Updates in celiac disease research from the Beyond Celiac Team

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Beyond Celiac panel of experts, including Kate Avery, MPH Director of Research and Patient Engagement; Bailey Arman, Associate Director of Communications; Amy Ratner, Director of Scientific Affairs; and Erin Miller, MPH Associate Science Project Manager, share invaluable insights on the most recent developments in the field.
Discover the groundbreaking original research conducted by Beyond Celiac and learn about the impactful studies funded by the organization. Gain a comprehensive understanding of the role of Beyond Celiac in accelerating research and support for clinical trials.
Moderated by Beyond Celiac Senior Director of Communications Claire Baker, this discussion is a wealth of knowledge for anyone interested in staying abreast of the latest advancements in celiac disease research. Whether you're a patient, caregiver, healthcare professional, or just curious about the scientific strides being made, this video is your ticket to staying informed and empowered.
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Опубликовано:

16 ноя 2023

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Комментарии : 20

@odessarepresentative 2 месяца назад

thank you all for actually doing something for us!! i was diagnosed about 15 years ago and damn, I really want soup dumplings and a croissant!

@grievousmink3889 День назад

They make gf dumplings and croissants

@Saidwaitaminutechester 7 месяцев назад

Thanks for all your work! Very interested to see where these clinical trials take us.

@soxnpats4lyfe 3 месяца назад

My 6 year old daughter has it. Its awful. The food is disgusting, the options are less than limiting. I hope in her lifetime there’s a cure.

@moonhunter9993 7 месяцев назад

I am glad the researcher is also a sufferer... I am sorry she has it but happy she knows it first hand

@kamalgill6065 3 месяца назад

Is someone has gluten intolerance but no other symptoms than anemia, I am confuse because some people relates to medical line says you can eat gluten while you have no diarrhea, bloating etc. Please let me know if anyone's has same symptom.

@wendyrowland7787 7 месяцев назад

Oats are definitely an issue even so called gluten free oats. My celiac journey took 20 years and an unnecessary cholesistectomy before being diagnosed. The gluten allergy quickly became dairy and brassica intolerant. I cook from scratch and manage to find plenty of heathy alternatives. Too many gluten free bought products are serious junk food. I would say that apart from 2 small loaves a week and vegan cheese, my diet is not significantly more expensive. A recent 5 week stay in hospital was difficult as even the qualified staff ignored my dietary needs, seemingly no worries for them as I wasn’t an epipen holder. I have had to navigate myself through this disease with very little useful help from the medical profession. A gastroenterologist with an interest would be useful.UK resident by the way

@boycott2720 5 месяцев назад

So how did you get the hospital to give you your dietary needs? Can they just ignore a disease if they want to?

@wendyrowland7787 5 месяцев назад

@@boycott2720 with difficulty. I had to rely on my husband who doesn’t cook to bring in food.

@user-sd1qr5il6k 7 месяцев назад

How about offering help to pay for food to support the health of Celiacs like they do in Europe??? It's costing me up to 40% more to eat than the averagee American!

@user-sd1qr5il6k 7 месяцев назад

GMO wheat isn't helping anyone.

@wendyrowland7787 7 месяцев назад

I don’t believe that is an issue, BUT dessication of crops with glyphosate could be. That means spraying the crop to kill the plants to make it ripen evenly for harvesting. The other thing is enzyme acceleration used by the baking industry to speed up the dough rise.

@user-sd1qr5il6k 7 месяцев назад

Unfortunately at the expense of HUMAN HEALTH from what the evidence shows.@@wendyrowland7787

@boycott2720 5 месяцев назад

EVERYTHING you eat is GMO. Every single thing.

@user-sd1qr5il6k 5 месяцев назад

How about the lack of nutrients in our soil due to monocropping?We need at least 87 minerals and vitamins to sustain health. How does adding only nitrogen, potassium and phosphorus help us ingest what we need in our food to be healthy. Perhaps those who make the guidelines should have to eat the food void of nutrition that we do!

@tsolo813 7 месяцев назад

All the celiac disease foundation wants to do is talk about symptoms. We’re all aware the symptoms. They have nothing to say but repeat information for the last 10 years . These meetings are usually worthless. I quit watching them.

@grievousmink3889 День назад

Because nothing has changed in the last 10 years. Cant update info without updates. 🤷‍♂️