Please support this channel if you can. 💛 I'm currently spending about 4 to 5 hours daily on learning, answering questions and making new material. I love to help, but also need funding to stay here longer and learn more and make more videos. I have about 20 topics to cover ! So much more is coming. Please help if you can : whydonate.nl/en/fundraising/support-tsw-community Thank you so much 🙏💛🌟
I've commented before but want to say again, I really have an appreciation for the way you've discussed your experience. Yes, it was so panful and debilitating. I'm recovering at this point and truly recognize that the most painful phase of my journey has been extremely short (3months). I also didn't get it as sever as others. I experienced bone-deep itching but very little oozing and only where I scratched deeply. The rash began on the lower part of one of my legs, which was the only area that had been treated with steroid creams for 4 years, then spread to both forearms, some on upper back and chest. At any rate, I empathize with everyone who has or is going through the TSW experience. Thanks again and please continue with your videos. .
I already commented on the other video but I just found you, thanks for sharing your story! Sharing this video and you’ve just earned yourself a subscriber!! 🎉😁
The symptom I hate the most is when I moisturize the tsw skin it gives me a feeling as if bugs are crawling on my skin but they are not really there when I look at them it’s horrible because I feel like I’m going crazy but I guess the nerve is damaged or something
Hi! So sorry you also are going through TSW, it is sooooo intense and horrific. The best is not to moisturize on TSW skin. Many moisturizers cause irritation to the skin and hence a burning sensation. On top of that, TSW skin is thinned and impaired. Molecules of the moisturizers can go too deep into the skin. The skin react with a protection mechanism which cause hardened skin (a thick and hard top layer on top of your TSW skin). This condition can become quite serious over time and hardened skin can be very difficult and slow to reverse. There is a video on this channel with drawings (on paper ;) ) where you can see the whole process explained. Best of luck! And I wish you the best healing rate possible.
Thank you for sharing your TSW experience videos which are very detailed & easy to understand & also the recovery graph on the other video. My daughter aged 19 is going through TSW & has taken a year out of university so we can help her at home in UK. In your other video with the recovery graph ..please can you kindly expand on the treatments that worked for you in order to speed up the process.? Also did you use moisturiser? or did you try the NO moisturiser recovery method ? My daughter is almost 3 months into TSW. Thank you so much
Hi. 👋😊 The CAP cold plasma treatment for TSW is available in Thailand and the UK. The clinic in Thailand does not have a website. This is because TSW is not a recognized condition, so you can't put it on a website according the regulations. If you like more info on the clinic in Thailand, you can send me a personal message and ask me questions via my Instagram account: Jet TSW tsw.topical.steroid.withdrawal The clinic in the UK does have a website: www.skinsolaceclinic.co.uk/testimonials2 You can read here some more testimonials and also find the action of the CAP cold plasma device. The most important action is that it stimulates your skin proliferation rate. So more new skins cells are made. Topical steroid creams lower the skin proliferation rate. Because of this your skin is healing very slowly. With the CAP treatment the skin cell proliferation rate is brought back to normal, hence much faster healing and thickening of the skin. Jing and Louise King where the two TSW worriers who brought the treatment to the UK. Both of them were very severe cases of TSW. There is a 'TSW podcast' on spotify. The first episode is an interview with Louise King. Also, Jennifer Fugo recently interviewed Jing. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-JLPWL_Pt22s.html Jing gives a very good and clear explanation of the treatment. So both locations are great, the UK clinic and the Thai clinic. Both have pro's and con's. The price per treatment is half lower in Thailand and the costs of living as well. In the UK you can investigate to do house sitting to bring down costs in case you don't live nearby enough to travel up and down to the clinic. The UK clinic is closer by for many people and everyone speaks English in the UK so easy to get around. Thailand can be somewhat more adventurous at times, depending if you like that. 😊And a big bonus in Thailand is that you will meet Jay. In my humble opinion, he is the most knowledgeable person on TSW in the world. 😊 Also climate is very different between the two countries of course. I will make a very detailed video about the treatment on this youtube channel. Also I share all the knowledge that I learn from Jay. It is a big project, which costs enormous amounts of time, so bear with me, and please like, subscribe and share, and support. So more people can benefit from this information. 🌟💛
@@TSW.healing Thank you so much for your quick reply ..I will get my daughter Jayna to communicate directly with you by You Tube or email what ever is convenient for you All the best 🙏
I am also suffering from TSW pimples I will say it's hard it's 1 month. Now The doctor gave me another cream!!!!!!! She told me to slowly do it 1 day gap, 2 day gap 5 day gap like that
I'm so sorry for you. Yes it's a very difficult and tough process to go through... I tried tapering off as wel, but it didn't work sadly. I still went into withdrawal after the last tiny small application of the steroid cream. I hope you find some relief and will heal soon. Good luck !🍀💛
It seems like most people have the oozing and itching as main symptoms. For me the worst thing has been the loss of elasticity I guess causing moving to be painful. Do you talk to a lot of people that say the same?
Yes, I have talked to hundreds of TSW patients and I have seen about 70 cases live. So being able to observe the skin, see a part of the healing process and talk to the patients.
Hey did you experience zinger pains in nearly 2 months in I feel like iv been through the worst but when I try to train go for long walks I experience zinger pains it’s proper annoying
Hi, no I never had zingers or hair loss. All the other symptoms, yes. Very intense! I'm glad to hear you are doing better! I wish you the best healing rate possible.
Hi Marriott Tony here I just would like to get in contact with Dr J. How do I get in contact with the hospital to discuss treatment? Please could you help me?
Sure, you can send me a message on my Instagram or via FB Messenger (contact info is in de description of this video or the description of this channel). I can give you contact details of the clinic and explain a bit which info to send them.
Cold Atmospheric Plasma :) There are two other videos on this channel about CAP treatment that you can watch for a better understanding of this treatment is.
Hi Lu, yes sure, you can reach me on my Instagram page: instagram.com/tsw.topical.steroid.withdrawal Or post your facebook page or email here and I will contact you.
