UPDATE / SEIZURES I’VE BEEN HAVING IN FEBRUARY 

Hi, I just found your channel and I'm glad I did. I started having a sort of absent seizures in May of 2023. Then, in the summer, I had tonic-clonic seizures - and now I just started having drop/atonic seizures. I was also told I have systemic lupus in March of 2023. So at 22 years old, this is all terrifying. Yet the seizures are what is clearly scaring me more. About the sensations and feelings: I have had a hard time both explaining and understanding the feeling I have in the moment to those around me, because I know it in the moment, but I can't speak well. I've had sensations in the middle/back of the right side of my head - sometimes it feels like how you describe a crinkling sound but as a feeling - or what it would feel like to trap a bee in your hands as it flies around, not quite a buzzing, but something that extracts my thoughts. I have this weird moment when I know that if there is a sensation at the back middle of the top of my head, it will travel left and down, and I will no longer be able to speak or communicate with logic. I also just had, for the first time, a very intense long seizure that lead to me not being able to speak (like I was talking but slushing water in my mouth) and I knew I didn't make sense, which made it worse. Although I don't remember these moments exactly, my parents say that I get an "extreme pain" behind my eyes, followed with me sobbing over "purple lightning" or other times "falling glitter." I also have severe tinnitus on these days, as well as "visual snow." I have just started dropping to the floor suddenly, and losing complete function of my muscle control. It's a dangerous situation and I can't go a day without a seizure since they're clearly not controlled. I'm glad I found your channel. It's been hard to watch the videos that people take of me because I feel alone. So, thank you for helping me see that I'm not. Sending love and prayers 💕

Seeing the dogs go to you melts my heart. In July, my dog, a 100lb pit mix, kept staring at me weird. He almost looked scared of me. Hes my heart dog and nursed me through chemotherapy for breast cancer in early 2021 through late 2022. I had my first seizure in June but had been fine for about 3.5 weeks by this time and they said it was probably migraines that caused it. This day, I felt paranoid almost. Very anxious about the silliest things and my dog acting weird made men feel physically ill. I was so sad that he wasn’t well. I called the vet and had my son drive us over. They decided to keep my dog for a few hours to see how he was. He had a full work up and they said he just kept crying and that my husband should go get him. He came home and immediately started with the staring and pushing me down in my seat like he was my paperweight. I again felt anxious because he seemed like he was pissed off at me. Within 15 minutes I had my second seizure. I took my dog to the vet for 552.00 because he knew I was unwell! Now I’m medicated but if I feel the slightest bit off, the dog is the first one to let everyone else know that Mom isn’t allowed to get into any trouble that day! They’re such blessings! I appreciate your vulnerability and your honesty. You’ve taught me a lot 💕

I’ve had that before too! For me, I either get that ringing in the ear like you are describing or these weird fluttery visions in my left eye! For me, it happens when I’m stressed or when I have too many! It’s this dizzy like feeling and it’s so loud you can’t think or talk.. kind of takes over you, in a way!

I just subscribed to your channel. I have a grandson who's had persistent seizures for probably a decade, and so I thought I'd come here to learn from you, and also support you and anyone else who has this very difficult disease. I so admire you for your courage and goodnaturedness, and you have some beautiful souls around you supporting you. Wishing you peace and health this month, dear.

I feel a sense of discomfort with the new symptom. I still watch you its been years. And I still look for you in my lineup of videos. Hope things in the future go well and you can get the information your talking about. Hang in there.

Love you ang sorry your seizures are bad at the moment hun keep fighting hope you feel better soon love you xx

I am sending you all my love and support, I am here for you every step of the way and you take care

Support is big no one should go through this alone.

