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Understanding NMOSD & MOGAD Clinician Perspectives 

The Sumaira Foundation
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We learned about the latest developments on NMOSD & MOGAD from the experts themselves. Our first session featured key opinion leaders based in the Cleveland and surrounding area:
Justin Abbatemarco, MD (Cleveland Clinic)
Hesham Abboud, MD, PhD (Case Western Reserve University)
Amy Kunchok, Md, PhD (Cleveland Clinic)
Jacqueline Nicholas, MD, MPH (OhioHealth)
Mary Rensel, MD (Cleveland Clinic)
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On June 15, 2024, TSF hosted a Patient Day for NMOSD & MOGAD in Cleveland in collaboration with Dr. Justin Abbatemarco, Dr. Amy Kunchok, and Dr. Mary Rensel at the Cleveland Clinic located in Cleveland, OH.
Our event was joined by 100+ patients, caregivers, clinicians, and advocates.
Special thanks to our sponsors Amgen, Alexion, UCB, Genentech, and EUROIMMUN.

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10 июл 2024

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Комментарии : 1   
@sharonhardgrave6272
@sharonhardgrave6272 17 дней назад
A message to Dr Amy Kunchok. I am from Australia and my daughter has MOGAD. She had her first optic neuritis attack 11mths ago, unfortunately no one knew what was wrong so by the time she was put on intravenous steriods she had lost a lot of her sight in her left eye which has never returned. After 7 months of being on mycophenolate she relapsed in the same eye. They put her on a higher dose of mycophenolate but she suffers a lot on this medication and after a fight to get it will recieve rituximab, they refused her IVIG. This is so terrible I don't want my daughter to become blind. In QLD hospital no one knows about MOGAD I feel so helpless. Please because you are from Australia, is it possible for someone to help her or for you to pass on the knowledge that you have. 😢 Thankyou Sharon
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