Loved watching Arda's video. She and Seb of Life of Seb are two MSers whose blogs and videos really helped me to feel less alone and terrified when first diagnosed. They are both articulate, compassionate and intelligent role models.
Thank you!! thank you!! I can relate with absolutely everything! Get asked to tell my cool story of why I now need to use my mobility aid and when I say MS I am supposed to educate the nosey people that already invaded my time and my comfort... Ughh 🙄🙄🤔🤔 Keep being a strong ass boss and thank you for for setting the path for our voice❣️❣️❣️💖 ❤️
I was diagnosed 15 yrs ago and I had never heard of it when I was diagnosed. It took 2 yrs for a proper diagnosis. My disability has been a slow progression.I feel my walking is embarrassing now and are afraid people I look old walking with a cane but then came to realize it is better than falling. I decided who the F cares if I need a cane. I just have to get over it. I do feel I never get anywhere though. One step forward and one step back. As soon as I start to get somewhere something happens, like a cold, relapse, or flare up and I have to start all over. I have melt down nearly every day because I am just frustrated. I feel like I went from an athletic person to barely being able to walk. It is hard to find stylish clothing and look pretty while being comfortable with the ease of being able to pull up my pants. It is emotionally exhausting to be strong and resistant every day!I get through each day by repeating many mantras. 99% of the time of like crap. I have 3 levels of how I feel that particular day. Bad, terrible, and then horrible. I have also stopped feeling bad about needing or wanting to just stay home and rarely go out of the house. I am comfortable, content and happy in general. I am lucky I do not suffer from depression or negativity. I really have to motivate myself to do my leg exercises every day. I am working on stability right now. I know If I don't, I won't be able to walk. I was a gymnast so stretching is fun and easy for me for strengthening exercises are surely a challenge.
My young daughter forwarded this link, it is helping me understand what she's faced, and going to possibly deal with. I'm going to pass this to my sister, also in the same ms-boat :( Many thanks for being so brave!
Thanx for telling it straight. You're like listening to myself, except you're way younger. Oh and I don't have a husband, but who hasn't peed the bed or worse? I'll never forget the moment I swallowed my MS pride and faced the fact I needed a cane. Walking downtown t.o. serriously worried a cop would question me for drunk and disorderly in the middle of the day. Yup, I watched my reflection in a window and it wasn't pretty. WT? How do you respond to "[duh】what happened to you?" without a polite smack of the cane? What adick
Ardra! You sassy bitch! Thank you! You definitely presented a “true” portrait of the crap we deal with and I so love you for it! Thank you my friend! 😘🍀♥️MS=💩