Always praying for you, sweetie 🙏 ❤️ 🫂 so sorry you are having to go through this! #TeamAng always

Thanks for the video Angie I hope you feel better I'm praying

May God bless and keep you and your family Ang. You're so strong. Keep going, and I hope you are feeling better ❤🙏

Girl I feel you. I had to go to the hospital like 8 times because I was suffering from fainting and shaking. I found out 2 weeks ago that I was having extreme seizures. I’m sorry that you had to deal with this for so long. Sending love from Olivia 🫶🏻

Feel better soon prayers for you angelica

It upsets me so much to see you in this state. Corey is so good to you. The dogs all round you sense your discomfort..thinking of you ange ❤

Sending you lots of love and hugs from the US! Keep fighting

Keep on fighting the good fight, Ang! Just know that not a single one of us will ever give up on you!

Sending so much love Ang❤

Your right Ang it’s the 8th of February today 👍 so sorry you’ve had all these seizures in the past week all the best in 2024 to you all ❤

You are an amazingly strong woman with an amazing partner x I have problems finding my words sometimes and I call it a brain fart xo from your Aussie family ❤

Hi there, i have been following you on RU-vid. My husband Was 73 last year when He had his first seizure at night, and i was so shocked!!!! What a strong woman you are to be dealing with this illness for so long!!! My heart goes out for you, that's for Sure ❤❤❤

Bless you beautiful, please take care💖

I hope you feel better soon

I'm praying for you and my family wish you to get better soon. Greetings from Russia! ❤❤❤

Hey you. You always make sense. Even when you think you don't. You have help so many people wht ur journey past few years. I honestly believe you have helped more people that you realize kiddo. Doant beet urself up. You have the biggest 💜 heart iv not seen in before. You have. Yourself. And the biggest pocket of gold in your life. Good days n bad. Ur family. Cory. Puppies. Ur u tube family 💖. Tomorrow. Wake up. Go for a walk. Fresh air. You give us all. All. More faith than you 💟 give yourself credit for. And thank you. For being strength for so many. Even when it is tough for you. 💜 Purple hearts. Lv ya kiddo. Peace ✌️.

sending cuddles and blankets xxxxxxxxxxxx

Hello Angelica i love your channel, i have so much respect for you, and the bravery of you showing the videos. I had convulsions when i was little since then i grew out of them but still get the tinitus in my ears today. But not sure if i am having them again got to see doctor soon.

I'm so sorry Ang you have to be tormented like that is there anything else you can do to help prevent these sezires like an operation or any other meds you can be taking? Much luv and respect to you young lady! ❤

Hun I been watching you for a long long time...I wish they get a cure its so sad to see you going through all this,

If you are talking about your deja vu feelings I get them aswell with my epilepsy. They are the worst and I feel the exact same as you. Your not alone ❤

I think of you often and wishing I could help in some way. Do take care and drink your juice.

I had 7 for an hour and bit my tongue last week then got sent to the hospital, I was there Monday night through Thursday afternoon or evening

It’s called tinnitus Ang. Van Gogh had it and cut off his ear. Don’t do it. It didn’t work. I have it in both ears. Good luck to you as always ❤️ #TeamAng

My endless love🙏

Hi, I am so sorry to see what you go through, I am so glad to see the live and support from you mom and boy friend. I wanted to hop on and share something that idk if you're aware of but in canada you can get heavy metal cleansing it removes the junk from vaccines it's very expensive but it might be something worth looking into. Sending my love! I subscribed to help with your channel! Best of luck to you!

Hi Angie I hope u really get completely out of those seizures forever in the name of Jesus Christ 🙏 ❤❤it’s also all about the mindset u have during the day ,I only have seizures during the night sumtimes but I learned that it’s that I put so much thoughts and think a lot that’s really so negative also I eat better a lot of vegetables now and workout 🏋️ that’s really help take of all the stress and anxiety from the mind it’s really a routine

Corey is an angel

💜 That's Tough what You're going through! 🙏😇 Sorry girl.🌸🌸🌷🌷🌸🌸 Hope things get Better for you! 🙏 & I Like Your Dark Roots in your Hair! I'd like to see you with your Natural Hair Color. Are you growing your hair out that way? When you were sitting on your porch, I thought your whole head was dark........LOOKS GOOD!👍💯💕💕 Either way is good. But just saying...😀 Get Well Baby girl!! 🙏💜

