ARRE Foundation founder Laura Badmaev and her son Alex welcome families with a new diagnosis of an ASXL-related disorder (which includes Bohring-Opitz Syndrome, Shashi-Pena Syndrome, and Bainbridge-Ropers Syndrome) to the ASXL community. Find additional resources on the ARRE Foundation website at www.arrefoundation.org/newly-diagnosed
13 ноя 2023
