My now 18 yr old daughter suffered a stroke after being diagnosed with a CVST when she was 15. Our PCP said she had an ear infection and started her on antibiotics. She was brought to the ER after worsening bad headache. Discovered the clot turned into a bleed. Transferred to Ped hospital where she was put on Heparin. She wound up herniating due to increased pressure. They didn’t monitor ICP and never repeated a CT. Resulting in blindness and hemiplegia. We have no answers to if she was treated correctly since there isn’t a lot of studies.