Hi to your mom hi corey at least they were there amen i pray for u

I have tinnitus, so there's a permanent ringing in my ears. However, I did notice when my seizures were at their worst a few years ago, that the ringing would either become louder in one ear or seem to switch between them. I will keep on praying that your seizures ease. Sending Spoonie Hugs and Love 🥄🤗💜

Your have some confused and hope you are ok take care of yourself and just be happy girl your boyfriend is there for u in your time of need and your mom ,and sister,and the family is all there for you girl hopeyou get a medicine that will help younstop having them all together just rest and take care your friend from Illinois

God bless you my friend🙌🏻🇧🇷💔🇺🇲

You are so strong and you are very lucky to have such a wonderful man you have in your life ❤

Hi, I came across your channel by chance, here on YT. It's been years ago since I had a girlfriend with epilepsy. What you are wondering is very recognizable, but for me as a Dutchman it is very difficult to describe it in US English. My ex also felt it coming, although she suffered from absences and very severe attacks (shocks in combination with cramps) afterwards she was anxious and totally exhausted for many hours and after a attack she needed a lot of sleep for rest. What struck me was that she could not tolerate strobe effects, even while driving (sunlight with shadow) and the television was also often difficult. Events were also very difficult to attend because of the impression she got. The brain cannot process all the impressions at the same time. Good luck on your detox journey and I hope that you are soon freed from your seizures/epilepsy.

One of the things that upsets me the most is how much time and energy this takes from you 🥺 you are young and should be out running around living life carefree and seizures rob you of that experience. It truly breaks my heart watching you have to stop what your doing sit and wait for it to come and go. It takes so much of your precious life from you! Not to mention how awful it makes you feel. Have you ever tried CBD oil or Ketogenic diet? Prayers for you, girl hang in there! 💜

Hi there , I totally understand what you going through because my cousin chloe started getting seizure. She was In the bath and I hear a loud noise I run in the bathroom and she was having a seizure in the bath so I jump in the bath quickly then left her up because she swollen lots of water this was the first time she had seizure 2010 and now see has them a lot.

Omggg she is so very lucky to have a boyfriend like she has!!!!!!

I suffer from migraines and my ENT told me the ringing my ears may be related to my hearing loss or low vitamin or drug interactions.

You should keep your salt lamp on 24/7 unless it's one in the bedroom, then turn it off at night.

I have seizures too , but mine are stress related and I just back from the ER not long ago like maybe 2 or 3 days ago and my boyfriend is like urs too cuz he is always there when I have them

Hi how are you feeling at the moment ang And bwe must be strong

❤❤❤❤❤❤❤

Hi I'm Danielle I've been watching your videos. I never had a seizure but when I did a sleep study for my sleep apnea my results came back that I had seizure activity I didn't know if it could or would happen?

🙏❤

Your having a absent seizure, I have been having them the same it's brutal do you get an aura or smell before an actual seizure mines burning plastic and then loud ringing in my ears

I have had this in the past and still get it on occasions. I have mitochondrial disease and cannot process vaccines. I got this sensation after the HPV vaccine. I also have epilepsy that was caused by mito and made worse by vaccine side-effects. I believe the sensation is the lymphatic system trying to get rid of toxins. It may be a sign the celery juice is helping. Fasting helps me and telling myself my body is trying to heal itself. I hope you have less seizures. ❤ x

Hi a journey seizure free channel I subscribed to your RU-vid channel feel better soon Angelica

Last Month ago, I have been seizures. My husband support with me. also My friends always support me all time. I have to apple juilce

It is called tinnitus. I am 67 and had it since July of 2009. I woke up with ears sounds like crickets in my ear 24/7. Mine are not due to seizures. What noise does it sound like. Will white noise help drown it. out? I am so sorry you are suffering so much. Animals sometimes know you are having a seizure before you do.

