Trisomy 13 stole my son from me || Grieving the son I dreamed I would have 

later!

and just FYI to anyone else who thinks i'm clickbaiting. The opening line of this video is "trisomy 13 stole my son from me" i genuinely feel that way. It did steal him from me.. as i explained in the video. My dream of being a father to the son I imagined did die that day. There's nothing clickbait about it. Its the horrifying reality of being the parent of a trisomy child. You’re still a parent but.. a different kind of parent. Sorry if thats too much for you, but thats the reality.

I don’t think this was clickbaity at all. He meant it figuratively and I understand if you were confused initially, but if you look at the other videos you will know he is not doing this for click baits. I am just a viewer like you, so just expressing what I thought!

I understand completely, @samuelT13 and it’s sad that you have to explain this. None of us will truly understand what you go through day in and day out. Solidarity to you and please don’t feel bad due to this comment. I would really suggest you go through the video again Allison!

I do understand how Trisomy 13 stole the dream of having a Perfectly Happy non-disabled child…. But you are blessed to have your son all the same. No one is promised a perfectly healthy child…. Or any child… and the fact of the matter is, no one is perfect. He is so precious!

im glad to hear you understand my perspective. All of my videos come straight from my heart... i truly feel that my son was stolen from me by this horrible condition. I think some people just cant handle that.. they dont understand the depth of the darkness that humans can experience, because (thankfully) they themselves have not yet had to experience that.

ah sorry about that... that wasnt my intention at all. I was aware of that possibility when creating the thumbnail & title though, which is why I wrote "the day my DREAM died" in the thumbnail.. and also why I wrote the description as such: "This video is told from the perspective of a father of a Trisomy 13 child (patau syndrome) about losing the dream of being a father to a healthy boy." sorry about any perception of clickbait though.. i dont like to mislead people

I think your title is perfect for what you share in the video. ❤

​@@SamuelT13please dont give up on having a healthy son. Lily is fine. You can have a healthy little boy.

we didnt consider it because we weren't aware of the risks. We did however do genetic screening on our next child (my daughter) who turned out to be totally healthy. we wouldnt have aborted anyway if our son was positive for trisomy. We'd have just held out hope that he was mosaic / mild or that the test was wrong.

We need protection of all humans life from moment of conception.

sorry just to be clear.. are you asking me what I recommend regarding having an abortion? I dont mind this question.. I just want to confirm exactly what you're asking me. My son is doing well thank you. He's healthy and doesnt have any major problems at the moment :)

@@SamuelT13 yeah sir, would u recommend ? Shes seen on ultrasound scan with bilateral cleft and palate, vsd on heart ,overlapping fingers .... 😢

​@@hillsongbest3818 I can't really say that I recommend it or I dont recommend it. However, I can tell you that... if your child survives past the first few weeks/months.. you and your partner will need to give the child 24-hour care. Day and night, they will need your attention. The child will also likely need multiple surgeries to assist with their breathing/eating (cleft palate = problems eating and so needs feeding tube), as well as to fix problems with their heart (you've mentioned VSD - my son also had that - and had surgery to fix it). My situation is that my wife and I both work from home, so it is OK for us to give the child 24 hour care.. however, for some families this is extremely difficult. So i think you need to assess whether you and your partner are in a position where you will be able to give 24 hour care to this child.. basically the same care required for a BABY, but for many years. However, I would also recommend talking about all of this with your doctors. I can't give medical advice. I also just want to say that I'm actually doing a video right now about this topic - describing the life of a trisomy child. I will try to finish it soon for you. Take care and please ask any other questions you have

@@SamuelT13 ok sir thanks a lot . May I and my wife reach out to u on ur email ,only if u don't mind .

thats fine - you can email me at laymanswam@gmail.com

he has full trisomy 13

@@SamuelT13 thank you for your reply. I wish the best for you and your family.

​@@SamuelT13 tell him I told his story to 23 cats, and they all send him love. there's no life that should not be. everyone is very precious and there is no set amount of time, to say, it was your whole life, however long it is. you will love him his whole life. that is a promise. ❤

thanks for your comment i understand your hesitance, however i'd urge you to feel free to ask whatever questions you find important. I'm confident that any questions you could level at me would be among those I have asked myself at some point. i'm always happy to hear perspectives from other, if for no other reason than it gives me ideas to make videos about to educate/inform people.

that's exactly what im talking about. I'm grieving the loss of the son I could have had.