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Tully Kearny, UK | Living With Generalized Dystonia and Cerebral Palsy 

Dystonia Europe
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In this video Tully Kearney shares her story about her condition, how and when she got diagnosed, the progression of her disease as well as what has helped her cope with her condition. Watch Tully so bravely share her touching story 🧡💪
You can join in raising awareness, simply by liking, commenting and sharing the Dystonia Europes posts. As a rare disease, we need all the help we can get. Let's do this!!! 💪🧡
Social media:
FACEBOOK | dystonia.europe/
INSTAGRAM | @dystoniaeurope
TWITTER | @dystoniaeurope
WEBSITE | www.dystonia-europe.org
Inquiries:
sec@dystonia-europe.org
#dystoniatalks #tullykearney #cerebralpalsy

Опубликовано:

 

30 ноя 2019

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Комментарии : 3   
@amaroviloriarodriguez362
@amaroviloriarodriguez362 4 года назад
well done Tully
@FullTimePatient37
@FullTimePatient37 Год назад
Tully you're stunning 🥰 I understand you so well, I was born with Congenital Hydrocephalus, Epilepsy and that's why it took them seven years to get diagnosis... I'm now in a wheelchair often it in bed can't eat or either breathe well due to Dystonia .. How can I contact you if you don't mind? I have a YT channel if you want to keep in touch 💛↖️
@rameetahuja
@rameetahuja 10 месяцев назад
How are you now
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