💖🌸💖

Well the puppies sure know you well.

Ringing/noise is your ear is called Tinnitus x

Please go to the hospital..might need a MRI.

How are you Ang and family, I hope everyone is doing well, may your Sunday be wonderful, here in Brazil and carnival, I hope you fulfill your hearts desire in the name of Jesus Christ, God heal you in the name of Jesus Christ, amen, nothing and no one can steal the blessings that God has to give you, amen🙏🙏🙏🙌♥️

My stepson has seizures. His younger brother would tell me, brothers going to have a seizure today. I asked how can you tell? He said I can smell it. Without fell he would have a seizure sometime that day.

Hello sweetheart how are you feeling to day I hope your doing well I wish you luck and the best

I have tremors and my ears ringing all the time it makes me feel uncomfortable, and sometimes I get dizzy and lightheaded from them

My brother has epilepsy, after he has a seizure he can’t talk, he is too Confused. He’ll sleep for hours. His big seizures are control with medication. He was never a candidate for surgery. I’m wondering if that has ever been an option for you, have you ever explored that? I’m so sorry you are dealing with this.

Hi Angie! Hope today is a good day for you. I have a question. I believe you might've answered this question in an older video but I can't find it. I'm wondering why you record all your many many seizures and share them online? Your channel is called "my journey to be seizure free". Have you found any modalities or practitioners who help? Other than Dr.s who practice strictly western medicine I mean. They all just seem anxious to throw prescriptions at us hoping it will help the symptoms, but don't do much about looking into causes etc. 😜 I do hope you're making progress on your journey. ❣

I get it and I hate it

Hate to see you going thru this 🙏 praying for you cannabis oil on your tongue a little girl was having 15 seizures a day now she barely has one please consider it ❤

Is one of your dogs a service animal he looked like he was alerting for the seizure

Tennitis. Ringing in the ears.

i am just curious: are you able to be alone or do you always have support at all times from your loved ones? i wish you all the best, you are a lovely person

Medication can cause that. I got ringing in my ear from excedrin

💜 💜 💜 😕 🙏

Iv had that and ringing and throbbing 😊

Have you tried cannabidiol?

Dear Lord! Help this woman! Pls look into CBD for seizures. ❤

My daughter has a epilepsy alert dog 🐕‍🦺

try some sour sweets ,sometimes in the winter air pressure changes and tat can affect ears .

The first one didn't look so so bad.

can u try and listen to a bit of music when this happens xx

Please try carnivore...

How you feeling today I hate that

It's called Tinnitus. My ears ring all the time lol

Hi

Epilepsy??

You seem to come out of your seizures and jump into other things often, without sleeping or being confused for long.

Hope you have a great day and i watch your videos all the time and can you give me a shout out and how are your seizures doing and how is everyone else doing and how is Sadie and cola doing and I would love to meet you one day

Aaron Have Seizures

Give nasal rescue meds

you confused

It's sad to say but how could this young girl ever be left alone or how could she ever have a child ?? She doesn't know when these seizures are coming on how can she take care for a baby/child ???!!!! This has to be an awful way to live the not knowing when one will come on..... It's gotta be so hard on her boyfriend too what a way to live!!! Very sad..... From what I'm seeing and I'm not a dr but for some reason I don't see these horrible seizures ever going away!!! I doubt it extremely she'll ever be seizure free, I'm sorry this is all just my opinion......

Typically texts are terrible 0:33

I have been following you for a long time and feel sad for what you go through.. But most of your videos are about you showing your seizures and very little about doctor appointments, treatments plans, researching various therapies. Not very helpful for other people who suffer from seizures. We see no improvement in you, no treatments mentioned, no doctor appointments that could help others instead of just watching you have all these constant seizures.

I hope you feel better soon