Tonic Clonic Seizures  

Do you suffer with seizures yourself if you don’t mind me asking trying to find out as much as I can about how others experience them

@@UnshapedLynx I am one of the ones who has been siezure free for 20years as the last cluster siezure I had was a few months before i turned 15. I am now 34 going to be 35. But yes when was younger I had siezures similar to you and my friend Alfie usually once a month upwards to 10 a day in a week period sometimes lasting two weeks my clusters involved were usually 70 to 140 depending on the severity over a week or two Time period. My friend Alfie is from over in the UK he has them very similar to yours and pretty much at the same frequency it seems.

I feel alone with tonic clonic epilepsy. I wish I had someone to talk with

@@Greencloud8 I’m always here if you want someone to talk to!

@@BellLiz-zj7ki good how do i get a hold of you

Yes I’ve had that aswell as the 7 day video telemetry and I’ve also tried many medication options with each causes side effects or increasing my seizure rate

@@UnshapedLynx are you a candidate for brain surgery