speaking, but cannot sing yet (I am a preacher/song leader for a living).

Jason, thank you for these helpful, practical tips. God bless you. I hope you are doing very well now.

My cancer was HPV related too, stage 3+ told me 50/50 and sure enough I'm in the other fifty! But it is now two years since the initial diagnosis. I've had 7 chemos and 35 radiations, went a year with no other cells found and then back again. This time in throat, chest nodes and a mass in a lung. I then had five months of two types of chemo involving a chest port. All went well but I did have recurring thrush and still get it. It's still in two spots but it is either stable or has shrunk so now on a chemo break for a few months. I can eat moist mushy foods but must avoid most hot spices. Also I cannot dissolve meats, most breads, pastas, rice or potatoes. I am missing the salivary enzymes unfortunately. So I use a liquid feed made by Nestle which is wonderful and I have a small pump so I can manage it alone just fine. Now two years later, except for limited eating I am doing well. There are some wonderful support groups on Facebook, one being Throat and Oral Cancer. My message is it's not over till it's over and I fully expect to lead an almost normal life for a few years more. BTW I am 75 so it's not such a big deal for me as it would be for someone younger. Good luck and please ask for help if you need it!

I can't thank you enough for this video. I'm so sorry you had to go through this terrible disease but am grateful for your advice. My brother was just diagnosed with neck and throat cancer, stage 4 and is ready to undergo surgery in a week. If even one of the pieces of advice you shared works, you've done more than you know. I know this was done a few years ago and hope you are cancer free and living a wonderful, full life.

Thank you Jason, I finished this treatment Aug5, 2020, life changing, lost 20 pounds, many people do ask, so many I know are getting this it is unreal

Just finished my radiation and chemo for the exact same diagnosis wish I had seen his first hope life is treating better

I’m finished with treatment for tonsil cancer. A major mouth cleanser for me was hot salt water with baking soda. Never had any mouth issues. I have a mouth full of metal. I am so thankful for my change of diet and precautions. My dr told me he has never had anyone take it so well. I wasn’t normal by any means but I am on the right side of the road now. Waiting for my pet scan now. God bless anyone with any cancer

Very informative. Glad you made it ok. Personnally, I "swish, gargel and swallowed" club soda. It helped with the ph in my mouth and reduced the mouth sores. I could have done it with a mixture of water and baking soda but the club soda was less yucky. A nurse from the cancer center had recommanded it. I used a child tooth brush (Power ranger! chosen by my son!). I also had fluoride trays and did a fluoride application daily. I will require to do this fluoride application for the rest of my life to prevent tooth decay. I also brushed (and still do, 29 months past the end of treatment) withint 30 minutes of eating/drinking anything other than water or club soda.

Thank's so much for all your efforts and ideas and making this video. This helps people looking for answers. You'll never know how much you've helped others. I wish all the luck to you.

My dad had this cancer, it started with a cough that lasted 2 weeks but wouldn't go away. He is still here after radiation treatments and early intervention. Thanks Jason!

Just wanted to stop by and thank you for posting these videos. I’m about to start neck cancer radiation/chemo therapy. Because of your video, I became aware of the potential interaction with dental crowns. I raised the issue with my Radiation Physician who agree that it would be beneficial to remove a metal crown that is in the area to be irradiated. Just swapped the metal crown for a non-metalic crown yesterday. Thanks again for your efforts to help others! All the best to you and yours!

Hey, Jason. You are an amazing man!! Thanks for all the great info. You hang-in-there guy. All the best.

Reading all the comments you can see how much your video has helped people I am early 40s and I have one tonsil that is slightly larger than the other and I've noticed a swollen gland on the same side that feels like it has a hard BB/small pea stuck to it I have a appointment with the doctor in about 5 days and I am going to request a appt with a ENT regardless of what he thinks it might be. your video helped calm my nerves and I appreciate it and you sir thank you.

Thank you for sharing sir, I have the exact same cancer and I'm getting ready for the same treatment in the same area. I have one more doctors appointment before all my treatments start. I'm a older sixty four year old guy that had all my teeth fillings taken care of years ago. Like you smoking wasn't my issue either, who would have ever guessed throat cancer would be an issue? Everything you've said is all new to me. Thank you again, it really means allot to people like me.

I have been through the same thing. I had a port and a feeding tube mine came on me at 56 the things I wished they would have told me that the radiation would kill my thyroid, taste buds,loss of smell ,it got my pituitary gland and my thalassemia. Good luck I'm 6yrs cancer free I went through it by myself could of used some help but my blood family turned their backs on me and one sister is a nurse practitioner and the other sister an RN but they were to busy getting pedicures and abusing their patients!!

Im a smoker. Thanks so much for the explanation/ understanding of it. I'll keep you in my prayers. God is good!

Thank you for your honest story. I wish you the best Jason.

Thank you for sharing. And my hopes are that you stay cancer free for the rest of your life.

my sister was only recently diagnosed with stage 4. one cisplatin a week ago. radiation mon-fri. i do whatever i can, but now it seems there is very little i can do. it was comforting to find your video, just to know there are others who understand. i hope you are well.

