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VF Disease Spotlight: Steph's Story about living with Cryo 

vasculitisfoundation
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Introducing Steph Lee 0:02
How it started. Early symptoms. 1:45
Extreme fatigue that wasn’t normal. 2:48
Failed a test at the hospital. 4:00
Sensory, neurological symptoms grew worse. 5:15
I was told to see a psychologist. 5:37
Prednisone: Back to myself in three days. 6:23
Started taking Rituximab. 8:05
We’ve been looking for horses. Now it’s time to look for zebras.” 10:09
Neurologist: “There’s one type of vasculitis they didn’t check you for….” 12:21
Coping strategies with Cryo. 13:55
Adjusting my mental attitude. 14:28
Coping with the cold. Staying warm with cryo. 16:29
Why it’s a big decision where patients with Cryo choose to live. 17:57
Always need extra clothing to stay warm. 20:24
Surviving winters in Minnesota with heated clothing. 22:13

Опубликовано:

 

10 авг 2021

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Комментарии : 3   
@captainhml3868
@captainhml3868 2 года назад
I really enjoy these videos. Please do one on Anti-GBM/Goodpasture's Syndrome. I have GPA AND Goodpasture's Syndrome.
@kempenaar32
@kempenaar32 2 года назад
Very similar story here
@mail2vw
@mail2vw 2 года назад
Hi steph What was the blood test you talked about in the video (with false positives) they did to diagnose your cryo?