Thank u so very much, my hubby was diagnosed with HPV throat cancer in August 2019 and passed away in slightly less than a year. Fought it like a valient soldier. Hardly ever complained and only cried a couple times. We were together for 15 years. Now its another year and I guess its my turn. it seems so surreal. My ENT doc still hasn't got back to me with my ct scan results and this is

Great video. Cool, calm and precise delivery of info. Very reassuring tone as well, this is going to help a lot of people, this is what the internet is for. I found this after my event and I just had radio, so I was very lucky, and I had good people in the NHS sort me out. Appreciate it anyway.

Thank you for this I'm so sorry you had to go threw hell! Stay strong love :)

My throat does not seem to want to heal. I am 7 weeks out from last radiation treatment. My throat is still painfully sore. I am using a feeding tube for food and not eating food. I am using the various mouth washes provided and they provide some temporary relief. I am taking anacids per a recommendation that reflux may be irritating the throat. Anyone got some idea how I can calm down this pain in the (neck lol) throat. I pray you guys have not suffered with pain as much as I, but I suspect you are suffering as well. I feel 1000 times better than before and I still feel quite poorly, no energy and pain. Thanks for the post jason.

thank you for the tips i have a friend that just found out she has stage 3 in her neck . i will tell her your tips right away

Wonderful advice from a very caring man, thank you! I will be starting my treatments in a week and I'm sure these will help me and make life a little easier. Bless you.

Very practical and huge help to patients. Thnk you so much for sharing these learning which nurses or doctors never thought important and useful to patients. Its really vest to hear it fr someone who really went through it. God bless you.

I've had thyroid discomfort for the past few weeks now, along with some sort of 'click' feeling on the atoms apple when swallowing. Has anyone experienced this?

I wonna know how you are doing right now if better please let us know

Jason you are so beautiful inside and out. God bless you 💜🥰💜

Hey man....Blessings to u.....🙏🙏🙏

God bless you💙

Thank you so much for taking time to do this video. The points that u mentioned will definitely help people. I ll shared this with my contacts. I see that this video was uploaded 6 yrs ago & the latest videos are of 2 yrs back. Plz tell us that u are all fine now & fully recovered. Again thank u & may God bless you. 👍

Thank you.

thanks for sharing your story! Do you know what type of HPV virus you had? Like HPV 16 or HPV 18?

It takes a pretty incredible person to want to help others, while going through your own battle. God bless you. I hope you are doing amazing and are cancer free.

Had the same cancer as you. Some things I discovered that wasn't told but helped was instead of a pick line I had a surgical port put under my skin in my chest. Worked great and non obtrusive. Didn't have filings issues although I have a lot of metal from younger days, although I brushed at least 5 times a day and also used a hydrating mouth wash at least 3 times. Teeth and gums came through perfect. I elected not to have feeding tube and was best decision. Was tough last two weeks after third chemo but made recovery a lot quicker. Wish they stressed more about loosing all my taste for at least 6 months but it is now back. Also wish they said to do stretching exercises with neck and mouth mussels because of the radiation. Also get a second opinion! First DR. wanted to do neck dissection and partial tongue removal. Someone always graduates last in their class. Hope you keep on keepin on. Pat Fitzsimmons

Thank you for this content. It was very helpful for my loved one. God bless you through this journey. Much power to you!

Thank you Jason. You are a great help to all those going through this cancer. You're the best person to describe & give options of how to deal with certain situations. Thank you so much.💕💖💕💖💕💖💕

Thank you for sharing these tips. I hope you are doing well. Love, Peace be with you.💗✨🙏

Hi Jason - I hope this comment finds you well and healed. Thank you for caring enough for others to share your experience. You also have a great attitude. Realistic, yet hopeful. You explain the negative aspects without being negative. You offer solutions. This is the type of information others need; information that doctors can't or don't always share. It would be great if upon a cancer diagnosis that a person would be assigned a survivor mentor (like those who have an AA sponsor). Someone to ask questions that doctors are unable to answer and someone to reach out to when a person needs emotional support that family can't seem to give. I have a great friend who worked in oncology research who felt exasperated with his patient load while interning because there was only so much that he could do for his patients. He would be on call for about 15 patients. The calls ranged from true emergencies to emotional needs seeking someone to listen. He couldn't do that; especially at 3am. At first I thought my wonderful friend had become jaded, but soon realized there was a great emotional need by cancer patients that was every bit as important as the physical; something doctors couldn't provide around the clock since their main concentration is the physical treatment. And waiting for a group meeting or waking a spouse or friend at 2am to talk doesn't fit. So it would be great if a person volunteered to offer this type of support to a person they truly understood. The mental-emotional aspect of cancer treatment is every bit as important. So thank you and bless you.

Wow. This is a very helpful video. Thank you!

Thank you for sharing Sending you prayers love and healing vibes 💕

Blessings to you. Hope you are doing well. Praying for you for your health.

I just recently diagnosed with spindle cell of the lyrnex. After watching all of these videos I realize that life sux and is not even worth putting myself thru this stuff. I'll go in for a laser treatment and if it doesn't work then I'll be saying goodbye to this lousy world

Thank you. I'm about to start chemo and radiotherapy.

You don't know how much I needed this video and the others and blog. My husband and I just found out he has throat cancer. So overwhelmed, but staying faithful. You helped me get out of bed today

Hi Jason! I’ve just been diagnosed with this. My doctor said it’s treatable though. I’m having a PET scan next week. My cancer is the epiglottis. He told me radiation only. I’m so glad you made this and shared it. I’m scared right now about what to expect.

Hi. Nice video thanks. Ive had a persistent cough for 1-2 weeks now (not constant) and i keep coughing up phlegm. No Hoarseness at all. The Phlegm is clear and sometimes sticky, but was yellow/brown before. I still have the cough but not as much and it feels like i sometimes have to clear the throat (sign 1). I now have a small lump feeling in throat which isnt yet painful. Just annoying. I can eat/swallow. The side Throat glands dont feel swollen. Signs 1, 6 and 7 are mine. I have no temperature at all either wtf!?

Thank you Jason Barker. My brother was just diagnosed with throat cancer. We go to UAB in Birmingham Alabama on Monday January 25th. They will do a biopsy and give us that most dreaded news. I wrote down everything you said about what the doctors don't tell you. My brother is typically a private person. But I have done a lot of research on throat cancer and the things he could be facing. I appreciate you and your personal knowledge on your treatment and the fact you care enough to share. God Bless you.

Thank you for this video. I wish we could prevent these things.

thank you for sharing your experience

I wrapped my husbands arm with Saran Wrap too. Magic Mouthwash helped his mouth sores.

Thank you for sharing.. I wish you all the best brother

Thanks! This was very helpful ... God bless!

Thank you for this video...my brother is starting this journey also. Hope you are now better & enjoying life. Thanks again.

The last tip is brilliant. Really its hard to tell the story and history over again. And also, friends who need to know your status particularly on the cancer will just go there and read. At least u dont get things mixed up. And the exchanges only deal about 1 subject. U get direct answers n queries too.

Hey Jason, keep fighting buddy. I have a question. How do you tell the difference between a lump and a nodule. If you like grip the neck, there are certain build ups that seem like lumps but none are like visible that show. Also, does it show in blood? Like how exactly did you figure out you had cancer? ultra sound/blood work? I've had a ton of discomfort in my throat/esophagus for quite some time and even in my mouth/tongue and I've done blood work and blood always comes back good. So I was just wondering how is it that you get the diagnosis?

Thanks I about ready to go through chemo and Radiation in a couple weeks, Its weird my lymph nodes were removed Monday . I be watching this alot

hey jason! good job bud. had same thing. sage iv with 7cm on neck. had 35 radiation, 8 rounds chemo. not sure why one needs a pick line? just iv’d me each round. seems like less hassle. any how we both made it! 2 years out myself. peace and health.

It's a mercury intoxicastion all the way, read and inform yourself.

Hi Jason, yes, you are a trooper. All my best to a full recovery for you. Aside from what you covered in this video can you compare the sound of your voice, both before and after radiation/chemo. Did the treatments adversely affect it?

Jason thank you very much... I start my treatment for throat cancer in 1 week. Definitely going to ask my dentist about switching my filling. I'm doing a video journal of my treatment for the same reason as you... help out others going through this. Thank you once again.

thanks Jason. I'm not a patient but someone I know is. you are a wonderful person for having shared this. I wish you complete and early health.

Been there done that, your video is very good, appreciate you taking time to share this info.

Jason, thank you for sharing your experience. A friend has recently been diagnosed with stage 4 throat cancer and is starting the journey. I just sent the link for your video to her and will pass along the facebook page info.

Thank you so much for taking time to do this video. Wish you a full recovery. Blessings.

Keep us up to date may god bless you my friend stay strong 💪 👍🇺🇸

throat cancer is spreading or not. how long they live without treatment. the age of 70 above they can control our pains because they don't have strength . how to find throat cancer . what to do now the symptoms of the patient they can eat food and drinks but they come in to the mouth and white phelgm like mucus they have a pain while eating any food or drinks

Hey Jason, thanks for those enlightening tips, sorry to ask but is the patch on your right hand a feeding tube. My dad has just been diagnosed with Laryngeal cancer stage 1 and we are still debating on a feeding tube for him. He has already started his chemo and radiation. Can the feeding tube be inserted anywhere else apart from the stomach.? Thanks and God bless as you continue with your healing.

What a lovely man. Thank you . It's the little things people don't share.

Thank you sir for your story it's help me understand more of what I have to go through Be Blessed

Hi Jason came across this video, I was wondering how your doing now? Did it ever come back? 😊

Hi Jason, I have a friend that went through this and your information was a life saver. How's in going in 2018?

Great advice, THANK YOU Jason !!!

thank you for sharing this. My father had throat cancer, and it is one of my biggest fears. How are you now? I see it ha been nine years

Thank you for sharing the video, God bless you, best of luck

Very good info, Jason. Thank you so much. Hope you are well & happy now.

Thank You Sir

i can't thank you enough.... kind regards, john